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Apr 08, 2018 6:22 AM

Hi. I have just joined. I actually haven’t received a diagnosis yet but my GP mentioned it could be Fibro. I have just had a whole raft of blood tests to see if my symptoms are caused by thyroid, auto immune, arthritis etc etc and all came back negative. Which is good. But doesn’t explain my fatigue and joint pain. Sometimes I’m fine and other times so exhausted I can’t function and in so much pain. In the past Drs have tested for stuff and then gone ‘it’s all ok’ and that is that. So this GP is actually at least willing to consider something that isn’t detectable by blood tests! I have had depression and anxiety for years and am on medication for it (Sertraline and Pregablin) and have regular psychiatric appointments. She is also prescribing Chlorpromazine) I also have focal temporal epilepsy which I’m on Lamotrogine for. So feel like I rattle! I have had the joint pain flare ups since I was a teenager and my fatigue seems to have gotten so much worse the last few months. I just wondered if I could get some thoughts on whether you think it might be fibromyalgia and how to go about getting a diagnosis and being taken seriously as I know it isn’t always by medical professionals. Thank you for reading this :)

Apr 08, 2018 7:23 AM

Hi I had much the same problem, eventually I was referred to a rheumatologist and eventually received a fibromyalgia diagnosis. Push for a referral to a rheumatologist, or if you have the funds find a private rheumatologist which can be done online. Good luck Hayley 🌈

Apr 08, 2018 8:15 AM

It sounds like you may have Fibromyalgia. To get a diagnosis of Fibromyalgia you need a referral to a rheumatologist. Interestingly, pregabalin is one of the medications that is used in Fibromyalgia.

Apr 08, 2018 8:43 AM

Thank you both. That’s useful to know about a referral to a rheumatologist. The Dr that was actually helpful is so hard to get an appointment with (now I know why!) so have booked but can’t get in until May! That’s interesting about Pregablin too! I’m just so fed up of feeling crap and not being able to do what I want and need to. I think if I at least had some sort of diagnosis I might stop beating myself up so much. I know I need to adapt my life to accommodate all of the stuff I have health wise but it’s hard isn’t it?

Apr 08, 2018 9:29 AM

It is very hard to adapt to a new life with chronic pain. It's almost impossible to come to terms with the fact that the pain may never go away.

Medications approved by the FDA to treat fibromyalgia are Lyrica (Pregabalin), Cymbalta (Duloxetine), and Savella (Milnacipran). Pregabalin is the most effective for fibromyalgia because it works by interrupting the constant misfiring nerve signals in the central nervous system.

Many people with fibromyalgia take other medications to treat various symptoms of the condition.
Gabapentin (Neurontin) is commonly prescribed in Fibromyalgia because it helps with pain and sleep. Amitriptyline (Elavil) may help with the pain, sleep, fatigue, and depression aspects of fibromyalgia. Paroxetine (Paxil) may help with pain, sleep, and depression.

Apr 08, 2018 9:58 AM

It's unfortunately still hard after diagnosis. There are things you can do to help though - medication and holistic. Best advice I can give you is read up, inform yourself and give anything (safe) a try

Apr 08, 2018 4:33 PM

Thank you. I appreciate you taking the time to reply :) It’s so true it will still be hard if I get a diagnosis. I think I just hope it’ll help me to not feel like I’m imagining things. My epilepsy involves slightly bizarre ‘seizures’ that most people, including my Dr, don’t recognise as seizures. Getting he diagnosis from a neurologist was actually a huge relief. I now have medication to help and know I’m not making it up! Same with my mental health stuff. It still sucks and I still struggle but at least I know I do have medical reasons for how I feel and why I struggle. I wish there was a magic wand for all of this!

Apr 09, 2018 10:18 PM

First of all welcome. And second before i got a diagnosis of fibro i felt crazy and like there will never be anything to help me. Its hard realizing it cannot be cured, but at least you will have an answer. The most relief i would say is being able to have an answer when people ask why you are in pain. I used to just say i have bad "insert body part here" because i had no answer. I take gabapentin because my insurance wpnt cover enough of the lyrica for me to afford it and it works well for me. I also take meloxicam for inflammation. I hope you get an answer even if it is fibro.

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