Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Nerves are off the chain!😬

Mar 15, 2016 9:06 PM

I remember the verse where it says, "He'll never leave you not forsake you."

I'm trying to focus on that tonight, as my nerves are off he chain, as I'm having a heart catheterization tomorrow. As I go into the procedure room I will be focusing on Him, knowing He will get me through the painful procedure (sedation not allowed). But the pain will be real. Having been through one many years ago, and before fibromyalgia & neuropathies, I'm actually very, very nervous. Wishing everyone a peaceful night. I likely won't be back on until Thursday. Please pray for me, and my family; my children to off work (they've never done that before). I yes I should add that I/they lost a stepmom/grandmother after a heart catheterization/angioplasty; she had a massive cardiac arrest. It's on ALL of our minds.

Mar 15, 2016 9:42 PM

You and your family are in my thoughts and prayers! I hope your procedure is uneventful and quick!

Mar 15, 2016 9:56 PM

He doesn't put more on us than we can handle. But we control our thoughts and do not give it to Him so He can care for us. There is also scripture that says "I can do all things through Christ who strengthens me". But we try to do it on our own... One more that talks about He takes care of the birds of the sky...He will take care of us... You are in the palm of His hand Flappy. He has you. Trust Him. We will lift you up in prayer during that time. Rest in Him. Peace & Grace.

Mar 15, 2016 10:03 PM

Flappsy, you AND your family are in my prayers. I know that God will bring you through this to the other side with answers and a plan to make you better. I will be praying with you and will be holding your hand tomorrow as you have the procedure. May God bathe you in his protective light and love and send your guardian angel to envelope you in her wings to bring you comfort from the pain and anxiety. I also pray that God guides your doctor's hands to take care of you in such a manner that you are not in pain and their expertise is at it's very peak. Sending you much love, supportive {{{Hugs}}} and many prayers that all goes smoothly and by this time tomorrow, you're home resting comfortably in your bed with NO complications or adverse effects. Love you, Flappsy!! πŸ’•πŸ™πŸ»πŸŒ»πŸ˜

Mar 15, 2016 10:19 PM

I'm praying that u have peace of mind and that u will have super natural joy as u enter the room and even before u go. Know that the LORD your GOD has already gone ahead of you and prepared the area and blesses it and all the hands minds and hearts involved.

Mar 18, 2016 4:06 PM

Thank you all for your supportive words. They didn't start the procedure until I was given 50 fentanyl & 25 benadryl. They couldn't use the normal med (versed) because I'm allergic to it. As they started inserting the ports in my right femoral artery & veins I felt it badly, so they gave me more sedation, but not enough to knock me out. Doc kept asking where it was hurting and I told him to the left of the port entries (center of my pelvis). All I could do was deep breathing in and exhale slowly by mouth. But finally it was over, and I was in the room resting. Doc came in and said my heart valves were clean, no plaque, that each lung had equal pressure, and there's no way the SOB is from my heart. He told me to follow up with my pulmonary doc. I called today and the soonest they can get me in is April 22. My groin still hurts and I'm too take it easy for 7 days. Thank God I didn't needs stents or something!

Mar 18, 2016 5:19 PM

Flappy, I saw you last post and I was happy, and I laughed a little, and I was sad. I will take each feeling one at a time. I was happy that you came through this procedure uneventful and without problems with your arteries and heart. That is a huge plus. I laughed a little when you used SOB in your sentence because I thought it stood for son of a b____. It made that sentence funny but it wasn't you. So I laughed. I was sad that I was not onlin at the time of your post to support you during this scary time. I would have been terrified After knowing someone who died close to home who died after this procedure. I wish I would have been there to offer you some comforting words and a couple bible verses. Now I hope the find out why you are short of breath(SOB)πŸ€”. Best wishes to you 🌞❀️

Mar 18, 2016 9:11 PM

Thank you profiler. I was concerned about the abbreviation, but SOB is the medical acronym for shortness of breath, which docs write in charts. Lol. It was very rough for us to face it, but at least it's over now. My hubby is wondering if it's some of my meds causing the SOB. I'm glad my medical shorthand have you a laugh! Don't worry about being late... Better late than never. Hugs!!! πŸ™‚πŸ’•πŸ™πŸŒΌ

Mar 19, 2016 12:48 PM

Flappsy, I am over the moon with joy that your shortness of breath had nothing to do with your hear and that everything was clean and your lungs are good. You've been in my thoughts and prayers and I said the rosary for you the day you were in with the procedure. I'm sending you gentle {{Hugs}} and prayers that you get to rest and your appointment on April 22nd gives you the info you need and a plan to make it better for you. πŸ’•πŸ™πŸ»πŸŒ»πŸ˜

Mar 20, 2016 5:00 PM

AlwayZ, thank you. My cardio doc said the pressure in my lungs were equal, but said I need to see my pulmonary doc to look in the lungs. I'm thinking the pressure he referred to had to do with the blood pressure because they didn't have me on any type of breathing apparatus, nor oxygen. I tried walking the treadmill today and barely made it 10 minutes. The surgical area, where the ports were is bruised badly, but it hurts a lot more than I thought it should, about 2" to the left of the port sites. I guess that's thanks to fibro. I hope you have a good day & night! πŸ™‚πŸ’•πŸ™πŸŒΌ

Mar 21, 2016 9:46 AM

Flappys sorry just seeing this, I am so glad that it went Well without complications, you are in my continued prayers. Take it easy and rest up. πŸ’•πŸ™

Mar 21, 2016 3:03 PM

Flappsy, thank you for explaining, I guess I misunderstood. However I am thrilled for you that it's not cardiac related. I hope that the area where they placed the catheter for your heart test heals up quickly and completely. As always, you're in my thoughts and prayers my friend.{{{Hugs}}}πŸ’•πŸ™πŸ»πŸŒ»

Mar 21, 2016 4:53 PM

Flappys,
Thinking of you and wanting to send you a gentle hug.
Sincerely, Beets

Mar 26, 2016 7:45 PM

Except for the bruises I'm doing fine now. Thank you everyone! And AlwayZ, I'm only guessing the docs meaning. I'm as confused as you. Lol But I'm doing fine now. πŸ™‚πŸ’•πŸ™πŸŒΌ

Mar 26, 2016 11:03 PM

Hi I'm new but I'd like to wish you all the best my prayers are with you πŸ™πŸΌπŸ™πŸΌhope the procedure goes extremely quick for you blessed be xxxx

Mar 27, 2016 12:28 PM

Welcome, 0318chrnoickchez! The procedure went well, and at least we now know my heart vascular system is healthy, and not the cause of my shortness of breath (SOB). It was uncomfortably painful, which I now know was due to scar tissue in the surrounding areas, and a hematoma that formed at the entry site. I was finally able to get back in my jeans Friday, so it's all good now, nothing left but mild bruises. I don't see my lung doc for several more weeks, to see if the SOB is from the lungs. Thank you for your prayers. I hope you settle into the community family, finding answers & support you need! πŸ™‚πŸ’•πŸ™πŸŒΌ

Mar 28, 2016 12:38 AM

Flappylady, you seem to have flown thru you heart cath. I am sorry that your family had a bad experience before with a loved one passing on...but it was not because of the cath. It was because of heart disease. Your Cardio doc reassured you all was well with your heart ,valves and cardiac vasculature. Shortness of breath is not normally the only reason a cardiac doc would perform a heart cath. Your pulmonary doc will be able to test pressures and lung function much better. When you first mentioned that the heart cath would be without sedation ,I about flew out of my chair! So I quickly ran thru post replies to find out what they used...lol fentanyl is a potent IV narcotic without amnesiac side effects, so you remembered everything. You have a good heart and now it will be much easier to diagnose any potential lung problems....causing the SOB. In tue ean time try not to focus on it so much. Remember what we feed our attention...always gets BIGGER! I am imaging a very some diagnosis and treatment plan..so you try to do the same. Much love ,Terri

Mar 28, 2016 12:04 PM

Thank you Terri. If we'd known the signs of heart disease my stepmom could have received care 2-3 years before her traumatic death. She was the type to ignore her own needs. Unfortunately my children were like 7 & 11, so when they heard I needed a cath, naturally they panicked.

I'm allergic to versed & stadal, which is the norm here, so they had to use fentanyl. Lucky me, huh? Lol. I'm so very grateful it's over, and my heart is good. He said the mitral valve head not worsened and he saw no reason to be concerned it would. The only sign of the cath now it's still the very hard rope like lump at the entry site. Doc said it's likely a hematoma that will go away in time.

I grew up around smokers and went around smokers until I developed asthma in 2001. My sister's, both who smokes, have COPD now, as did my mom & grandfather (before they died). My sister's think I have it, mostly because my SOB seems to worsen in cycles, 2-3x a year. I'm not convinced because it's only with activity that I become SOB.

Mar 28, 2016 2:13 PM

Well, I don't think it sounds like typical COPD. It could be pulmonary hypertension, pulmonary fibrosis, bronchiectasis... Etc. It could be any number of really easily managed pulmonary disease. Please sweetie try hard to relax. I know you have been through the wringer as far as your health concerns. Record the episodes as best you can,(I.e.activity involved, s/s dizziness, headaches, sweating, hot flashes, mood, atmosphere, if it happens before or after eating, ...stuff like that, also what makes it better you, what helps the shortness of breath to ease up.) Please try not to overwhelm yourself with investigation on this. Relaxation is absolutely necessary. Peace of mind, enhance your faith ...You are not alone. There may be so much going in your brain that easing up on tackling too much stuff is very very much needed . Doctor Heavenly Father has got this...he will see you through this process and help you with every breath and will th every heartbeat! Much love ,Terri
..

Mar 29, 2016 8:37 AM

Wow, you there some words at me I can't recall anymore! I use to be a coder, but my memory loss has taken most of what I knew from me. Now I'll have to look them up if the doc says it. Lol

Example: my granddaughter is spending several nights on spring break. I was on the bed (King size) trying to roll 2 quilts into a log to place between us, because she kicks in her sleep. And we all know what getting kicked feels like to our bodies! Lol It took maybe 2-5 minutes to wrestle those quilts into place and I was literally hassling for breath, sweaty, and exhausted. Then later I was trying to fix supper so it would be ready when hubby got home. She was trying to help but got bored and went to watch TV (ADD). It took me 1 1/2 hr to finish washing veggies & meat, prepping, & cooking. I kept having to stop due to the hassling/breathing faster and feeling like I needed oxygen. When I finished I sat in the recliner with my legs up; they were swollen, burning, & stinging. Once I'd rested about 30 minutes I felt better, though my legs were still swollen & burning. They turn splotchy red when I'm on them very long, even in a 15 minute shower. At my granddaughter's bday party I had to walk to the parks restroom. It took maybe 3-5 minutes one way. By the time I got back to the chair I was breathing in rapidly and grasping. And there are many more examples like these. To me it feels like I'm not getting enough oxygen or breathe in deep enough. I check my spirometer several times a week, and I can blow out air just fine, unless I'm sick with a great cold.

I'm actually calmer than my family is about it all. They're like, "do you need our walker?" "Do you need to lay down?!" "Do you need your inhaler?!". I always say no that with rest I'll be fine. I'm not stressing over it, but I would like to know what the cause is. Heck, I've even wondered if it's from the additional 30-40+ pounds I've gained from all the meds! I don't take the Tramadol for pain unless I'm at a level 8+. I don't even take my migraine meds unless it's full blown. Probably not a good thing to do. Lol I try to get it to ease with laying down and relaxing with low gentle music. My hubby wants me off them, but I told him several times I can't come off the asthma or autoimmune meds, and right now I need the depression & anxiety meds.

Mar 29, 2016 7:40 PM

I understand what you are saying and I can now visualize the activities that increase your SOB. Perhaps a simple bronchodilator might open up those tiny aveolar, decreasing the shortness of breath. I know you are a very intelligent woman doing each and every thing you can to continue to improve your health. The spotches on your lower extremities while standing may indicate vascular disorder (is.PVD/PAD)..WHICH all of these symptoms can be interconnected...the added weight that you have unintentionally gained is an added complication which can not only increase activity intolerance but as me and you know personally our very delicate and precious self esteem. I am on your side! Sitting in the bleachers , waving and yelling my support for the mighty womam that you are, Such a strong competitor, against diseases .(I am waving my pink and purple pom-poms, too!)

Mar 30, 2016 5:44 AM

Terri, my hubby asked the cardiologist if my legs could cause the SOB and he said no. But I thought I remembered something from college classes about pvd & SOB. I remember my mom having SOB symptoms (before the CHF & COPD, follows a stroke & heart attack), and pvd was one of her first problems. I already have one vein that refluxes, so I'm in compression stockings... Yay fun in the summer...not! Lol I guess I should follow up with the pelvic congestion doc in Savannah. Ugh, another long trip. But hey, if I'm gonna do pom-poms then mine will be black & red... GA bulldogs! Lol
Thanks for your info & support. It means a lot!! πŸ™‚πŸ’•πŸ™πŸŒΌ

Ready to start relieving your pain?

Join Community