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CatchMyPain Community and Pain Diary App to manage chronic illness

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Aug 30, 2015 7:35 PM

Just joined yesterday. Have had fibromyalgia for 44 years, since I was 10 & it dint even have a name then. Have been in absolutely awful pain, all over my whole body, for years with a really bad flare-up the last 10 days or so. See my dr on Wed & want to ask him about taking me off the Gabipentin & trying Lyrica instead. If that doesn't work I'll need a pain clinic, again. Don't want to go back on narcotics but tired of crying in pain all day & my dr doesn't know what to do with me any more. (Sigh).... I Hope he'll switch me to Lyrica & it helps. :(

Aug 30, 2015 8:54 PM

Welcome Annlizardlover. I hope you find as much support as I have. I've only had fibro seven years, but I've had chronic spine pain for thirty years. Now I have Sjogrens and hypothyroidism along with other issues. I took my Tramadol last night, and the whole night I itched like crazy. I already have an allergy list of the charts so if I'm developing allergies to it I'm up the creek without a paddle. I've not used lyrica, but they gave me gabapentin. Only I had to stop it until they figure out the cause of my tremors. I hope you can get the lyrica. They're running out of meds to give me. Hugs and a prayer you will get what you need! 🙏🌼

Aug 31, 2015 2:08 AM

Thank you! I've got small, benign (thank God) tumors on my thyroid gland & have another yearly biopsy coming up in Nov. I also have absolutely awful cluster headaches that sometimes last 4-6 months at a time & take oxygen & sumatriptan for that. Arthritis all over. And my right shoulder was shattered 15 yrs ago in a fall -- had a "failed" surgery last Nov & need reverse shoulder replacement in 10-12 yrs. They say, get a pain clinic till then! I can only lift my arm about 3-4" from my side & the biceps is torn in half & frayed. They said they tried to fix that but it wouldn't hold sutures! Im just so tired of my pain getting so much worse so quickly & idk what to even say to my dr on Wed. Im his "problem patient" & he "doesn't know what to do with me any more". They don't want me back in a pain clinic -- it's like every dr i see just doesn't care or understand how severe this has gotten. Im extremely depressed & sometimes feel like idw to deal with this crap any more. That's what led me to a site like this because no one gets it.

Aug 31, 2015 7:34 PM

I totally understand. My docs kept passing me from one to another, and finally one sent me to a caring neurologist. I've now been referred to Mayo clinic's neurologist. I'm hoping their tests late September will show what's causing my tremors, imbalance, dizziness when I move, and mental decline. I've changed doctors several times when a doc gives up on me or their answers seem more a guess than what fits my symptoms. If you aren't comfortable with a doc maybe you should get a second or third opinion. I travel to the next stage, and many here travel away for help. I'll keep you in my prayers. 🙏🌼

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