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New appointment we were putting our hopes in... comes out with nothing

Aug 09, 2016 3:38 PM

I am so frustrated right now! My doctors were all sure I had POTS. We did testing and it came back with... nothing.
Now they have no idea what is wrong but they know its something.
Some nights, my heart races so fast I can't sleep.
I'm dizzy and have neuropathy almost every day.
I am constantly craving salt.
We are counting on this appointment... my symptoms are out if control and more doctors,more tests, no answers!
Every one of my f2f disorders (GERD,immunodeficiency and MCAS)are acting up
Argh! I'm so frustrated!
I'm so sick I don't know if I will get to school next year..after we worked so hard to find one that could accommodate me.
Thank goodness for hugs from the best little sister in the universe.

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