Hi..im new an just was diagnosed with SLE,I have been aching in both knee an one side of my face swollen,shoulder aching..now my blood pressure be falling low like 98/66 an i be having cold sweat like I'm bout to faint..I never heard of this before an I'm just start reading up on it..i be feeling depressed,an I don't be wanna go nowhere or be around no one an my dating life feel like it's gone.I don't have the desire to wanna date..I really need somebody to talk to..I just a few years beat Hepital C Liver an now this Lupus..it sucks!!!!
Unfortunately a lot of people don't understand chronic pain. I don't have experience with the same medical issues but I can listen. We all support each other here. I feel terrible most of the time and just try to do what I can to help the symptoms at this point. I started aromatherapy and that is helping me relax a little. Do you get any relief from what your doctor(s) have prescribed or suggested?
I love in Memphis an it's not many Rheumatologist Dr here an all was booked up or didn't take my insurance..but I got a Rheumatologist appt July 13 an i been waiting for 3 myths..my regular doctor perscrib me some pain pills for lupus..well for ever body I hope wish for a cure for every body ..in the meantime we all got to be lupus warrior!!!Thank you for talking to me an if you ever need me to listen to you I will..have a bless an safe night!!!
I have had SLE for 21 years and there's never a day that goes by that I don't remind Lupus how much it sucks. I'm always fatigued, anxious, joint inflammation, don't want no one around me and don't want to go and be around anyone. So I throughly understand. My family flat out told me they are tired and don't want to hear about my sickness. Harsh words I had to respect. On the flip side of things I feel when I am around people I'm glad I made the choice and I make it my business to laugh so hard so that in that moment SLE, fibromyalgia and a list of other medical issues don't matter in that moment. I'm that moment you get a glimpse of your former self but keeping in mind that it's only for a moment. Journaling is great and therapy as well. Aromatherapy is hands down the ultimate relaxer be it candles, infusers, bath bombs, soap, shampoo, conditioner.
I hope I helped some. Stay well and keep fighting as warriors do.
Welcome to this hamlet of pain dealers...many here have multiple conditions which makes it harder; but the underlying connection is chronic pain and we are all at various treatment as well as length of illness. So you can get a wide perspective of feed back as you walk life's new journey for you. Pick and choose the discussions of interest so it's not overwhelming. If you need to vent, help sorting out things, or need postive words, we understand and many good people who seem to know just what to say.
May you find relief, comfort and friendship. All my best