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New diagnosis and pacing advice

Aug 26, 2017 5:09 AM

Hi i have dust had a diagnosis of fibromyalgia and I'm really struggling with left side pain mainly does anyone have any advice on how pacing works?

Aug 26, 2017 5:29 AM

Hi sorry to hear you have fibro, I have had fibro for around four years now, pacing is basically where you don't do too much in a day so that your not ill the next day, Also spreading out what you want to do in a day so say you want to do three things today you would do the first have a rest do the second have a rest and if your well enough do the third. I hope I explained that well 😂 if you ever want a chat or have any questions feel free to message me 💕

Aug 26, 2017 7:39 AM

What I found that helps me is only scheduling one or two outside activities (doctor, grocery shopping, family gathering, lunch with a friend, etc) a week. That reduces my anxiety and decreases stress. If I’m doing an acitivity like housework, I only work on it for 5-15 minutes (depending on how I feel) and then I rest for twice that long. So if I do dishes for ten minutes, I rest for 20. If I feel ok, I go back to it. If I’m still tired, I continue to rest. I don’t push myself like crazy because it makes things worse. So listen to your body and respect it. I also make a list of about one to three really important things I need or want to accomplish for the day. I’m happy to get one done. Anything not on the list can wait until I have more energy. I have also learned to ask for and accept help.

Learn to say no without explanation or excuse. If you’re invited to an event and you feel bad, don’t go and don’t feel guilty about it. The emotional stress is enough to make you feel worse. If you’re invited to event in the distant future, tell the person you need to check your calendar and will get back to them. Don’t let anyone force or guilt you into things you are not feeling up to doing.

It gets easier as you go along. We all support each other. You can direct message me if you want to chat more. 🤗

Aug 26, 2017 9:31 AM

Thanks guys that's really helpful and totally makes sense so today I went shopping out to get lunch then a food shopping all with two difficult children in tow. Now I feel sick and am in agony and soooo grumpy. Think I'm going to have to come to terms with the pacing it's just really difficult when the kids need entertaining constantly xxx

Aug 26, 2017 9:36 AM

That is very difficult with kids. We just watched our 1 & 3 year old grandkids for two days and nights. TOTALLY exhausted and hurting. I feel for you. Try to pace as best you can. Will be praying for you.

Aug 26, 2017 9:38 AM

Don’t worry, we have all over exerted ourselves one time or another. It’s hard not to over extend on days you feel okay. Just get extra rest for the next few days. I’m hoping you feel better fast. 😀

Aug 26, 2017 9:40 AM

Pacing is also known as energy conservation, in case you hear that term.

Sep 02, 2017 3:36 PM

Amazing thank you for this xxx

Sep 02, 2017 5:40 PM

I don't have this condition but I have been told about pacing for my joint pain. They say take a break when you start to feel more pain and re start an a little while when you can. instead of pushing through the pain and not being then able to do anymore for days and days because you're still in loads of pain. Hopefully this helps they usually show me with a diagram so I didn't really know how to word this

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