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Neurostimulator, Possible Lipomas & Vascular Complications

Nov 18, 2015 8:12 PM

Two appts today. I had another pelvic floor therapy today. We discussed several things. I've been taking Linzess for IBS-C since last year, and I've been having episodic total loss of my bowels since June. Tracking my bowel habits now for months the doc is convinced the Linzess is causing the diarrhea, which is hard to control with loss of control in the pelvic floor muscles. So she's taken me off the Linzess. Being this is my third series of pelvic floor therapy since 2012, we discussed a new procedure (if this doesn't last). They would implant a Neuro stimulator and connect it to the S1-2 nerves, which control the bladder & bowel function. She said because I keep having to return for more therapy I'm a good candidate for the stimulator. She said other patients are having great success with the pelvic muscles control. I'm just not sure how I feel about it, after hearing of some of y'all's bad experiences.

My second appt was with a general surgeon. My dermatologist sent me to her for possible lipomas. One right behind the knee is very painful at times. She has ordered an ultrasound to see if it's complicated by veins running right on top of it. I mentioned to her that my cardiologist found veinous reflux in the same leg, and he thought it was due to the pelvic congestion syndrome that was embolized in 2012. She confirmed that the PCS caused the veinous reflux in my calf, and said I could get more. She said she'd actually performed the same procedure on another woman and it was successful in reducing her pelvic and leg pain. She was very surprised to find out I'd gone through it also. She said if they hadn't used dye on a test they wouldn't have found it in her patient. I talked to my hubby and he now wants me to ask her to check and make sure I've not developed more, because of the pain I get when walking & the leg vein issues. I'm scared it's be opening a can of worms... What to do?🙏🌼

Nov 19, 2015 8:52 AM

Oh Flappsy!! One thing I can tell you about neurostimulators in the lowest areas work a bit better. My cousin Peter has one low like that and his works well. As far as the lipomas, I have had and still have several. I had surgery near my left flank and removed approximately 13 of them and I have a 15" scar because they were in kind of a row and so they cut them all out at once so I didn't have multiple incisions. I had about 18 on the other flank and they did the same thing and I have a 15" scar on that side. (That one got badly infected) I have others near my waist, one in my arm and a couple in my other arm. I wanted to use ice to numb the spot on my arm and cut out the lipoma there but my neighbor (a dentist) said they are always bigger and deeper than they appear and it would be a dumb thing to do. I agree but just wanted to get it out. I hope that you find what is comfortable for you and then be able to get the hello you need to control the bowel issue. Sending you big {{{Hugs}}} and prayers for success in whatever direction you decide to go. 💕🙏🏻🌻

Nov 19, 2015 11:58 AM

Thanks so much AlwayZ! I'm hoping this treatment will work s and I won't have to face that decision. But I'd take it over wearing diapers and having accidents any day. The doc says the lipomas feel small, but at times it feels like a long rope in my leg. My hubby was to have one the size of a quarter cut from his butt cheek, in the office... It was the size of a baseball! He had another one cut out of his left scapular area the size of a very large chicken breast! The doc placed it on a plastic plate with the scalpel beside it, and it was much bigger than the scalpel. It looked gross, like serving dinner! Lol my hubby sent the pic to a friend, just as they were about to eat dinner! Did i ever mention he has a very childish prankster in him? 🙏🌼

Nov 19, 2015 12:41 PM

LMAO!!! They are always bigger and deeper than they appear. I understand the rope thing because that's how they felt in my abdomen. I think what your hubby did is absolutely hysterical!!💕🙏🏻🌻😊

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