Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

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Jan 20, 2017 11:45 PM

Recently downloaded this to keep a diary of my pain and discomfort to see if it helps me get a bit more support from docs etc. They just want you in and out quick don't really seem to fully acknowledge my concerns I think because I suffer with mild to moderate anxiety and depression they think I'm convincing myself I'm ill! The daily struggles are real and is getting worse. Plantar fasciitis being the most recent addition which has hung around for 18months now and getting worse - not gradually better like they said. Be nice to chat to others experiencing similar conditions. They say my inflammation, aches, pains all symptoms is all down to my mental illness.

Jan 21, 2017 2:42 AM

Welcome kaleesi to the community. I have fibromyalgia, arthritis, diabetes etc. I am from Ohio USA. Everyone is from all over world so we are on different times. I can't sleep so I am on early. I'm sorry the doctors are blaming your pain on mental illness. I think that's terrible. I think you are right to track your pain on the app. I don't know which app you are on cat my pain or the pain Companion app. You can also search through older topics with the symbol at the top. I look forward to seeing you around.

Jan 21, 2017 3:29 AM

kaleesi, welcome to our family community. I am sorry to hear that the doctors are negating your symptoms and giving you the old "it's all in your head" shit.. you keep track of your symptoms in your pain diary and keep a journal of notes with meds you've tried, exercises you do and/or things you've tried to help your pain. All of these things are a tremendously useful tool in getting you to where you need to be with the doctor. In the meanwhile, settle in and kick your feet up, read some older threads and you'll find there's much info to be found. You'll also see there are many wonderful people here for support, info and laughs. Sending well wishes your way..💕🤗

Jan 21, 2017 3:32 AM

Thank you :)

Jan 21, 2017 5:04 AM

Hi Kaleesi welcome to the crazy family....we all need a little crazy in us to get thro the day sometimes!!!
We're from all over the world, I'm living in kent in England! So everyone comes on at different times.
We're all very supportive, friendly and non judgemental. We will be a shoulder to cry on, a listening ear when you need to vent and we'll celebrate your happy times and achievements with you.

I'm really sorry that your doctors are saying that, it's soo hard to convince them that it's not in your head, my doctor is only now considering fibro and/or CFS/ME after I keep going back and saying it everytime (I go back every 4 - 5 weeks). If you don't keep going back they'll think you're not as bad and they could even forget you.
Keep tracking and jurnalling then bring it in to your doctors appointments.

Sending you positive vibes and warm healing hugs xx

Jan 21, 2017 5:06 AM

Defo crazy wouldn't have it any other way ha! Thanks :)

Jan 21, 2017 5:52 AM

Welcome ... Lots of great people here!

I personally find my mental health issue are so interlinked with my chronic pain issues now you need to treat the whole person.

Sorry your Dr is being an ass.

Jan 21, 2017 6:38 AM

I do agree my emotional and psychological state affects my physiologically. One of my main current issues which I'm feeling under pressure from and I feel may make things worse is being required to work more hours by the DWP. I have 2 children and struggle to keep my own home in order I dread to think what state I would be in if I was doing 3-4 days per week...feet would be on fire I'd be good for nothing than crashing out on sofa whilst kids are eating their tea :(

Jan 21, 2017 8:13 AM

Kaleesi, Hi! Another GoT fan?
Definitely keep a journal and record everything. The barometer, cloud cover, moon phase (I know that sounds crazy but I have a friend who goes into a flare every full moon), what you've eaten. Don't forget to keep track of the same thing for good days!
Find another doctor! You need someone that is going to work with you in solving the mystery not pat you on your head and send you on your way. But I know from experience that you have to make them take you seriously. Keeping this journal is an excellent want to do that.

Jan 21, 2017 8:16 AM

Also, aches and pains and fatigue are very much related to depression. That doesn't make them any less real or painful. Our emotional and physical are so intertwined. Western medicine rarely recognizing it which is why you might benefit from holistic (whole being) approaches. Do you take depression meds? If so, how is it working and how long have you taken it?

Jan 21, 2017 1:31 PM

I would look into foods that cause inflammation and stay away from those foods to start with. I have reduced much of my pain by eliminating gluten, sugar, animal fat. I also added green juicing to add much needed nutrients.

Jan 21, 2017 10:23 PM

My mental health nurse said when I saw her last that people who have suffered great trauma, stress or have had to repress their emotions for a long period of time are more likely, in her experience, to get conditions like fibro, CFS, reflux, stomach ulcers, indigestion and other conditions relating to the mouth, esophagus, stomach and intestines as it's the body's way of dealing with all the repressed emotions or pain etc....

She believes this soo much that in her 15 + years of being a mental health nurse she has collected the data and is considering writing a book about. She's studying how to give people real time help in their daily lives at university and is talking to her tutor about writing the book (obviously she will keep everyone's details confidential)

Jan 22, 2017 3:22 AM

I take fluoxetine 40mg daily. Take magnesium, calcium vit D tablet. High strength omega 3 ( EPA & DHA are just short of a 1000mg each per 10ml in this)and have recently added multivitamin liquid for tiredness n fatigue. I brought myself down from 60mg fluoxetine 18m ago and off amitryptolene and naproxen. I wanted to be as natural as possible. (Struggled to lose weight mostly)I'm 5'3 and 92kg of which most is belly & boobs as I'm small framed need to lose 2-3 stone ideally I think. I got down to 20mg fluoxetine earlier last year then increased again before xmas due to breakdown/stressful few months with my oldest son who is 18. Has now moved out. I see anxiety and emotional struggles in my children and it rips at my heart :(

Jan 22, 2017 12:02 PM

Hi, nice to meet you. I was diagnosed with anxiety and fibromyalgia last week. It pisses me off about your doctor- I told my doctor of my symptoms he said sounds to me like textbook kfibromyalgia although he did order rheumatoid arthritis test came back negative. Doctors are supposed to be supportive I would recommend you search for a fibromyalgia doctor in your area.

Jan 22, 2017 4:57 PM

Hi there, I'm new too. Just downloaded this app as I wanted to talk about this illness and learn as much as l can about it and other people's experiences Ans wisdom. X

Jan 22, 2017 5:03 PM

I get you when you say you see anxiety in your son. I also see it in mine and feel this is something I have passed down to my older children. It breaks my heart now I recognise it for what it is. I just hope it's not to late now I'm in a calmer stage in my life to pass that on too. This illness affects those around you and it's not fair. Anxiety spread, be calm people. X

Jan 26, 2017 10:05 AM

Welcome to our community family Kaleesi! You should find new doctors! I had a total nervous breakdown in 1988. When I started having depression and anxiety again in 2013, following many physical medical problems that started in 2007, the psych doc I was seeing kept trying to say it was in my head and was constant changing meds. When she started talking of shock treatment I quit seeing her. The next year I returned to my psych doc from 1988 and he was shocked to see my physical condition. He filled out forms for my disability hearing. Yes the mind is a powerful thing, and yes there are known cases where some patients had physical ailments only in their minds. This community doesn't have a single one! Your pain is real. The right doctor will get the answers for you, but you may need to be patient. Like most here, my answers didn't come quickly. My fibro symptoms started in 2007 but wasn't officially dx until 2012. Since then I've been dx with hypothyroidism, sjogrens, PoTS, and a whole list of more problems. Sjogrens, fibromyalgia, and hypothyroidism share many common symptoms, including pain. I learned from others here that is common for one to develop multiple Autoimmune issues; like sjogrens & hypothyroidism. Like others I've reduced my carbs and sugars, and get exercise from stretching, hand weights, walking, and elliptical bike, which is good for fibromyalgia (exercise). I wanted to do yoga but can't. I take magnesium and vitamin D 3 & folate, all which have helped reduce my pain. Hang in there and read through old posts. Hugs love & prayers you find compassionate & caring doctors to work with you! 🙂💕🙏🌸

Jan 26, 2017 11:06 AM

Thank you :) Iv just had more blood tests. Head feels so fragile trying to relax as much as poss and avoiding as much socialising as possible at mo as finding it so draining. Or choosing my social activity very wisely and on a necessary basis lol. Defo thinking of changeing docs and as always, doing morecresearch myself. Fed up of being told my physical state is down to anxiety and panic - I don't even feel anxious all the bloody time and I generally crack on well with life! Xx

Jan 26, 2017 4:31 PM

Of course you're having depression & anxiety. We all are. And who wouldn't if they had to walk in our shoes 24-7-365 chronically ill! Some docs really shouldn't be doctors

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