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New and oddball

Mar 11, 2015 9:52 AM

Hello everyone :)

I'm 29-year-old small lady from Finland. I've been suffering from right-sided stabbing and electric-feeling joint-aches for the last 5 years. The doctors don't know anymore what to do, they don't seem to be able to diagnose me.

My health background is colourful: I was diagnosed with allergic asthma at the age of 10. The asthma-inhalers caused me Cushings, and a fierce one at that - I gained almost 10 kilos in 3 months and a life-lasting stretch-marks almost everywhere on my soft-tissues. It still remains a mystery why my body reacted that way to inhalable cortisones. When I was 17 I got into a horrid vomiting, resulting me to find myself at ER after a week of vomiting. Diagnosed me with primary Addison's. Been on hyrdocortisone and saltcorticoids ever since.

When I turned 24 I was working a job with heavy chores and lifting, I had a good overall health and I went by bike to work (18km one way).
One weekend morning during summer I woke up and when trying to get up I had a splitting pain on my elbow joint. I couldn't stretch my arm open from a 45 degrees angle. It was like that for the upcoming 3 weeks. because of summertime the lines for doctor's were long, and I got to xray my elbow only after 2Β½ weeks from the start of pain. Little by little the pain started to subside and I could move my arm around a bit. Still, I had to quit my job because of the longened pains, and I tried another job, this time a deskjob. But I had only been at the new place for a week and my knee had the same type of sudden splitting and electric pain. I had to go on a sickleave. After 2 months of sickleave I was kicked out.

After that I've been mainly taken care by my personal doctor concerning my basic diseases and these pains. We've managed to count out many diagnoses, but still we're all questionmarks about what this is that I'm suffering from. All tests so far, let them be bloodtests, physiological tests, neurological tests, xrays, MRIs, neural pathway tests.. nothing out of ordinary has been found.
Along the way I have been diagnosed with lightly loose limbs and I was found to have developed osteopenia. I've been tried on many different medications, and atm I'm on gabapentin (3x600mg/day), for that started to work a bit over a year ago. I was fully without any pains for almost a year, and last september the pains started again out from nowhere.

If there might be anyone out there who might be having a clue to what this -might- be or might be suffering from the same kind of oddball symptoms I'd be very willing to share thoughts! :)

Mar 11, 2015 1:28 PM

Spiku, first of all,welcome to our community. You certainly have been through a gammit of issues in your young life. Has your doctor given thought to you having Fibromyalgia? Also, perhaps after these years, your body is having negative effects to the cortizone based steroids you're on. I'm not familiar with Addison's so I cannot speak to that. I pray that some of the other members would have some other ideas. I wish you the very best of luck. Always remember, there are many wonderful people here that are willing to listen and try to help you. You'll be in my thoughts and prayers. πŸŒ»πŸ™πŸŒΊ

Mar 11, 2015 3:39 PM

Welcome Spiku. I'm sorry I don't have anything more to offer, other than the fibromyalgia AlwayZ said. I have asthma too, since I was 40 and I am 53 now. I hope others can help. Good luck & God bless!

Mar 11, 2015 8:29 PM

Have they looked at Ehlers Danlos Syndrome? Hypermobilty is the most common type, fibromyalgia is a common co-illness, and many have odd reactions to medicines.

Mar 11, 2015 10:58 PM

Spikuwelcome to our group, there is a lot of great people here who will listen, and help any way they can. I don't know anything about Addison, but like Alwayz and Flappsy it might be Fibro. Hope you can get some answers soon. Will keep you in thoughts and prayers.

Mar 12, 2015 3:21 AM

Thank you all for the warm welcome :)

Many diagnoses have been already ranked out, ones of which fibro was the first ones. They say that some of my symptoms sound a bit like it but not even half of the markers are filled to fit the discription of fibro. Ehlers Danlos has been looked into, and counted out. I do have a mild hypermobility, more on my right side than my left, but that alone could not cause such severe pains, say the doctors that have seen me. No genetestings have been made, as far as I know.

I have MS in my family, my mothers mother and mothers uncle (siblings) both died of MS. My dad has type 2 diabetes. My mothers sister was diagnosed with heavy hyperthyroidism around the same time I was diagnosed with Addison's, and her thyroid was radiated to smithereens. So the autoimmune is heavy in my family-lines. Maybe it has something to do with that. Nobody seems to know.

Keeping fingers crossed to the doctors finding something, and thank you all for your support :)
Hope you all painless days for this upcoming spring - here in Finland it's sunny and warm today, and the daffodils are already starting to raise their heads from the soil :)

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