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Neurofibromatosis

May 03, 2016 11:36 AM

Anyone else have it? I feel so alone.. this disorder has so many variables that affect each individual differently...

May 03, 2016 12:50 PM

Frailfairy, I had no idea what this was until I looked it up. I'm sorry you have to go through this. I wish I knew something to help relieve some of the stress and pain. I'm going to share the link I read, in case others want to know. Hugs & prayers!!! πŸ™‚πŸ’•πŸ™πŸŒΌ

http://www.ninds.nih.gov/disorders/neurofibromatosis/detail_neurofibromatosis.htm

May 03, 2016 12:57 PM

Thank you puddin! It means a lot to me that you looked it up! It's so rare not many people know what it isβ™‘β™‘

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