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Nervous about tomorrow's appointment!

Mar 21, 2016 9:38 PM

I love my GP. She is wonderful. I have an appointment to go over the results from my nerve conduction and to determine next steps. The neurologist told me he'd send her a number of tests I needed to do. I'm curious but so nervous! I don't know why I'm nervous. Perhaps because I will find out more about my small fiber neuropathy and whether it is treatable.

Mar 21, 2016 9:39 PM

Oh and if it's reversible.

Mar 22, 2016 7:35 AM

CDNgirl, I think for us who are suffering from so many diseases it natural to be nervous about being diagnosed and and finding out the prognosis. For so many of us another disease means something else we will have to live with the rest of our days. But there is support here. There are additional prayers that will help you get through. So I pray God's will be done during your visit.

Mar 22, 2016 9:08 AM

Thank you so much! You said exactly what I'm thinking. It's hard finding out that it's not curable and that treatments only go so far.

Mar 22, 2016 11:14 AM

CDNgirl37, I think the anxiety comes from the unknown. Like you said, the neurologist said that He was going to send over some other tests that he feels you'll need to go through. It's all going to be ok. Just keep in mind that you're going to get results and that you're going to be put on a path to the answers you need to get the proper treatment for your pain. I will be thinking of you and I will keep you in my prayers. I know that you have the support of your CMP family when you need us. {{{{Hugs}}}} 💕🙏🏻🌻😊

Mar 24, 2016 12:01 AM

Thanks Alwayz. I didn't get very good news. I'm bummed out today.

Mar 24, 2016 1:31 PM

CDNgirl37, what did the doctor tell you? I'm sorry you got bad news. Try to think of it as now you have an answer, now, where do we go from here to make it better. I know it's not easy by ANY means. Believe me, I have a list of diagnosis as long as my arm. Each time I'm slammed with a new one, it makes me spiral. Know I'm here for you and am sending you gentle and reassuring {{{Hugs}}} 💕🙏🏻🌻😊

Mar 24, 2016 8:18 PM

I'm sorry it wasn't good news CDNGIRL. Give yourself time to absorb what the doctor said, then figure out what the next step is. Hugs & prayers for courage & support to get you through the next steps! 🙂💕🙏🌼

Mar 24, 2016 8:41 PM

When I was diagnosed with chronic migraines in February I was glad to put a name to it and taking my pills for prevention has become habit now. When I went for my nerve conduction testing the neurologist told me that there were numerous underlying causes possible and as long as we could determine it the small fiber neuropathy could be reversible once the underlying cause was treated. If it was idiopathic it would not be reversible and would get worse. At the appointment Tuesday my Dr informed me that I've been tested got everything except 3 things: diabetes, a metabolic disorder and lupus. She said diabetes and lupus are unlikely because I've been tested in the past. Diabetes I was tested when I was pregnant in 2014. Lupus I was tested for it back in October as I was having a lot of lupus like symptoms. I guess the one she did back then can have false negatives and this other one is used after a negative on the other but is still unlikely. I feel like the answers now are all pretty grave. I was really hoping for curable and if not curable, at least reversible. I'm reeling a bit.

Mar 24, 2016 8:41 PM

Thank you so much for your support. It means so much!

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