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New here. Have few health issues

Mar 28, 2017 2:32 PM

Hi, I'm Sue. I have fibromalgia (2006 diagnosis) C.O.P.D (2008 diagnosis) S.V.T (irregular fast heart beat) (1983 diagnosis) Ménière's disease. Coccydinia, I.B.S. Restless leg syndrome. Trouble sleeping, sometimes I can't sleep for a whole week despite taking sleeping tablets.
I am taking about 12 prescription meds, a day plus anti sickness meds, oral morphine liquid & 50mg tablets twice a day. Now I'm stuck in a wheelchair, I feel so totally alone and useless. I also lost my 24 yr old daughter from cervical cancer 3yrs ago, my 5 mth old granddaughter died 17th dec 2015,
I'm totally alone and friends & family have all let me down leaving me to attempt coping on my own. Hubby gave up work in 2006 to be full time carer, but even he has changed as well, it feels like he don't want to be here anymore. We barely talk either. I'm so lost and have nowhere to turn, &im at the end of my rope. Please someone help me. Thank you

Mar 28, 2017 7:43 PM

Sounds like you got dealt a really really shitty hand of cards. I am truly very sorry for your loss. I cannot imagine the loss of my child and grandchild. Please sit and hold your husband and explain how you feel. He is probably having many of the same feelings. You are not alone. There are many of us here that are more than willing to try to help you. Most men are not very good at communicating their feelings, unfortunately men get taught very young if they talk about their feelings they are weak or sissys. I find it sexy when my man can talk about his feelings. He probably thinks that by taking care of you, you know he loves you. Both if you need to sit together and hold eachother and just talk and talk and talk. The amount of loss that you both have suffered is unfathomable. Please try to pull together instead of pulling apart. Maybe see a psychiatrist to get the conversation started. I truly wish only the best for you. Their are lots of great people here and no judgement so vent if you need to. No subject is off limits we have talked about pretty much everything. PM me if you would like to chat more personally.

Mar 28, 2017 9:49 PM

Hi scoobie65 I'm truly sorry for all you and your husband has gone through. . I agree with LMB lots of guys just shuts down. And what you both been through it is very understandable. Don't give up on eachother. You both needs eachother more then eachother knows . I could never imaging that kind of pain .

I wish you both the best . And like LMB said try to do whatever it takes to communicate. Or just hold eachother and cry if you need to
πŸ€—πŸ€—πŸ€—πŸ€—

Mar 29, 2017 10:25 AM

Hi
We lost a family member 9 months ago. She was only 7 months old and died of sids. My thoughts are with you and your family

Mar 29, 2017 4:02 PM

Lizkurn. I am so sorry to hear about your lost as well.

Preyers are with you and your family . Yours as well scoobie65 πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—

Mar 31, 2017 12:12 PM

Thank you everyone for ur msgs of support, they have been the most supportive I've had in over 3 1/2 yrs. I been stuck in my room since my daughter left, as fms has really knocked me, it's been so much worse as have other health, all so called friends soon stopped texting & visiting, including family. I've even tried od on all my mds but hubby found me, and was on life support 4 24hrs, I've never felt so alone and abandoned. My hubby ain't the sort of bloke u can talk to, & I have no1 to turn to. In this world, how it's changed, now you find more support, understanding and care from strangers than you do from family and friends. I hope this site is the place I've been needing to find to help me through, and hopefully I'll b lucky enough to find REAL friends.
To lizkurn, I'm so sorry for your loss too. It's very hard to deal with

Mar 31, 2017 12:16 PM

LMB, Hi, how do I pm you pls?

Apr 05, 2017 5:54 PM

You need to be using Pain Companion app not Catch My Pain. Just touch my name and it will take you to my profile page and there is a box there that asks you if you want to private message that person. Then start typing :)

Apr 05, 2017 9:33 PM

Scoobie, you are dealing with so much! I'm sorry things have been so bad for you. I don't post here as often as I should, but I try to read posts most nights. I've been slacking the last few nights and I'm sorry I didn't see your post sooner. :( I've been just over a week now where my shoulder just won't stay in so it makes typing a bit rough. Men don't express themselves like women do that's for sure. But then I come from a family where no one, male or female, expressed feelings. So when I get down or in lots of pain I get even quieter than I am normally. I guess what I'm trying to say is just because your husband doesn't express his feelings, doesn't mean he doesn't feel. I hope that makes sense to you.

Apr 05, 2017 11:53 PM

Oh Scoobie, my heart goes out to you! I am so sorry for all the pain you've been through and are still going through, and knowing your family and husband have acted the way they have makes me so sad! I understand feeling that way, as I've been in pretty much the same situation. I'm homebound approximately 95% of the time, and my only social life is online. I created a support group on Facebook for anyone who lives with chronic illness of any kind, or chronic pain, or for those who love someone who does. You're welcome to join us there- anyone and everyone is welcome to join us. The group is called "Coping with Chronic Illness/Pain" and the url is: https://facebook.com/groups/880299938751016/

Apr 07, 2017 9:36 PM

Welcome to our community family Scoobie65! I haven't been on in awhile because we're dealing with multiple family stressors for over 6 weeks. I was on here trying to catch up on just reading posts. And though I hadn't planned to post responses yet, I just wanted to post and let you know you are not alone. You have a new circle of friends here, a new family, who doesn't judge and truly understands what dealing with chronic illnesses and pain is like, and the toll it takes on everyone around us. And I'm so very sorry for the kids off your daughter and granddaughter! I can't even imagine what you must be feeling. But I'm sending you warm & gentle hugs!

I've had many years of chronic illness issues but not like yours. But I primarily had a healthy life until 2007-2008, when things slowly started to compound together, the the train derailed in 2010 and I've been headed downhill since. We are all different and we all have to find our own ways of coping with the changes to our bodies, relationships and our lives, we are each unique, and no one thing works the same for everyone. My ways of coping have been talking to my hubby to listen and share how this is affecting both of us; staying positive as much as I can by finding things in my life to be thankful for; finding little things to enjoy in life, like getting a new dog a year after losing out last one because I was so lonely during the day; taking every day one day at a time, one hour at a time, and one step at a time. And my biggest coping methods is knowing that God loves me, all of me, believing that He's using what I'm going through to teach me and/or others in my life how to deal with a non-perfect life; my faith and trust in knowing He has never let me down is my lifeline. I've been suicidall before but I'll never let myself go back there again; I get counseling and take antidepressants and anxiety meds, among all the many other meds. And I know how to reach out and ask for help.

This community is great, filled with wonderful n new friends. I stumbled across it at one of my lowest points. It's been a blessing in my life. I hope you will find it so too. There's lots of support, advice, suggestions, and just listening ears and shoulders to cry on. We are here for you, for each other. Sending you hugs love & prayers of healing from your losses! πŸ˜ŠπŸ’•πŸ™πŸŒΈ

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