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New here but wondering if this is normal

Mar 03, 2016 11:15 PM

I'm new here and just got my diagnosis of fibro, buff I'm wondering if anyone else has hand/arm tremors?

Mar 04, 2016 1:24 AM

Yes, I do. Do you also have pain? Does it also affect you in other ways?

Mar 04, 2016 4:51 AM

Yes I do sometimes very bad. To the point where I can not write or drink.

Mar 04, 2016 5:01 AM

I have trouble eating and drinking but thought (maybe mistakenly?) that it was from MS. And I get so much joint and other pain that it sometimes keeps me from doing anything but stay in bed.
Happily, I have hope of real help from the pain clinic where I've started going 1x/mo.

Mar 04, 2016 5:07 AM

Do you only write here? Or do other writing? I find it's embarrassed getting shaking or tremors in public. I know the rationale for not feeling that way but sometimes I am self-conscious .
. until I change my focus.

Mar 04, 2016 5:55 AM

7autoImmunes, I have developed tremors in my hands and head. Recently seen the neurologist and told he anticipate it spreading to my voice next... Like Audrey Hepburn. It can be controlled by medication or Brain surgery. Know someone who had the same and opted for Briain surgery and he no longer has tremors. I am saying no to Brain surgery at this time. My doc said stress and tiredness makes the tremors worst. You need to find out the cause. Then you they can determine treatment. I have felt embarrassed by my tremors too. But like everything else that afflicts us we have to modify our world so we can continue to fit in. I am looking into voice recognition software so I can continue to type. My doctor has ruled out Parkinson's.

Mar 04, 2016 6:06 AM

I gather they've found no definitive cause for you? Do you have any folks around who might help you stay calm and rested? I do find it frustrating when my hands do random things and won't cooperate with me. And when they get stuck tightly closed sometimes. Even arms affected then. I'm in UT, USA so it's super late & must sleep. But I'm glad you're here. Look for you tomorrow.

Mar 04, 2016 6:13 AM

Rest well ! I am in Ohio, USA. And it's morning I have to start my day.

Mar 04, 2016 11:43 AM

I've had fibro since 2007-2008, but the tremors only started a year ago. They're predominately in my right hand, and worsen with use. I suspect it may have a slight connection to my spine issues, but my PCP & I also discussed the likelihood of essential &/or familial tremors. I was given tizanidine for them but it really wasn't helping, and may have worsened them. Now that I'm on gabapentin it seems less severe. I've got to the point I'm not embarrassed in public places. I used being on a cane, walker, or scooter, others figure it's AOL related. 🙂💕🙏🌼

Mar 04, 2016 12:31 PM

When I started new meds for my PTSD and bipolar II, I started getting hand tremors. Not constant at first, but now I'm knocking things over clumsy at times. I hate it, but these meds are working fairly well right now.

Mar 05, 2016 9:03 AM

7Autoimunes yes I have pain along with the tremors but the tremors only last 1-3mind...I'm just really confused and my doctor is not m much help

Mar 06, 2016 5:51 PM

Try to get a referral to a Neurologist if you can. They cover tremors and spasms.

Mar 06, 2016 8:15 PM

Princesschaos I have seen one and he's not really bright.....when I told him about the numbness and tingling in my hand he brushed it off but still told me (after 2 mris) that I have fibro....so I'm mostly just trying to find out what's common and what I should freak out over.

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