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Sep 21, 2015 1:34 AM

Hi. I'm "new" to not only this app but to what seems to be a whole different language to me. I recently was diagnosed with fibromyalgia. Was it the right diagnosis, I don't know but researching it has made sense to pains I've always lived with and thought were normal . Right now I don't have time or energy to worry about a label. I know it is very important to have a proper diagnosis but I can't see a specialist til October. I need real advice and suggestions of how to get out of bed and back to work. The pain started in my right lower back which I thought for over a month was normal and I dealt with it. Then in under 3 weeks I lost between 10 and 15 pounds. Last Saturday I woke up and the pain was so bad I still cannot walk normal. I don't know how to gague what type of pain you have to work through and when to take a break. I've moved minimally since then. The pain is there no matter what I do, how do I live "normally" with it. Thanks for reading and any advice you can offer !

Sep 21, 2015 10:20 AM

I wish there was an easy answer to give you... but there isn't. They did rule out any kidney stuff, right? Because severe weight-loss like that and depending on what part of your lower back is hurting, I would be worried about organs. If they have tested all the organs, and they still think it's fibro, then the next part is the hard part. You are the only one who can gauge what you can work thru and what you can't. It takes a LOT of practice, patience, and trial and error. Those ice compresses and heating pads (or rice bags you can heat in the microwave), those are going to become your best friends. Don't let the fear of pain keep you from moving at all... but also, do not push yourself to the breaking point over and over bc it is incredibly hard to stabilize once you do that. I don't know what you do for a job or if you're a homemaker like me, but take breaks frequently until you figure out how far you can go. Like I said, ice and heat, also putting your feet up, as much as you can during the day. On bad days (but ones where I can still get out of bed) It's like 10-15 mins of activity to 45 mins of icing different parts of my body. That may sound awful for a person who used to be fully healthy, but believe me, slow and steady does really win the race. If you try to push real hard- it will damage you longer. I hope this isn't depressing. I'm trying to give you practical advice bc it took me so long to figure it out myself. Best of luck to you!

Sep 21, 2015 9:56 PM

Just keep swimming welcome to our family. Make you some rice packs I use large washcloths fill with cheap rice, sew up three sides pour in rice don't fill too full you want to kind of drape it on body parts, then sew up last side. You can either throw in microwave or freezer. Then use as needed.

Sep 22, 2015 10:58 AM

Justkeepswimming, I am sorry that you are plagued with this pain. You should start by keeping a thorough pain diary. Make notes when the pain is worse or better, what activities make it worse and what remedies make it better. I would definitely say that gentle stretching, heating pads, TENS Units, and some supplements like Magnesium with Vitamin D, turmeric, ginger, anti inflammatory meds if they don't bother your tummy. I would also seek out a reputable rheumatologist, neurologist, physio doc, and pain management. Make certain they ALL have your info and that they work as a team. You need to be your own advocate. Read as much as you can from reputable websites such as The Mayo Clinic. Be well versed in what the dr has diagnosed you with and write down questions you have and don't be afraid to ask. If you think the doctor is wrong, ask how he/she arrived at the diagnosis they have given you. If they are rude or dismissive, find another doctor. Never let yourself be put off by a doctor who can't be bothered. I wish you all the best in your search and healing. I hope that you find the support and answers you are looking for here in our community. There are many wonderful people here and it is a non judgement zone. It doesn't matter if you rant, cry, complain, laugh, we are here for you. I'll keep you in my prayers. 🌻🙏🏻

Sep 25, 2015 1:53 PM

Welcome Justkeepswimming. Fibromyalgia is something you will need to follow, like AlwayZ said, by keeping a journal of symptoms, treatments, and triggers. And each of us has a different tolerance level, of how much we do before we must take a break. Read up and learn what you can, like www.fmnetnews.com, and try vitamins and supplements. I wish you well in figuring out how to live despite the pain. You'll be in my prayers. 🙏🌼

Sep 25, 2015 2:59 PM

I felt like I was reading my info. Exactly how I feel. Dr thinks fibro doing MRI Wed. Meantime gave me gabapentin 900 mg day and lorcet. My pain has reversed tremendously and I haven't taken the lorcet. I'm scared it's only temporary but at this point I'll take whatever. The relief is overwhelming. Have you tried gab or lyrica

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