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New Here - Palindromic Rheumatism

Jul 05, 2016 6:51 PM

Young, Diagnosed & Learning. Anyone Else?

Jul 05, 2016 7:01 PM

I had to google that dx! Can you tell us more? If you don't want to that is ok. How long was the period of first symptom to your dx? I do not have this, but I do want to welcome you!

Jul 05, 2016 7:27 PM

Thank you :) It's quite an unknown dx. Docs are still learning about it too!
Basically there are no specific triggers to a flare, it is completely random with no rhyme or reason. It started in my knees, they looked like they had 'gained fluid' they were double the size. Now my ankles, feet, wrists, hands do the same, alongside the stiffness associated with rheumatoid arthritis. I've always always had wrist pain but was only diagnosed last year. I'm taking Salfasalzine? I'm in Scotland & think medication is different to a lot xx

Jul 06, 2016 6:22 PM

Welcome to our community family WifeC1992! I'm not young anymore. At 54 I feel 70-80...lol I read about this dx because I've never heard of it. I was dx with Fibro 2012, then hypothyroidism & sjogrens in 2015. Since the fall of 2014 I'm getting random swollen painful joints, mostly fingers, hands, and elbows. Occasionally my knees swell, and one had to be drained but that was several years ago. My knees are OA & chondromalacia patella. Coincidentally my Ortho doc saw two fingers swollen & said he thinks it's something the rheumy doc should see. But it never lasts long enough to be examined by my rheumy doc; she stays booked up for months. I hope you can find useful tips here from others. Hugs & prayers as you learn to cope with this better! 🙂💕🙏🌼

Jul 06, 2016 7:46 PM

I hope the medication helps you. It may be a while before you know that if docs don't have a clue. This app has caring helpful people who share their pain & joy to aid each other. I have you in my thoughts & wish you well.

Jul 07, 2016 4:22 PM

Thank you both! It took a while to be diagnosed because at my appointments I wasn't having a flare. Although my hands tend to be very swollen most of the time so the day after she was able to see the inflammation through an ultrasound on my hands, on the knuckles, maybe they could try that? Xx

Jul 21, 2016 7:42 AM

Hi,
I was finally diagnosed with palindromic rheumatism about a year ago. Unfortunately I have reacted to the first two types of medications and am very slowly trying a third.
I eventually was diagnosed by a rheumatologist through descriptions of symptoms, photos showing swollen and red flares especially of hands and fingers as everytime I had an appointment I didn't seem to be flaring.
Not a lot of rheumatologist or GP's are aware of the condition which makes diagnoses and treatment difficult.

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