Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

New appointment we were putting our hopes in... comes out with nothing

Aug 09, 2016 3:38 PM

I am so frustrated right now! My doctors were all sure I had POTS. We did testing and it came back with... nothing.
Now they have no idea what is wrong but they know its something.
Some nights, my heart races so fast I can't sleep.
I'm dizzy and have neuropathy almost every day.
I am constantly craving salt.
We are counting on this appointment... my symptoms are out if control and more doctors,more tests, no answers!
Every one of my f2f disorders (GERD,immunodeficiency and MCAS)are acting up
Argh! I'm so frustrated!
I'm so sick I don't know if I will get to school next year..after we worked so hard to find one that could accommodate me.
Thank goodness for hugs from the best little sister in the universe.

Support needed!

Aug 13, 2016 3:44 AM

I'm so sorry to hear you have no answers! I know how frustrating that can be. Just keep tracking all your symptoms every day. And see a specialist at a hospital like Mayo or Scottish Rites, or St Joseph's if you can. My symptoms have taken years to find out I have multiple conditions going on. Just lean on us and we'll help you through. Sending you hugs love & prayers that a doctor will begin to figure this out for you!! 🙂💕🙏🌸

Aug 13, 2016 5:27 AM

Hello Hope ⚘
I dont have any answers for u hunni... but i do have a face like a goats ass! 🐐 pictured above... just for u chick 🐔 to make u smile 🐴 I'm so happy u have ur sister 👭 to support u... so just breathe angel 😇 we are all here for u. 😙Im sure someone will catch this post and be able to advise u on which way to turn 🤗

Aug 13, 2016 5:42 AM

Your face does not look like a goats ass!!! OMG, I had to get to the Loo after that one.. LOL!!!😂😂

Ready to start relieving your pain?

Join Community