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New and undiagnosed

May 31, 2016 1:43 PM

My name is Sharon. I have had tender spots and muscle and joint pain for a few years... I have had and been treated for the following over the last 15 years :
Carpal Tunnel syndratorvastatinome
Gastric Bypass
Iron Deficiency
Kidney Stones
Heart Attack
I was recently given prednisone for a tendonitis flare... it resolved my pain... for a few days I felt 20 years younger... able bodied and free of depression. It was amazing... I went back to the doctor to tell him that I didn't want to go back to the painful way of life... I couldn't live that way any more. So he tested me for the usual suspects, RA, Fibro, LUPUS, etc. The tests all came back negative... I am not sure what comes next... I am tired... very tired. Thanks for letting me share.

May 31, 2016 2:41 PM

Welcome to our pain community family SharonLynn! I'm sorry you've gone through so much and still no diagnosis.

I completely understand the frustration as my pain started in 2007 & most of it wasn't dx until 2012 or later. I've had disc issues since the 90's all down my spine. Since surgery in 2010 I've not been able to return to work & never will. I have been dx with so many new dx it sometimes makes my head spin. I had hiatal hernia repair & fundoplication last Thursday. But the chronic achy pain with neuropathies comes from there issues; fibromyalgia (2012), sjogrens & hypothyroidism (2015). They all share multiple common symptoms. If I hadn't pushed my doctor's, and even gone to other doctors for second opinions I would still be suffering undiagnosed & untreated. Please keep a list of symptoms and consider getting a second opinion. There are many diseases that share symptoms. Sending hugs & prayers! 🙂💕🙏🌼

May 31, 2016 9:56 PM

Me too, it's so frustrating and can really bring one down. I am still mostly undiagnosed since 2001 except for CRPS, now residual?? Some sort of rheumatoid, connective tissue or musculoskeletal disorder, or side effect from antibiotic. Been to some "top doctors". Every doctor has a different diagnosis and treatment plan. Surgery is no joke, especially for CRPS, but the surgeons don't seem to know about that. I am going to try an osteopath next, when I get the emotional and physical energy. Take care!

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