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New diagnosis....

Mar 02, 2016 10:31 PM

So I just read the notes from myndr visit today and he has me diagnosed with fibromayalgia and Chronic pain syndrome. My thinking f is why did he not say the new diagnosis in the visit. As I read the topic of symptoms I can see how he did address it but I thought he was still talking bout the fibromayalgia.
So now I have the official diagnosis since now I have pain in my face. Which now mean my whole body is affected. So now I concerned as to what is next. I know and have seen the progression of this pain illness is cprs next or what?

Mar 02, 2016 10:40 PM

I have Fibromayalga, but I also have Behcets, GERD, RA, POTS. Fibromayalga causes me alot of problems!! From muscle spasms every night, painful showers, skin hurting, etc... but I take Lyrica 25mg 2x a day, I take 1 in the morning and 2 at night. that's the only med I take for that illness, but I take 9+ others meds.. also the more I try to move helps somewhat and heating pads! I hoped I helped you out some! I hope you have an amazing doctor like mine that will try anything he can to help! best of luck to you!

Mar 02, 2016 10:44 PM

Thank you..I'm new to all this but learning everyday. What is pots? I have POS..polycystic overian syndrome..

Mar 02, 2016 10:49 PM

POTS (Postural orthostatic tachycardia syndrome)anytime you stand, sit, lay down, get up to fast, etc. your heart beats to fast, causing dizziness, nausea, fatigue, passing out, anxiety) my heart goes up 30+ bpm everytime I do anything!

and you're welcome! I've been diagnosed for almost 2 1/2 - 3 years. and I'm still learning new stuff every day!

Mar 02, 2016 11:21 PM

Interesting.. I have fast rate also
.it'd continual ...Ive been officially diagnosed in Sept. Last yr but I've been down with server symptoms and surgeries for over a year

Mar 02, 2016 11:23 PM

I'm sorry! I've had a few surgeries, and bad symptoms so I know how that feels!! I hope they can figure something out to help with your new diagnoses! !!!

Mar 03, 2016 1:19 AM

Its pretty typical for doctors to not explicately tell you when they have added a new diagnosis to your chart... Good ones will, but even some good ones are forgetful. The best way to find out is to request copies of your chart, check your online notes, and directly ask "has my diagnosis changed?" At the end of an appointment. What exactly is the differrence between fibro and chronic pain Syndrome?

Mar 03, 2016 2:27 AM

Shyia..there is not much difference between the two there r a lot of overlap. But mostly chronic pain syndrome includes or involve pain in the whole body including the face ..

Mar 03, 2016 6:33 AM

Hopefully you don't get CRPS! It's not something that comes with fibro or after it, it just happens. No one can really tell you what triggers CRPS but there are a lot of people who guess. I can tell you that most likely you won't get it just based off statistics, but you could have bad luck like me and end up with it! I'm glad you read your chart so you can be more informed on what's going on in your body. I hope your doctor gives you a great treatment plan to help your symptoms!

Mar 03, 2016 9:02 AM

I've worked in Nursing homes and also the Hospital and during those times I use to feel so badly for those with so many different diagnosis. I use to wonder how could they have any type of quality of life with so many things wrong with them. I would look at their medication list and there would be so many medications I would wonder how they could stomach them all. Now I am one of those people. My diagnosis and medication list are in competition. Meds are winning out right now. How life changes in a short period of time.

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