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New here and looking to give sand get support for severe allergist problems

Jun 10, 2016 6:16 PM

I have multiple diagnoses including MCAS possible pots and asthma. Many complex multiple daily health issues. Looking to give and get support

Jun 10, 2016 9:51 PM

Hi I'm new here too :-)

I have a severe allergies also. Happy to support and vice versa :-)

Jun 13, 2016 10:22 PM


Jun 13, 2016 10:37 PM

So frustrated! Because my mast cells are inherently unstable, I tend to just randomly develope new allergies. I can eat like 30 foods,so losing 1 is a pretty big deal. I started getting sick after mealtimes, do i took off spelt and starting to feel better. I'm happy that I found my trigger so easily but so annoyed that there's yet another major food I have to cut out of my diet! UGHHHH!
I'm really quite normal on good days-well actually ill leave that for you to deciede

Jun 13, 2016 11:41 PM

I don't have severe allergies(I think) but my area is known for people who had no allergies before to become sick. Summer's the worst, I have asthma, and I know it's bad because I start calling my dad's cigarette an"air filter" because second hand smoke is better than the air itself.
Allergies suck! Nausea, migraines, trouble breathing. So fun, NOT! Sorry for the sarcasm, I'm being kinda weird today. I also struggle with eating specific foods, and staying hydrated.
Anyway, I get how your feeling. It's tough cutting off any food from your diet, especially when the list gets so small. Best of luck finding the support you need! ❀πŸ’ͺπŸ˜†

Jun 14, 2016 5:50 AM

Thanks for the support! I have asthma also.

Jun 14, 2016 6:20 AM

Sounds crappy hopetobe. Do you have allergies come and go? My allergist explained to me that when you have severe allergies you are more likely to get smaller allergies that come and go and can be hard to pinpoint. I've had this, but not as bad as you it sounds.

I know the feeling of cutting out foods, it's frustrating. And eating out can be a nightmare!

Do you get seasonal allergies?

Jun 14, 2016 6:37 AM

I don't have severe allergies but I do remember doing a scratch test years ago on my arm where they put drops of different things on and if you get a reaction then the dr knows what allergy it is. Mine showed up as an allergy for cockroach poo Ewwww! I am also very allergic to Jasmine that is fragrant at night. It makes me wheeze and antihistamines don't work. So I just can't live in a neighbourhood with Jasmine 😱 I'm sensitive to salycilates and nitrites so I have to be careful when eating foods with high levels as when it build up it affects asthma. I know you ladies will find great support here from very knowledgeable people. Welcome to the community πŸ˜€

Jun 15, 2016 5:43 AM

So i have really no minor allergies, because my disorder is that the more you are exposed the more allergic you become, and it took me 2 years to get diagnosed and even longer to understand how much I need to be careful about.
I have seasonal allergies to every type of pollen, but some are much worse then others.
At this point,we know I canonly be allergic to anything so we've gotten pretty good at figuring out what's the trigger. The idea is anything that's new or whatever is the same throughout the day when you keep reacting

Jun 15, 2016 5:44 AM

Thanks, dipbop

Jun 15, 2016 3:26 PM

Welcome Hopetobe & Amez! I have allergies & asthma too. My asthma is allergy induced and can be exercise induced also. My first asthma attack was status asthmaticus following college walking class. Most of my allergies are seasonal plants, rodents, bugs, cats & rabbits, and especially medications & chemicals; primarily pain & psych meds. The only two known foods are wheat & soy, but it's possible I have milk intolerance too. It tends to cause GI issues. Yay! I'm currently on a sugar restricted diet following stomach/hernia/esophagus surgery. I am getting very little milk, since I'm not able to eat my cereal right now. Avoidance and antihistamine, with asthma meds, an emergency inhaler & epipen is my treatment course. Hugs & prayers to all! πŸ™‚πŸ’•πŸ™πŸŒΌ

Jun 15, 2016 4:01 PM

Sounds tough. That's my basic treatment plan also except I have have mast cell stabilizers (singular). I say basic because we have a contingency plan for when crazy things happen.

Jun 15, 2016 6:21 PM

I also take Singular. I get so tired of all the meds I take just to keep asthma & allergies at bay...ugh. Then all these other dx and meds got added. When I got hit with memory loss/dementia and fibro fog I had to find an app to help me remember what to take and when. I swear, sometimes my brain acts 75 or more. πŸ˜‰

Jun 15, 2016 7:25 PM

I too have allergies, and asthma and it sucks getting two injections weekly. I hate the itchy scratchy throat and the nose rubbing and red"beefy" eyes. My eye doc won't give me new glasses until I get the under control...

Jun 24, 2016 3:35 PM

Back to the days of emergency meds around the clock... and step 2 steroids. Because of chest issues.Been having crazy Sinus pain and lightheadedness.. basically have to be in bed all day... went to the allergist last week but the new med I want working...worse then at the begging of the week. And she's not in until I Monday...so crazy weekend ahead

Jul 06, 2016 12:42 PM

Hey guys I just wanted to let you know I started a website to share my personal journey with my allergic disorder and offer help and support for asthma and allergies, especially my disorder.you can check it out if you think it wouldc be helpful for you. https://thelifeyougaveme.wordpress.com

Jul 07, 2016 5:19 AM

I'll check it out. Thanks for sharing!

Jul 07, 2016 1:42 PM

I just checked out you blog Hopetobe. It's really cool and I will be reading you with interest πŸ˜€

Jul 07, 2016 7:58 PM

Thanks guys!:)

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