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Neuropathy

May 22, 2019 6:17 AM

Hi I am new to this app. I wanted to track any trends in my neuropathy. I have been diabetic since 2004 and had mild symptoms but in the last year the pain has intensified so much. I find the stabbing shooting pains can put me off balance when walking. They keep me awake at night. I have meds from gp but they just don’t touch it. I wondered if anyone had tips to deal with the pain.

May 22, 2019 7:06 AM

Hi lunar I’m Shore I have sharp pain sometime in my legs and back pinching me .
I use ice and heat Tylenol and as per cream to help me . I hope that your pain lessons sometime. Hug πŸŒˆπŸŒˆπŸ€—πŸ€—πŸ™πŸ™Shore

May 22, 2019 8:32 AM

Thank you I will try that 🌸

May 22, 2019 10:38 AM

Hi lunar your welcome let me know if it works Hug Shore πŸŒˆπŸŒˆπŸŒˆπŸ€—πŸ€—

May 22, 2019 7:01 PM

Hi Lunar, welcome to our community. I have suffered and still suffer from peripheral neuropathy caused by Diabetes as well as other factors. Gabapentin (Neurontin) is one med that can help you cope with your neuropathic pain. You also need to get a medicine that really lowers your inflammation in your body to. I take Plaquinal but their are other meds that help to. Like Weddingshore mentioned, Sometimes heat or ice helps but not continuous. Read some of the articles for the way others have dealt with it. Nerve pain is one of the worst kinds to deal with. I’m sorry for your pain. I have it in all four extremities but mostly to my legs and feet. ( last 10-12 years) You stated your having problems with balance. Are you using some kind of walking aid ie; cane, walker etc. safety is important since your off balance. Talk with your PC doctor and see if maybe a medicine change is needed. Do you go to a pain specialist/clinic or see a rheumatologist? You hadn’t mentioned it. They would help you a great deal. Wishing your gonna have a restful night. πŸ€—πŸ’•πŸ˜˜

May 22, 2019 7:27 PM

Hi pain warrior how are you ? Up date my ears are still getting better slowly . I can here more after I put ear drops in them..
I’m on amoxicillin also . I’m getting my new couch btw next Wednesday sometime))))) Hug πŸ€— have a nice one and I’ll be praying β€οΈβ€οΈβ€οΈπŸŒˆπŸŒˆπŸŒˆπŸ€—Shore you to sans and everyone ...

May 24, 2019 1:02 PM

Welcome lunar24371! I'm sorry to hear you are having problems from your neuropathy. I slowly developed neuropathies beginning in the 1990's, due to cervical spine, then later lumbar and thoracic issues. Around 2007-2008 the neuropathies moved into my legs and feet, & worsened all over, along with all over chronic pain in my muscles and joints. It was first chalked up to fibromyalgia (take gabapentin & use pain ointments), them later autoimmune Sjogrens (joints, take plaquenil), and even later vein reflux in both lower legs (now in my upper left thigh too; burning & stinging & swelling with fluid, wear compression hose) & POTS (causes dizziness, blood pressure and heart rate irregularities & balance issues; take BP meds), and later Vestibular Neuronitis (Vertigo already, both cause imbalance).

I've used a cane and rollator, as well as riding electric carts as needed for mobility and my balance issues. Beforehand I'd be walking and turn a corner and suddenly teeter off balance & fall, or ram sideways into the walls/furniture (bruises galore). After a few falls & a lot of unnecessary pain I swallowed my pride and began using a cane. Lol, I learned the hard way ..."pride comes before the fall!"

I have nights where my neuropathy in my legs is so bad I can't sleep, like last night. I'm having to learn to balance my activity and mobility periods throughout the day over the past 2 years (not much mobility the past 6 most due to a hip injury & recent surgery). The more I'm active the worse my night time neuropathy. And the later I wait to start taking additional gabapentin the worse it gets and the longer it takes to get it under control for functional ability.

I use gabapentin, baclofen muscle relaxers, and pain ointment, which sometimes helps. I've noticed elevating my legs higher than my hips sometimes helps at night. I also wear compression stockings that help reduce swelling and helps my blood pumps upwards; excess swelling exacerbates my neuropathy. Pacing my activity and rest periods helps me too. I don't know if these are things you've already tried, but hopefully you'll find ways that work for you very soon. Hugs love & prayers you have as pain free weekend as possible! πŸ™‚β€πŸ™πŸŒΌ

May 24, 2019 1:16 PM

Thank you for all the advice. I’m going back to my GP with these suggestions and see what can be done to help me

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