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New Friendships

Feb 20, 2017 11:13 AM

Hi all I'm new here and looking forward to making friends!!!!

Feb 20, 2017 11:50 AM

Hi TJMARIE5215, welcome to the community. We're like one big family. We come from all over the world. I am from Ohio USA. I have fibro among other things. Could you tell us about yourself?

Feb 20, 2017 12:12 PM

I live in McDonough, GA and lived most of my life in South Florida. I am married to my wonderful husband James and we don't have any children at this time, just our two cats. Zieke is 15 and Snookie is 10. They are both boy cats.
My diagnosis is Congenital Spastic Cerebral Palsy Diplegia. All that whole sentence means is I have cerebral palsy that affects 2 limbs, my legs, and I have spasms. This was at birth. I was diagnosed at 9 months old and since the age of 3 I have had 10 Orthopedic surgeries and one eye surgery. I am ambulatory; however, if we are going far, as in my husband is walking, I will go in the wheelchair because he can walk faster than I can and it saves a lot of time.

Feb 20, 2017 4:48 PM

Welcome to the family!! We are a welcoming bunch. I live in England with my husband and our 6 children. Also have 2 fur baby cats. I have Fibromyalgia along with slipped dicscs not sure how many any more. Have had one cortisone injection and am yet to feel its affects. I use a walking stick on a daily basis and need aids up stairs. Always about tho I dont post much must get better at that lol. Welcome aboard xxx

Feb 20, 2017 7:01 PM

Hi, TJMarie and MysticMum! I'm fairly new as well and jumped in with both feet! Hopefully not in my mouth! I'm from Gresham, Oregon, USA (near Portland on the West Coast by the Columbia River)
I am disabled with chronic daily migraines and cluster headaches, fibro, chronic fatigue, syncope, Hashimoto's, uveitis, degenerative disc disease and arthritis. My diabetes is under control again! But not before I got neuropathy. I've had carpal tunnel for over 35 years, but now they can't tell which is which, so I think they wing it. 😳

Feb 21, 2017 1:47 AM

Hi TJMarie and Sprowett, welcome to the crazy family πŸ˜‰ sometimes you just need a little craziness to get you thro the day!!! πŸ˜‚
Everyone here is from across the world so you may find that you won't always get a reply immediately....it all depends on people's lives and their time zone. I struggle with sleep soo you may find me posting at all sorts of times!!!

I battle trigeminal neuralgia, anxiety, depression and PTSD. I'm due to see rhaumatology next month to try and find out why I'm suffering from soo much other pain and almost why my fatigue is soo hogh as well. My imflammation markers are high at as well but RA has com back negative so we'll see what the rhaumatologist says.

Feb 21, 2017 8:12 AM

Hi TJMarie, I'm fairly new as well. I'm on all different hours since I have problems with sleep. I fight with CRPS and PTSD since I was 6 years ago. I've had osteoporosis and osteoarthritis for about 15 years now. I live in Morehead City NC with my husband and 2 children and soon to be grandchild. Of course like everyone else I have fur babies. 2 cats and 2 dogs. Oh! I can't forget my granddog . This is a awesome community, full of caring and supportive friends.

Feb 21, 2017 8:44 AM

What are you taking for neuropathy? I met a doctor who recommended an over the counter pill for this.. If you are interested I will look up its pharacy info.

Feb 21, 2017 2:56 PM

Hi there , I am new here joined today .I have sarcoidosis of lymph nodes and lungs. They also think I have fibromyalgia and I suffer with migraines.Also have Rheumatoid arthritis in hands and feet.d I have recently experienced one of the worse flare ups since having this condition and am struggling with the pain and discomfort it's been two months now. I do work had to go part time hours but finding that a struggle. I come home have a bowl of soup and sleep between 2-4 hours . I find constant pain and fatigue really hard. I am naturally a social butterfly and I have recently had to stop all social activities. Nice to meet you all 😊

Feb 21, 2017 2:57 PM

P.S I'm from the UK 😊

Feb 21, 2017 3:40 PM

Hi Dizzzi, welcome to the community. Sorry for your pain. Does heat help you? Soak in warm water with 1-2 cups of epsom salt. Heating pad or blanket. Some people take magnesium, vitamin D, Vitamin B complex, fish oil.

Feb 21, 2017 4:02 PM

Thank you AnimalLover heat does help a lot , unfortunately I can't get in and out of a bath at moment ,just about bear a shower . But when I improve I will take you up on that tip. I did think about getting an electric blanket has anyone here used one or thinking about it? . The only thing is sometimes I have night sweats. But most of the time I just feel so cold all the time πŸ˜•

Feb 25, 2017 6:25 AM

I'm interested in being penpals with someone; anyone else interested in that?????

Feb 25, 2017 6:48 PM

Welcome to our community family, TJMarie & Sprowett & Hummingbird! I've been in the community for around 3 years and it's been a blessing. When I stumbled across the app (CMP version) I was really feeling lost and alone. I didn't even know or understand half of what I was dealing with. I was shocked & saddened to find out there were so many others "out there" who understood all too well and became my support system. I've learned a lot from others on here, and shared a lot too. It's become a great community to be comfortable being ourself in, no judgement or criticism if we don't feel well. I hope you find suggestions by others helpful. We love to laugh too. Hugs love & prayers you find the best coping methods!

TJMarie, check out the post about "Snail Mail - Penpals?" πŸ™‚πŸ’•πŸ™πŸŒΈ

Feb 26, 2017 6:58 PM

Mimikay, if you were asking me what I was taking for neuropathy, the doctors have me on Morphine, Lyrica and Hydrocodine. I also have to take muscle relaxer for all the spasms I have.
If you or a doctor you know , knows of something over the couter I could take instead that would be awesome.

Feb 27, 2017 3:10 PM

Hi, Dizzy, Hummingbird, everyone πŸ€“
Dizzy, if you are dealing with migraine try to stay away from anything with opioids in it more than 8 times per month or so. And the only NSAID that they've cleared NOT to bring on rebound migraines with continued use is naproxen (aleve). There is also a lymph massage point for a 30 second massage my PT showed me that's on the rt. side mid abdomen? You might try googling lymph pressure points, or acupressure points or some such and see what you come up with? Some times some massage at an acupressure site, or some essential oil can help... I kid you not. I'm impressed that you can still work so admire your strength.
Blessed be...

Feb 27, 2017 5:38 PM

I'd love to be pen pals with someone

Feb 27, 2017 5:52 PM

Sprowett many thanks for your suggestions and I will certainly check those out. I'm allergic to naproxen so will stay away from those. Well my employer told me today she will on longer except me working half days even though I have a doctor's note.On the one hand saying she can see how ill I am and that she has concerns for me and my health then the other saying I need to return to full time duties and I really don't know how I will cope with that. I will try it and take it from there .

Feb 27, 2017 7:18 PM

Blabla look up the topic pen pal with Mimikay. She'll get you on the pen pal list.

Feb 27, 2017 7:22 PM

Ill be a penpal😊. Mimikay has my email addressπŸ™„

Feb 27, 2017 7:29 PM

You have to tell her your real name and street address.

Feb 27, 2017 10:34 PM

Dizzzi I would strongly advise you to see the citizens advice before you agree to going back full time as you have a Dr's note stating that you need special arrangements/measures for working. Your health is important so don't just agree to going back full time without first seeking legal advice

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