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New here & a fibro patient

Oct 17, 2017 1:00 PM

Hello,
I'm 34 and I was diagnosed with fibromyalgia this year in June I am sure I have had it all or most of my life. I am also desperately trying to lose weight because I am morbidly obese. How on earth do you get up and move when you hurt so gosh darn bad? Anyways I'm taking Gabapentin I'm taking 600mg 3x daily & I can tell that it helps especially if I forget a dose... However I still hurt a lot and my doctor looks at me like I'm crazy every time I tell her it's helping some but... I am still hurting. I just wanna be able to get up and move so I can lose weight. I feel so freaking alone. Nobody understands. I cry whenever I'm alone. I have begun to dread opening my eyes each morning.

Oct 17, 2017 3:12 PM

Welcome to the community beckster. We are very supportive. I'm so sorry you have fibro. I have it too. I haven't figured out how to exercise either. I do walk my dog. That is the only exercise I get. I tried water exercises but they made me hurt so bad. I'm going to try tia chi. I have a DVD. I've done it before. I don't think it would help me to lose weight but it would get me to move.

Oct 20, 2017 5:55 PM

Its so hard. I havent had a diagnosis and still getting lots of tests and refferals. But i got a gym pass and started going 3 times a week. Not even for long when im in a lot of pain, some days only 30 minutes or i just go in the pool. But i find it really is worth the pain at the time. It does ease quickly and i personally think the excersise works wonders if you can fight through your fibro pains. Most gyms have a pool too so even starting with that and seeing how you feel? X

Oct 20, 2017 6:04 PM

I was on gabapentin and topamax. Topamax causes weight loss as side effect. Also helps with fibromyalgia. Ask your doctor about it.

Oct 20, 2017 8:15 PM

I also have fibromyalgia and I was morbidly obese last year this time. I had gastric bypass surgery in December of last year and I have lost 150lbs so far. I had the surgery hoping to relieve some of my pain but it actually has gotten worse. I would totally go through the surgery again even though it hasn’t reduced my pain. I haven’t been able to work since October of last year due to my pain and I just got denied disability for the first time. I’m hoping it will go through with an appeal. I sure hope you are able to find something that works for you. The only advice I would give is Not to start Opiods. I have been on them for five years and all it’s doing is making my fibro worse, but my pain is so bad the dr said I would probably never be able to come off of them. I am cutting back to see if I can get weaned off of them and to see if I will feel better without them, but it’s just a vicious circle.

Oct 22, 2017 9:57 AM

Beckster, I understand what you're going through. I was a "healthy" weight until age 12 when my pain got very bad, I very quickly went from 105 lbs to 190 lbs. Throughout this weight gain I was trialed on Amitriptyline, Topirimate, Gabapentin and Naproxen in hopes of controlling my pain, all of which did nothing. I stopped taking the last of these medications in December 2014. In September 2015 I was prescribed Tylenol #2 with codeine for when the pain gets really bad, it works for my pain but I was still unable to lose weight. In November 2015 I was diagnosed with ADHD, which I've had since I was born but was undiagnosed, and was prescribed Vyvanse. It's been 23 months since I started Vyvanse and it's been a life changer, in addition to controlling my ADHD, I've lost 15 lbs because I don't feel hungry.

My doctor says I need to lose 55 lbs and I need to get more active, but without a diagnosis I can't get treatment. I move as much as I can, but when I'm in pain I can't exercise. I've reached a point in my pain journey, where regardless of what my doctors say, I know what I can and can't do and at this point I remain unable to exercise. I am happy with where I am weight wise, but I'm not happy with the lack of diagnosis and weight discrimination within the medical world. If you can try swimming or light stretching, that may help.

Oct 22, 2017 2:26 PM

Hi all!My Name is Roni and I have been dealing with pain for along time. I was diagnosed with scoliosis when I was twelve but continued riding horses, and other fun things when you are young but am now paying for them dearly. Don't get me wrong I would never change having had my horses they saved my life! Now I am dealing with osteoarthritis, all over my body, fibromyalgia/CFS, some type of fatty nodules all over in my fatty areas and yes there are more fatty areas. I also have struggled with my weight especially the more pain I get into. I have been on pain medication for a long time and it works for some pain but not all I have chronic migraines as well so I take topamax/gabapentin/and had shots that I gave myself of Toradol. I have tried all of the other anti inflammatory drugs but my stomach can't take it. I am to embarrassed to go to a gym or even a walk, I have yoga tapes and Tai chi I just have been so sick! I am sorry you all feel so bad but I am glad to know I am not alone. It is enough to be in this kind of pain every day, but then to have people look at you as if you are exaggerating or just lying is too much. It causes me to feel cut off from everyone.

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