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Neuromyelitis optica

Feb 19, 2015 7:10 AM

So this is what my doctor suspects. I'm scared to death... If this is what I have they'll give me a life expectancy of 5 years or less...

Feb 19, 2015 7:45 AM

Try not to panic - frightening the life out of yourself before a proper diagnosis is confirmed won't do you any good. So sorry that you are going through this. I hope you have family who can support you. Sending the best of wishes to you x

Feb 19, 2015 7:46 AM

TM532, I am so sorry to hear this! But you should know many doctors have been proven wrong before. God is the ultimate physician, and He decides when each of us will die. I would seek a second opinion to be certain. I can't say "don't let this upset you" because that's not reality. But I will say, talk to God about it. I'm praying for you! πŸ™

Feb 19, 2015 9:10 AM

I would seek a second and third opinion. Is the doc waiting on tests? Please don't panic and I know that is easier for us to say than to do. Wait for your test results and we are all praying.

Feb 19, 2015 10:44 AM

Only going for tests on the 23rd of April. I'll obviously go for even fourth opinions. I mean it is a death sentence and I have to be sure my life is going to end before I start planning my last wishes! :).

Feb 19, 2015 11:35 AM

TM I'm so sorry and really really hope your doctor is very wrong. Yikes! You are in my thoughts. Can you p,was to your doctor to schedule tests sooner? This is way too long to be in this level of stress. It's not humane to make you wait this long after s/he throws a crazy diagnosis like that at you. Even if you have to travel or he has to use a different testing facility I would push for it. Or have a family member or friend push for it if you aren't able to do this.

Feb 19, 2015 11:36 AM

Oops, meant "plead with your dr"

Feb 19, 2015 10:32 PM

Sandibeach, I'm calling today, trying to schedule it for next week! :). My parents are a total disaster, they're crying all the time. My dad only stops when I smile and talk about school and stuff, which kind of makes me feel that I have to be happy for them. Last night my mom said she's so angry at God, which I understand because I've been there. But I had to comfort her. I'm not happy, and I don't want to console anybody, I'm scared!!

Feb 19, 2015 10:37 PM

Oh my goodness, I can't even begin to understand how you must be feeling. I'm so so sorry. But you don't know for sure until you have the exam so think about that

Feb 20, 2015 2:05 AM

We are all praying for you and keep pushing to get in and get an answer until they do it! So many many times doctors mention "possibilities" and in most cases the possibilities are wrong, keep reminding yourself of that😘

Feb 20, 2015 2:36 AM

Thanks guys, you're a great support system!!β™‘

Feb 20, 2015 9:37 AM

Tm532, Its got to be very hard on you & your parents. Its ok to feel angry, even at God. God gets angry too. That's why its so important to tell Him how you feel, to keep from letting anger take control. I'm trusting God will help you, and that through this trial you gain strength and insight, and be an inspiration to others your age. Be angry, but don't let go of your faith & trust. Tell your parents I'm praying for them too. Hugs & prayers sent especially for you πŸ˜˜πŸ™

Feb 20, 2015 1:46 PM

I tend to read up on all the diagnoses people write about here. I don't understand why they would tell you five years? Everything I read says that death normally comes because of respiratory complications during attacks. This is a genuine wanting-to-understand question.

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