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New Here and Diagnosis

Dec 14, 2016 8:02 AM

Hi, I'm Rhys. I'm new on this app and I've been dealing with joint stiffness for years and chronic pain for about 2. It has gotten so bad that I sometimes need a cane to walk. Regardless of those things, my mother (I am a minor) still refuses to get me tested for anything. I am almost certain I have early-onset Osteoarthritis, and I would like to have a professional opinion on it. How do I get my mother to get me tested though?

Dec 14, 2016 8:17 AM

Hello Rhys. Am.so sorry you are dealing with pain. :( why do you think it's Osteo arthritis instead of other types of arthritis? Or other possibilities? Is there a family history of this? Just curious. Have you researched your symptoms and presented your mom with solid evidence of what you believe fits your symptoms? I sure wish I had an answer for you. Perhaps keeping track of your pain for a few weeks will also give you more evidence to back up what you are feeling.. This app is great for that. Does your mom give any reason as to why she won't have these symptoms checked out?

Dec 14, 2016 8:26 AM

She thinks I'm being overdramatic. Personally, I believe it is Osteoarthritis because I do have a large family history of it, the youngest diagnosis being only 16. I've tried to show her how my pain and stiffness lines up with that of arthritis, but she has it (diagnosed too), so possibly she just thinks it's normal.

Dec 14, 2016 11:26 AM

Am so sorry. :( is there a school nurse you could talk to that might intervene?

Dec 14, 2016 11:28 AM

The nurse recommended that I get tested, but she can't say that I really need to or the school will be required to pay for it.

Dec 14, 2016 11:46 AM

Hi rhys! So sorry for you but I was in the exact same position a year ago with my parents so I feel you! I'm 18 years old and have been struggling with chronic back pain for four years now. My parents didn't believe me, they thought I was faking it for attention. No one took me seriously.

I've learned that if there's any way for you to get tested GO AND GET TESTED!! I don't know if you can in your country or if it'll cost you but call a doctor and get tested!

You can tell try to explain to your nurse that your parents won't pay for the test but it's crucial for you. You need to be strong and tell ppl how it is! It's the only way you'll get help if your mom isn't helping :/

Sorry for the rambling and bad English but sending you tender hugs 🤗

Oh and try not to self diagnose when going to the doctors. They tend to think your exaggerating and forcing your symptoms into a condition and even that your "hoping" to be sick so you'll get attention.. I know it's sick but that's what happened to me:/ ppl thought I was faking everything (aaaand kind of still do)

Dec 14, 2016 12:30 PM

Welcome to our community family RhysesPieces! I'm sorry to hear you're suffering from joint stiffness, especially at such a young age. And I'm sorry your mom doesn't think you need to be seen. I've had OA for decades but it didn't start until I was in my 30's, following multiple injuries & mva's. I now have chondromalacia of the patella (R-knee) & sjogrens, an autoimmune (AI) illness. Both my daughter's, and many other family members have OA or chondromalacia or some other joint illness (RA). A rheumatologist is the best doctor to determine if you have something in the AI illnesses, but most refer OA patients to orthopedist or GP doctors. OA is typically a wear & tear type of arthritis, but it's not set in stone. The best way for any doctor to diagnose you is to know your day to day symptoms, so chart every change. Try and sit down with your mom for a heart to heart talk after a few weeks charting, and let her know how you feel, even about her dismissive attitude (how hurtful it is). If you turn out to have something in the autoimmune family then the sooner you start treatment the better it will be for your joints. Delay caused damage. Unfortunately with OA and chondromalacia, treatment is geared toward comfort care, for which exercise is important to prevent stiffness. Hugs love and prayers your mom will get you in to see a doctor. 🙂💕🙏🌸

Dec 15, 2016 9:58 AM

RhysesPieces, when do you go for your annual physical? I would speak to your pcp about what's going on with you and he/she will get the testing started. Even as a minor, if you tell him you're having a medical problem with pain, he has to find out why.
If you're not due for a physical soon, tell your mom that you want to make an appointment for a physical because you're not feeling great. Then you can get the ball rolling. (If she isn't listening to you then you have to either take matters into your own hands or you'll be stuck dealing with it. Sending best wishes, positive vibes and good karma your way!!🤗💕

Dec 18, 2016 1:49 PM

This sounds to me more like lupus symptoms. Maybe do some research on it and show your mom. It can be serious.

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