I've been wondering about those too as I read about them a few nights ago. Trying to look up as much as possible to discuss things with my doctor next week. Medication just isn't cutting it and after 10 years still don't have any real diagnosis!
Mike71, I have an implanted neurostimulator. It was put in several years ago and when I went for the trial, they put the leads in, gave me a wired remote and told me to play with the controls for the next 5 days. It was like some miracle happened. OMG, the pain level went down so much. I went back and they removed the trial one and set me up for implantation. It worked so very well for a while but it was implanted in my cervical spine because my pain started so high up. Well, I developed an infection and the wire came through the skin and I had to have it removed and wait six weeks and have it done over again. Not too long after that, I lost signal to some of the leads and it wasn't working. They removed it, I had to wait six weeks and then go back in again to have it implanted again. It was not working nearly as well (perhaps because of repeat surgeries), and then I fell down the stairs and smashed my head against the door at the bottom of the stairs. The leads are broken, they are so scarred in after having it done 5 times that they can't remove it without paralyzing me. So, I live every day with a pain level of about 8.5-9/10 on Morphine. Just want to tell you that just because it didn't work for me, does NOT mean it won't work for you. Also, if you are having it implanted in the lumbar area, it is a much more stable area for you to have it. I hope that you have much better luck than I did. Know in advance, it is not an easy surgery. It is done with the patient made as comfortable as they can but they have to wake you for the placement of the leads to make sure that they are not touching anything that will cause you to be paralyzed. they give you something to forget it afterwards and they put you back out to finish. Just remember that it could work very well for you... I wish you the very best.
Thanks for the info AlwayZ. Scary cat me will never get that done now! 😱 LOL. I don't expect they'll ever offer to do that on me after what I've been told last week by three docs on my neuropathies. I seriously doubt it's an option for me, but... Bock bock! 🐔. Lol 🙏🌼
I wish I could get it done on my lower lumbar. After my fall , i landed on my back. They didn't see no damage. I was so very surprised. I wanted them to look so much more closely because when I was in the hospital and after I was in the hospital, I could only lay on my back for about 15 minutes, then on my right side for about an hour and a hal, then left side the same, and repeat. After I was out of the hospital I couldn't sit for at least six months. I could only lay on my side. Then when I could finialy sit, it was only for 20 to 30 minutes at a time. When they burned the nerve off serveral monthes ago, it allowed me to sit for at least two hours with my family. With my arm, I now have to sleep in a recliner all the way back and it is not hard to half sit and half lay. That is part of my sleeplessness. So I could really use one of those devices. I will talk about that to pain management next time I see them.
Profiler, they DO implant the neurostimulators into the lumbar spine. It is not as bad from what my cousin told me to have it implanted low because there is less that they have to put under the skin, less trauma and less wiring and possibly less chance of it failing or breaking. Flappsy, I don't think that you are chicken. It is horribly scary. The first one was a "trial" implant and it was put into my spine at C-1. When I went back to the surgical center to have the entire implant done, they implanted the leads at the base of my brain stem, then, they take a very long needle looking thing that the wire goes into and they shove that under your skin to "thread" the wire under the skin down to the top of your buttock. After that, they make an incision in the top of your buttock (the side depends on if you are right or left handed) and then they make a pocket, put in a battery that lasts 8 years and hook up the connections. Then they program it.. It was done under sedation and when I screamed in pain, the nurse from recovery, across the building, came in to see what was happening. The doctor told my Mother that the procedure to feed the wires under the skin is kind of barbaric. Interesting word, huh?? However, I do have to say that when it was working, it was wonderful. Never say never, it may help with your pain. I just want to be honest with you all because going in there thinking it's going to be easy would be unfair of me to let you think that and I care too much to not be totally up front about my experience. Also, remember, that was just MY experience... You may have a different result and also your pain threshold may be different than mine... The one thing it does do is helps you to reduce the amount of medicine you need to take orally and you would only need to have breakthrough meds. Give it some thought, read up on it and see what you think.
Alwayz, Thanks for the description. I am chicken when it comes to needless... No joke! I nearly passed out this morning getting an IV for the EGD. I wanted the nurse that my veins blow easy and when it started rolling she tried to chase it... It blew and not only did I suffer through that I have a horribly bruised site with a lump. When a different nurse came in I was white as the sheet and my hubby kept telling me to breathe. Lol Thank God that nurse did it so quick and gentle I barely felt it!
I do have a high tolerance for any pain other than with needles, probably due to how much I've been stuck. With your description I can say with 98% assurance I won't get that done. Bock-bock 😨