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New here and looking for some insight

Jun 06, 2017 2:20 PM

I'm back at square one with the doctor after a year and a half battle trying to figure out why I have menstrual like cramps almost every single day. Endometriosis runs in my family like wildfire, but after a exploratory laproscope my doctor told me she doesn't believe that it's endo. I've switched to focusing on pain management instead of finding an answer... does anyone else have this unexplained pain? How do you deal with not knowing and with the pain itself?

Jun 06, 2017 5:25 PM

It's very frustrating not knowing what it is you have. I was diagnosed with endometriosis a few years ago and fibromyalgia almost a year ago. If I were you I would get a second opinion. Did you get an ultrasound?

Jun 06, 2017 6:09 PM

More than I can count. They say everything is normal except that I occasionally develop cysts but that they don't account for the daily pain as the pain changes when I get a cyst. I do think it's time to get a second opinion as I'm at my wits end and back at square one

Jun 11, 2017 1:38 AM

Was it an OBGYN that did the testings? Have they looked into Polycystic Ovarian Syndrome? I'm so sorry you're in so much pain. /;

Jun 11, 2017 7:40 AM

Yes it was my OBGYN that did the testing. I've been tossed between three different doctors that all practice there and none have ever mentioned polycystic ovarian syndrome to me before. I was told that my cysts weren't the kind that they worry about and that there was nothing they could do to stop them.

Jun 11, 2017 9:45 AM

About nine years ago I tested positive for ovarian cancer. They did an abdominal hysterectomy. When they got in there it was not ovarian cancer but a severe case of endometriosis. The doctor said it must have been like that for years. I did not have pain but I had been sick for a long time. I was never diagnosed with endometriosis and I never said I had that until they got inside the abdominal cavity. I definitely would go to another doctor. I had been to several doctors for about two and a half years saying I didn't feel well and something was wrong and it wasn't until I tested positive for the ovarian cancer that they did anything about it. The doctor was blown away by the severity of the endometriosis and the fact that I was not in pain. However I do have a high threshold for pain. This is why I'm so frustrated with fibromyalgia and the erosive osteoarthritis because the pain sometimes is so unbearable given my high tolerance for pain it must be off the charts on the pain Rector. I also had the ovarian cysts and they did an endometrial ablation which helped tremendously.

Jun 12, 2017 10:12 AM

its hard as hell but u gotta find some thing keep ur mind busy... I do my art as long as i can til i get sick i have lay down some days better then others .. Personally i suggest getting a note book lig everytjing .. Where i am at what time i take my meds the last one before bed i lig time when i wake even if just pee ... I log my syptons i log what i eat down to finest tooth i put mayo with olive oil on wheat bread with 4 slices turkey water to drink i mean DETAIL!!! My docs are alway n shock that i know things or how prepared i am to explain and tell them NO THIS DOESNT HELP ME I NEED SOME THING ELSE!!! i was idiot thought i can handle this on myscle relaxers alone i dont wanna be on pain meds i wanna reserve the right go higher as i need, haaa not even a year later begging in tears for him give me some thing just some thing flip flop with my muscle relaxers the pain is un real a lit times i cant function! After being told by his female counterpart i hate her she looked at me said SORRY UR NOT A CANDIDATE FOR PAIN MEDS ?????😱 UH OK WHY??? cuz u arent ... I told michael my next visit i dont like her shes mean we do not mesh well i only wanna see him.. He and i have an amazing patient doc thing... I told him openly i smoke some to help maintain my pain my tummy oain and insomnia if i did not i would not be eating nearly what i am i had alreeady plumited 30 pounds n two weeks so he trust me i am open up front honest i make sure he knows whats helping and not ... I write everything down mainly for my nutrionist but helps ne too see patterns . or see foods hurt me then i need to eliminate them.. Right now im bad im back to home made chicken soup all day cuz i cant eat anything else hurts to eat hurts not to eat best thing i found was moms home made chicken soup she told ne how make im currently making a nester full of it i eat it all week long.. Maybe sone other things fruit maybe depends again i have go by my gut n what i know helps!!! Thibgs will puggy back so i have IBS IBS-D FIBROMYALGIA GERDS ADD PTSD INSOMNIA 24 7 MIGRAINE PROBLEM CONSTANT LOWER BACK PAIN LEFT SHOULDER CHRONIC PAIN NECK N HEAD CHRONIC PAIN WHAT HAVE I MISSED OH RECENTLY I AM NOE PRE DIABETIC SO MY WORLDS CHANGING FAST IM HAVING HARD TIME KEEPING UP SO I UNDERSTAND!!! this place is fantastic use the resources here as well and the people here are amazing ... Very supportive never feel like anything taboo we pretty much see n heard it all i think am i right guts ?? Lol good luck if u need a chat pop me up message away 💙💜😬hugz

Jun 12, 2017 10:14 AM

OH P.S YOU KNOW YOUR BODY UR PAIN UR TOLERANCE OF THINGS SO DONT BE AFRAID SPEAK UP N OUT. GET ANOTHER OPINION FIND BETTER DOC EVEN IF U GOTTA DRIVE HOUR SEE THEM !!!

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