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Neurologist tomorrow

Aug 16, 2016 6:14 PM

Okay, so I started noticing signs yesterday morning that my ICP was going up. Didn't think anything of it, until a full blown pseudo headache hit me along with all the other stuff that comes with it(i.e. nausea, sensitive to lights/sound, double vision, pain behind my eyes). I need everyone's collective energy to get me through this one. I am sick and tired of going through this already. I'm also tired of not being listened too, but have always been not bold enough to say anything. Tomorrow, that will change. I am NO longer afraid to ask for what I know my body needs. I'm tired of the constant up and down pressure variations. It just makes me sick. Take for example today.I have been so nauseated, I only had a handful of Chex cereal all day. That is so not like me at all. I just haven't had any appetite otherwise.
Just needed to get it out in the open. I will stand up for myself and not leave until I get assurances of a referral going through to the neurosurgeons office. I am NOT a pushover this time.

Aug 16, 2016 9:12 PM

You're in my thoughts & prayers, with hugs of support, & prayers for strength & courage! 🙂💕🙏🌸

Aug 17, 2016 9:55 AM

Okay, so good news. I was heard this time. YAY!!!!!! Several new medications are going to be started this weekend to see how it makes me feel. Script sent in for Zonegran which helps prevent headaches, Imitrex and a super strength NSAID both taken as needed. Depending on what the testing says in 3 weeks(September 13th), a decision will be made about shunt placement at that time. And the symptoms that I had since Sunday are gone. Migraine cocktail did indeed do it's job already so I'm pleased with that. Able to finally eat and drink normally.
Touch base with everyone later.

Aug 17, 2016 10:12 AM

So glad u got what u wanted 😚hunni... thats such great news. U rest up after ur appointment 🤗

Aug 17, 2016 12:30 PM

Lula, I did. I immediately came home and slept for about 2 hours. The phenergan in the migraine cocktail just knocked me senseless this morning. A little bit of a headache still but not as bad as it has been

Aug 17, 2016 3:29 PM

So glad u🤗 have had such a good rest sweetie ⚘ and that its been a good day for u 😚

Aug 18, 2016 10:58 AM

Amanda that's great you finally got some relief, and they're going to start treatment to hopefully prevent more episodes! Praying everything goes well, with love & hugs!! 🙂💕🙏🌸

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