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New here and struggling...PTSD and Chronic Pain

Sep 22, 2016 11:37 PM

I have many chronic health issues but my most disabling struggles are with PTSD, Fibromyalgia, and Chronic Pain from issues with my back. Lately everything has become a struggle. I've been searching for information, support and treatment options that might improve my quality of life and help me cope. And so I ended up here... Just being able to connect with others here who understand means the world to me!

Sep 22, 2016 11:40 PM

I feel the same way... know you are not alone

Sep 23, 2016 7:27 AM

Matrevino - I am so sorry you are dealing with so much. I am also new here but am finding the members to be very supportive and caring.

What things have you tried? Are you looking for information on alternative forms of treatment or just general information on what others are doing for these conditions?

I hope you are having a good day today. :)

Sep 23, 2016 9:14 AM

Hi Matrevino, I'm very sorry you are going through so much right now. For my PTSD I tried CBT it helped a bit and I was wondering if you have tried it also? Also I've done quite a bit of Therapy but not in the last two years, do you feel it might help? I'm sure you probably know all this and I apologize if I'm not being helpful. Know that I'm sending positive vibes your way and we are all here to listen and share, thank you for sharing 🤗

Sep 23, 2016 10:51 AM

Welcome to our community family Matrevino! I'm sorry you are struggling. I have found using relaxation techniques gentle stretching and mild exercise be to be beneficial. I begin to use vitamin D3, vitamin B12, and magnesium supplements after some serious and had had good results. I'm allergic to most pain medications so I have to rely on Tylenol arthritis medicine as well as Voltaren gel on a daily basis. On bad days I do use Tramadol and if I'm having muscle cramps I have muscle relaxers to use. The gentle stretches seem to help with the fibromyalgia muscle knots and tender points. Walking on a treadmill daily seems to help me stay limber and not get stiff. But on days that I'm absolutely unable to walk or do stretches I rest. I listen to the signals my body gives me to determine what I will or will not do everyday. If I'm doing any activity I make sure to rest between different ones by pacing myself. In 2014 I was unable to walk at all on the treadmill or do the stretches and I became very out of condition. When I started back exercising I had to take it slow and steady. I'm still slow and steady because I can't increase but so much before the activity begins to affect my breathing, and having asthma that is exercised induced I have to be careful. I hope that you can find ways to help you cope better through everyone in the community and their suggestions. I was struggling really bad to get through my days until I found this out and join the community. I had no idea there were other people out there like me, you understood what it if like to go through chronic pain on a daily basis 24/7/365. Sending you hugs love and prayers that you can find ways of coping and support through the community! 🙂💕🙏🌸

Sep 23, 2016 1:05 PM

Hi there. Sorry you're struggling. I went through a therapy called somatic experiencing to help with my PTSD. It's a gentle form of therapy and amazing. It's been life changing for me. I still have lots of work to do but I've come a long way thanks to it. I also battle lupus.

Sep 23, 2016 1:10 PM

I'm new too

Sep 23, 2016 1:15 PM

Welcome 😊

Sep 24, 2016 4:55 AM

I also am new and understand what you are experiencing. I have a long list of diagnoses including the ones you've listed and a longer list of medications and medications to counteract the side effects. I concur that cognitive behavioral therapy can help with PTSD. In addition to those things already mentioned, I've had some success with massage therapy and accupuncture. A nice hot bath with lavender Epsom salt is good too. Since I have trouble getting in and out of the tub, my mother purchased me a stool that can be used to get in/out or it can stay in the shower so you can sit on it if you're having a particularly bad day. Love and support from my family is also important. While they have no clue the pain I experience daily, they're happy to bring me meals in bed on days I cannot get out of bed or am unable to maneuver the stairs or even cut my food whether at home or in restaurant. When it comes to treatment know that you are in charge, ask all the questions you want-even the seemingly silly ones, and remember your healthcare practitioners work for you so find the right team. Above all else I find that once I'm grounded from whatever PTSD trigger, prayer and meditation are my go to places. I could "talk" for hours but my hands hurt so I can't type as long.

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