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Mar 29, 2016 10:15 AM

Hi everyone. I've been lurking and tracking my pain for the last few weeks and decided it's time to share a little about me and see if anyone has any pearls of wisdom for me.

I'm 30 years old, married with 3 kids and live in the uk. A year ago I was in a car accident, I was driving and hit from the side. Initially I thought I was ok but by the evening I couldn't move, my lower back/hips were in agony and I couldn't bend etc so I went to hospital. I was given cocodamol and told I had mechanical back pain. I have never had an X-ray/MRI etc.

I then had 7 weeks of physiotherapy which helped to 'unstiffen' me but that's about all. My doctor was happy to keep me on cocodamol but I refuse to take it during the day when I have to drive/look after kids/go to uni.

In October I had blood tests for RA, thyroid and a few other things but everything came back normal. Dr refereed me to an orthopaedic clinic which was just a physiotherapist seeing how well I could move and prodding me a little and advising me to self refer for more physiotherapy, which I attended until a few weeks ago when the therapist told me she didn't know what else to do with me and discharged me.

A month ago I went back to the doctor as I wasn't coping with the pain and fatigue and he prescribed naproxen. After a couple of weeks I did feel like it helped get my pain back to a level I could handle. I had my bloods repeated and checked for vitamin d also which I was told today I am deficient and have been given 3 months supply of cholecalciferol and told to go back to repeat bloods when I've finished them, and another month of naproxen.

Doctor seems to think vitamin d will be the magic cure, but I'm not totally convinced. Sorry for boring everyone, but if anyone has any advice id be happy to hear it.

My symptoms include:
Low back/hip pain
Neck pain (burning pain)
Muscle aches
Bone pain
Stiffness
Fatigue even if I sleep ok
Trouble sleeping/really light sleeping
Knees/back/hips/shoulders crack and click
Forgetfulness
Headaches
Numbness particularly in hands
Sometimes constipation
Can only manage one big task per day for example food shopping
Just generally feel like a 90 year old woman and there's probably things I've forgotten!

Thanks in advance to anyone who got this far!

Mar 29, 2016 1:23 PM

Hi,I'm 36 and from the UK also, although I don't have MS or Fibromyalgia, there seem to be a lot of symptoms that could point toward an auto immune illness. Best bet is to keep digging at your GP and get bloods/ tests done, if you're having this much fatigue and only being able to do 1 big job a day, it's really important for you and your family to get to the bottom of your symptoms, it may be the case of having to push and keep pushing your GP, unless you have a great GP.
Welcome to the Group, feel free to ask any questions, we're all here to help and all have a variety of conditions illnesses and injuries. I'm Quadriplegic, but was born with severe spinal conditions, then stupidly had an accident which severed my spinal cord.....Welcome!! 😊

Mar 29, 2016 2:17 PM

Thank you for the warm welcome, it's nice to find others who understand. My husband as much as he tries just doesn't get it, he's supportive but I think he forgets sometimes that I'm not the same person I was 😔
Every time I go to the doctors I seem to end up seeing somebody different, which I don't think helps. They will tell me to follow up in two weeks but when I get there it's a locum dr. My usual gp is very nice, but very old school. I feel like they think I'm just exaggerating and don't really listen to me.

Thanks for listening to me moan, hope you have had a good day 😊

Mar 29, 2016 4:43 PM

You aren't moaning...you're sharing. :) Have you been diagnosed w fibromyalgia or chronic fatigue syndrome? Have both and our symptoms r very similar. Hang in there.

Mar 29, 2016 5:50 PM

Hi Monday, the app is new for me, too, but I have found the info to be helpful & the people to be friendly. While I can relate to all your symptoms, I have DDD, severe scoliosis & sciatica. No rheumatologist, as of yet. My gp was not happy when I missed his referral because I had a very bad nerve pain episode. I am hoping he will agree to a redo. It sounds like You need help from your doctor to move on some testing with all the symptoms you have. You may have to be forceful & insist on it. I am glad you are here. You aren't moaning!

Mar 29, 2016 6:28 PM

If you can try and book in with the same doctor that can be a massive help, if it's not an emergency you can just find out when they are working, so it's better for you and the doctor for continuation of care... Not having to tell another new doctor again, everything you are experiencing. If there is a doctor you feel more confident with, and that they take you seriously, then see that doctor instead. You're not moaning, we've all been through things like this and if we can give any pointers then we will😊😊

Mar 29, 2016 7:47 PM

Don't give up in finding answers. A car accident can trigger autoimmune disease. The blood work is never definitive. It could show negative but actually be positive. It can take years even to show up in blood work. Get it every 6 months if you can. Ask to be referred to an internist if you can. Sorry you're in such pain and not being heard. Welcome BTW.

Mar 29, 2016 8:06 PM

Sounds like you were not treated at the initial trauma event. No X-ray? Find a doctor that will prescribe one or..get a Lawyer who can help us all understand how this can happen....purely medical care negligence! After any motor vehicle accident, one of the most basics diagnosis tools is called XRAY, to rule out any little possible fracture, herniation, internal damages, etc. Please seek advice from a medical professional advocate,that can sometimes actually be a lawyer. To.be prescribed physical therapy before any kind of scans was negligent!!!!! P.T. can actually harm if they don't actually know where possible areas of trauma are. I as I hope so.e people in this group agree, tell anyone get a lawyer, get another doctor, but if as you have told us , they know are trying to label your problems to be stuff like MS or fibro then by all means ..... Get more opinions! Plus take someone with you , be assertive! Start at the beginning , when the trauma happened.much love and blessings, and pray for me, I am extremely upset about your situation. I will be praying for you. My name is Terri, retired ICU/CCU nurse.

Mar 30, 2016 3:08 AM

Thank you everyone so much for all the support and advice ❤️

I feel like I have been passed around and ignored for the last year by medical professionals and I feel a bit silly really when someone asks what's the matter with me, saying oh I had a car accident a year ago I can just see people thinking 'get over it' lol but I have nothing else I can tell them as I don't have a name for anything I am going through.

You have all given me so much to think about and some brilliant advice, I will re read everything and work through it all.

I will keep on at the doctors, there are 2 regular doctors and I try to book in with the same one but then I walk in for a follow up as instructed and it's someone else 😐

Thank you all for listening, I really appreciate it 😘

Mar 30, 2016 11:55 AM

It is not unusual for a traumatic event like a car crash to induce fibromyalgia. I would also INSIST on full xrays. It's almost criminal that they hadn't done that asap after a car crash!!!
I found out I have spondylolisthesis, which is generally caused by a crack in a bone of the spine, and leads to many problems. I can't recall any severe trauma in the last decade that could have caused mine, but boy I feel - or don't feel - many symptoms. Tingling, numbness and pain right at the borked area. Took ages to get to a neuro, and he's ready to operate.

Keep questing. Look up each symptom separately online, as well as in groups. Sometimes we have to figure out a solution and wave it in the doctor's face before we get correct treatment. It sucks, but at least we can ve educated on ourselves.

Also, keep a diary. What you ate and did, where you hurt, in addition to this app. Having data to back up a theory is great.

Apr 01, 2016 9:57 PM

Why live i am commiting suicide

Apr 01, 2016 10:53 PM

I would seek out a rheumatologist with experience treating fibromyalgia. In cases like this a specialist is necessary. I would see if there is a support group in your area and ask for recommendations. Here in the US there is a website where patients can review doctors and the care they received. If you have access to a website like that it would be helpful in finding a good specialist. It's sad to say, but we often have to fight to find a good doctor who won't dismiss our complex conditions. Good luck!

Apr 02, 2016 1:11 AM

Shehaze67, I hope you will contact the National Suicide Prevention Hotline tel:+18002738255 or your nearest local church or family or friend. If you just need someone to talk to we are all here to listen. What is on your mind?

Apr 02, 2016 1:36 AM

Monday27th, Welcome, unfortunately, many of us are chronic pain sufferers and are trying to adjust to the changes our illness has brought us. At time we have to be our own advocates because no one knows our bodies better than we know ourselves. Always keep in mind that doctors/ physicians are PRACTICING MEDICINE and we are the test rats! 🐭

Apr 02, 2016 4:09 AM

Shehaze - I hope you reach out for support and have people around you that are aware of how you are feeling who can help you.

Thank you to everyone who has given advice/support. I haven't slept well this week, I feel as though I've just been closing my eyes rather than actually sleeping! I have had a bad couple of days, but today I feel a little brighter and might actually have the strength to get dressed. I've been reading up on my symptoms and fibromyalgia and I do feel as though I can relate to a lot of the symptoms.

Apr 02, 2016 11:29 AM

In so much pain cant deal gonna committ suicide

Apr 02, 2016 1:50 PM

Monday27th, welcome to our family community. I am sorry that you are in such pain. I must say that I am very confused as to how you went to the hospital and they never did any X-rays, CT-Scans, MRI's and said you had "mechanical" pain and gave you meds without even finding out what's wrong. It sounds like you may have suffered an injury they didn't diagnose and that you've gotten worse because of it. I would find out if they can refer you to an orthopedist, neurologist and/or rheumatologist. Also, when they do your blood workups, ask them if they checked you for Lyme's Disease, RA, MS, or any degenerative issues. (Ask if the blood shows a lot of inflammation) and see what they say. In the meanwhile, try ice, heat, possibly a TENS Unit, meditation, biofeedback, massage, etc. I wish you all the very best and pray you are able to get a proper diagnosis and proper treatment. {{{Hugs}}}💕

Apr 02, 2016 3:27 PM

Thank you always 😘

I can't help but think that I was treated poorly because I went to accident&emergency myself (although I didn't drive) later in the day after my accident, I think they thought I was just trying my luck for a whiplash claim. A relative had a crash about a month ago and went via ambulance to hospital and was X rayed, the lot and there's not a thing wrong with her, she's been out partying and living life and here I am a year later still can't manage my normal tasks without pain, never mind put on my heels lol.

I know they checked my blood for RA as my niece has severe juvenile arthritis, and they checked for inflammation markers of some sort last October, but I don't think they were checked again in my latest blood test. I have a list somewhere of what they tested but can't remember properly, they checked for liver function and other random things like that 🤔

Apr 02, 2016 4:34 PM

I just cant dobit anymore i am going to doe by committing suicide

Apr 02, 2016 4:39 PM

Shehaze67 where do you live? Maybe we can find some support in your area to help you?

Apr 02, 2016 8:13 PM

Monday27th, welcome to our community. You will find helpful suggestions and people here. Let me assure you, auto accidents can have long lasting consequences to our bodies! I'm 54, and by the time I was 35 I'd been in 5 accidents (& only 1 was my fault! Lol). My neck and low back have been longsuffering from the first one. I've had 2 neck surgeries, and now with DDD, OA, and facet stenosis I have constant pain. Demand your xrays!

I also have fibromyalgia, sjogrens, and multiple other diagnosed (dx), most dx in the past 10 years. Your symptoms could have been my list. But many dx share common symptoms. You should try and make sure the docs have checked off every other possibilities before just assigning fibromyalgia. Honestly, many docs will try and pass every symptom you have off as fibro once you own that particular dx. It took 3 years to find out I had sjogrens and hypothyroidism, after fibro was dx, because they all share symptoms. I had to push my PCP, and then get my psych doc to refer me out to a rheumy and endocrine docs. It's rediculous! Chart very symptom, no matter how trivial you think it is (ear pain, tooth ache, headache, jaw pain). I have all those symptoms and unfortunately now have multiple possible causes for each of them; TMJ/TMJD, osteopenic & Arthritis of jaw bone, migraines, grinding teeth (bruxism), and trigeminal neuralgia. See our confusing it can be? If you get a dx and feel there's something more going on, keep pressing for answers. If needed, get a echoing or third opinion. And if you don't know, once you get one autoimmune (AI) dx you can develop more.

I'm sorry if this is overwhelming. I learned many of these same things from others here when I joined, so I'm trying to share. Hugs & prayers you'll get the help you need and a treatment plan to help you cope. 🙂💕🙏🌼

PS: http://www.fmcpaware.org

Apr 02, 2016 8:15 PM

I am in ohio i have tried to get help here but nobody will listen

Apr 02, 2016 9:12 PM

Shehaze67, several of us have offered our hands and ears to listen. You have to open up and let us know what you are struggling with before we can help you. We are all listening, and waiting for you to say what's bothering you besides you are going to commit suicide. What are you suffering from, what diagnoses, what pain/symptoms. What do you need from us, besides someone to help you commit suicide? If you can't open up to us then you need to contact a crisis hotline. Sending you hugs & praying for you! 🙂💕🙏🌼

Apr 03, 2016 10:24 AM

Welcome Monday, I suffer from back problems don't know the really long confusing name lol! I also have osteoarthritis in my back I also suffer migraines and currently working on trying to figure out the rest of the puzzle with my hands shoulders bottom's of my feet and my left hip. Lol I am a big mess at the moment. I have been catching up on the site and this thread, I really would ask for X-ray's. My sister is in nursing and I have several other nuring friends who work in the truma department and yes the first thing they do is X-ray or MRI depending on the case, they should have done one on you! Heck even when I was in a car accident 10 years ago I just had my stables out from a gallbladder surgery and it was just a bumb I was going 1 mph and the other car side swiped my front end doing 55 no headlights on at night so I was lucky but they still took me and did a CT scan, they wanted a complete look at my body from top to bottom to make sure back wasn't injured and that the surgery site was not harmed internally. INSIST on xray's! That should have been done day one. I will be praying for you! In meantime like everyone says ice, heating pads, tens unit and use a back brace. My pain management doctor gave me a back brace and it helps some. Wear it even though your not going to lift anything heavy just wear it to help ease stress off your back. Welcome aboard again and I will be praying for you! 😉🙏

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