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CatchMyPain Community and Pain Diary App to manage chronic illness

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Jun 08, 2017 5:34 PM

Male 32 UK

Just downloaded and starting to keep a diary of my pain this seems like a very good app.

Been diagnosed this month with Fibromyalgia and possible arthritis. I have also been refered for an arthroscopy to investigate the need for reconstruction or replacement of my right knee.

Have suffered for 11 years and i believe it stated with testicular pain back in oct 2006 and has progressively got worse since.

Jun 08, 2017 5:37 PM

I have also just gotten here! But in other words I have insomnia and I placed that In my thing and it alerted me that you have it to is that a correct assumption ?

Jun 08, 2017 5:39 PM

Not really insomnia but I suffer extreme fatigue and exhaustion but cant sleep at night due to the pain.
(i get to sleep but constantly wake up so never get proper rest)

Jun 08, 2017 5:41 PM

Mine is a bit more complicated but less about me so fibromyalgia huh ? Don't know much my family never gave me much info only that my condition is similar to that of fibro.

Jun 08, 2017 5:46 PM

From what i have gathered so far it seems like a dump diagnosis.
Kinda like a doctor saying "you have an infection" the truth is they dont know exactly what is wrong. they have done many tests and they have mostly come back negative so they cant locate a cause for the many symptoms you suffer. (there are a lot and some are mild while others can leave you crippled with pain) It seems like they just say well we dont know what it is so we will call it fibromyalgia

I may be wrong but thats how i feel. was only diagnosed 16th May but as i say i have suffered for 11 years now. 😣

Jun 08, 2017 5:48 PM

I may be able to give you some insight can you tell me your simptoms (ack look at me playing doctor XD)

Jun 08, 2017 5:54 PM

pain at base of skull
pain in lower neck
pain in shoulders
spinal pain
lower back pain
pain in right elbow
constant pins and needles in left arm
testicular torsion
pain in both knees but predominantly in the right
week right ankle.
numbness in intervals across the body
burning feet (like really hot as if they are on fire)
electrifying skin (when youched even lightly)
ocular hypertension

there are more but cant think right now

Jun 08, 2017 5:56 PM

It seems like it could be a little bit of something called EDS and or Musculoskeletal joint pain but can be linked to other conditions it is mostly known as EDS or Ehlers Danlos Syndrome.

Jun 08, 2017 5:58 PM

Never heard of that but will look it up

Jun 08, 2017 6:00 PM

If you can see if you can test to see if you are hyper mobile (double jointed) by attempting to move your thumb down to your wrist if it gives you any resistance then stop

Jun 08, 2017 6:05 PM

I am in no way double jointed lol

Jun 08, 2017 6:06 PM

Then maybe not haha it's all in the genes my friend while you don't have hyper mobility my genes skipped twelve generations to mind and now all my joints are hyper mobile.

Jun 08, 2017 6:09 PM

Not sure thats my issue.
i do get restless legs where the pain is so intense it causes spasms which in turn cause pain enducing more spasms (never ending circle)

Jun 08, 2017 6:11 PM

Welcome to the family! Also 32 from the uk with fibro rheumatoid arthritis Raynaurds syndrome vitamin d deficiency herniated disc syndrome and Benign tumours in my throat. Dont rest much as have a large family with six children lol fun times! Feel low most days so keep to myself dont go out much my mum tries to get to me out once a week but even thats too much. Oh well such is life I have so many wonderful friends here and other places its ok I dont see many people of that makes sence anyway Im waffling on so will be off to try and get some sleep. Welcome again V3LV3T

Jun 08, 2017 6:15 PM

Thanks for the welcome sorry to hear of your pain.
Its hard living with a chronic pain problem that also makes it difficult to get out etc
Socialising whats that?
If you ever just want someone to talk to or to rant with im here. Would be nice to have someone to talk to. 😊

Jun 08, 2017 6:16 PM

Like wise always around can pm if you like xx

Jun 08, 2017 6:17 PM

Not worked pit how to do that yet but when i do i will send a msg lol

Jun 08, 2017 10:48 PM

Welcome to our peaceful place V3LV3T. 😊 I hope you like it here . We are all awesome . Here for everyone. . If you every need to vent or just talk. We are here for you ☺

Jun 08, 2017 11:46 PM

V3--suggest a book by Dr. Liptan "The Fibro Manual". Fibro has its own set of symptoms with specific cause--hyperreactive nerves from abnormalities in Central Nerve System. Tests are being developed that point to a specific cause that will make diagnosis easier. It is no longer a "dump" catchall type diagnosis. Have not done justice to fibro as a diagnosis in its own right. Highly recommend the book. I am sorry that you have to have this. I share your pain, literally.

Jun 09, 2017 12:02 AM

Am 30 M from Liverpool uk. New to this too

I have been up all night in pain and always have trouble sleeping. Had my fibromyalgia symptoms for around 10 years but really kicked off bad after my first shoulder dislocation, since then had 32 left shoulder dislocations and 4 surgeries and the rest is history, hopefully not a future of pain! Hope your all ok :)

Jun 09, 2017 12:11 AM

Welcome smally. I hope you like it here . I am sending preyers your way. As well

Jun 09, 2017 12:15 AM

Thank you. same to you god bless

Jun 09, 2017 12:25 AM

Thank you as well smally 😊 God Bless

Jun 09, 2017 2:05 AM

Tamtoad thank you for the recommendation i eill look for that book in the local library.

Smally that sounds nasty i never even thought about the dislocation because i just pop it back in myself lol

Can anyone tell me how to send private message or anything like that.

Jun 09, 2017 10:29 AM

V3LV3T click on anyone's pic on here. It takes you to there profile. Then the option will be there ☺

Jun 09, 2017 10:30 AM

I was using an older version of the app and have upgraded now

Jun 09, 2017 10:31 AM

To check messages . On the left there is 3 lines on top of each other. Click that for different options ☺

Jun 09, 2017 10:35 AM

Yea the older version didnt allow for it but the new one does. thanks

Jun 09, 2017 10:27 PM

I am also new here! I suffer with fibromyalgia with other things that go on as well! Take care!

Jun 11, 2017 1:45 AM

Thank you Christmas.

Having a bad morning, hardly managed to get any rest last night so can imagine today will be a go slow. Good job it's a Sunday and i dont have much to do lol

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