Hi everyone :)
I am 39 and live in the UK with my husband and 2 of our 3 offspring (feels wrong calling them kids when 2 of the 3 are adults now and the other one may as well be lol). We are a multi-differently-abled family and for the most part just crack on with life, supporting each other. I have CRPS in my entire lower body and possibly my innards, caused by a herniated disc that went undiagnosed for too long. I still have the spinal problems that caused it.
I have an issue I could really use your knowledge on. It used to be that sleep was an escape from the pain. Nowadays in between massive amounts of sleep paralysis (I have the less common experience where you get it on going to sleep rather than on waking), associated embarrassing side effect of SP and neuropathic pain in the groin area that I daren't overtly describe, and general pain, my sleep is now filled with dreams explaining the pain - getting shot, stabbed, having a horrific monster sat on my back gnawing at my spine etc. There's no escape in sleep now. To even get to sleep I tend to go through at least 1 or 2 episodes of sleep paralysis (with associated hallucinations of something evil in the bed with me) and on my worst night it was over 20!
I was wondering if anyone had any tips on getting deep enough asleep (without any more drugs than I'm currently rattling from and which I'm sure are making it worse) that this may subside a bit? Not expecting miracles. Just hard to carry on when you're lucky to get 2 hours a night at the most and that's like a horror movie lol. I daren't ask elsewhere cos I hate looking like a moaner. I tried to tell the docs about the embarrassing part and they laughed and said I should consider myself lucky. Wasn't happy.
Thanks in advance and lovely to meet you!