Welcome NigelRL. I don't have CRPS, but I have many other chronic pain conditions. Many in our community do have CRPS, and I'm sure they'll be glad to provide advice, along with support, a listening ear, or a shoulder, as we all are. I hope you will find our community as helpful as the rest of us. 🙏🌼
NigelRL, welcome to our community fm it. I am glad that you found us. We are all here to help where we can. I have been diagnosed with CRPS/RSD and the pain and burning are absolutely horrible. Seems that all of the areas that I have had surgery on gets infiltrated by this horrible disease. I hope that you can find a good team of doctors, to all do testing and workups and find some sort of treatment that works for you. Hang in there and again, welcome to our community!! 🌻🙏🏻
What is CRPS & RSD? I suffer from nerve pain all over now with my extremities being really bad. My thumb and fingertips on my rt hand feel like they are being held to a hot burner. The left hand is staring to do the same on occasion too. Involuntary muscle movement, jerks , ext... Burning sensation in various areas of body. Every time I ask a Dr why this is happening, they say their not sure why.
Ty ty. First CRPS, Complex Regional Pain Syndrome. I had a hip replaced, the hip works but they damaged nerves in my leg meaning no power to foot and the developed CRPS. My brain has remembered the original pain source and keeps re running it. It can also spread. I originally downloaded this app as I wanted a good pain diary. I'm about to be assessed for a new group therapy initiative. I am a.group leader in the JGF group a support group for this syndrome. So I hope we an have a good flow of wxperience, knowledge and banter
Hi Niger. I have always have CRPS, as well as Progressive Hereditary Spastic Paraparesis, Chronic Pain Syndrome, Osteoarthritis, Lymphedema and Borderline Personality Disorder. I have CRPS IN my feet, ankles, legs, knees , thighs abd
and I've also been getting the same pain in my buttocks for the last 2yrs. I take max dosage of Paracetamol, max dosage of Tramadol, 4,800mg Gabapentin and 5ml Morphine when needed. My pain levels are out if control. All my pain meds do us take the edge of. My pain surgeon is pulling his hair out trying to treat me because I am so complex. I am due to start a course of Lidocaine infusions in London next Friday. There us a good chance they won't work. If they don't I am screwed. I have absolutely no zero options available for any other kind of pain relief. I went to a specialist orthopaedic hospital today to orthotics to be recast for a new night splint and specialist adapted orthotic boots. Vibration of ambulances or vehicles in general cause me agony. 2hrz in an ambulance wearing just socks, with my legs and feet cushioned as much as possible with pillows. I feel in so much pain now and so exhausted I don't know what to do with myself. I'm really sorry for going on x