Hi everyone! I'm new here and my english is a little bit rusted.. or just bad! So, I'm sorry!! I can understand and speak but if there is persons who speak french it'll be easier for me! :)) for the others... please be gentle with a non native english speaker ;)
I need some advices about how to live with pain... it's horrible... all the time... day and night...
Am so sorry Lilith. I wish I could speak French. We have people from all over the world here so hopefully there will be someone. The great thing is that we really don't mind if someone's English is bad or their typing is bad or spelling bad etc. Its you, the person, that we care about.
Am sorry you are dealing with pain. What type of pain is it? Do you have a diagnosis? And what have you tried?
Merci beaucoup BattlinKat pour ta réponse!! Si c'est plus simple pour toi de m'écrire en anglais il n'y a aucun problème je le comprend mais si tu veux pratiquer ton français c'est avec plaisir! Tu te débrouilles très bien en tout cas!
Quels sont tes soucis de santé? Belle journée à toi et à bientôt j'espère!
I have a thyroid's cancer, endometriosis, psoriasis (on the shoulders, back, arms, face, legs,...) and rheumatoid arthritis (shoulders, one hand, knees, elbows, hips, back...) and the problem is that the doctors say that I can't take immunosuppressants because of my cancer (he says that is very very dangerous for me) and if I take it, I'll can't have a child during more than 5-6 years... and I'll marry in 3 month and we WANT a child...
The other problem is that I think is not fair for my fiancé to assum my health issues... and, maybe, never be able to have a child because of ... me.
The last problem is that if I don't take a medecin... the doctor says that maybe in 1-2 years I'll have problems to walk, to work, to dress myself,...
Maybe you have an advice for me? How can I do to accept this and live "like a normal person" with this?
Thank you for your help et sorry for all that complains... read the posts of others persons really help me. I see here that I'm not alone... thank you...
Hi Lilithm. So sorry to hear you are struggling! It is true taking immunosuppressants when you have cancer are dangerous as it causes the cancer to grow faster. There are some medications used to treat cancer that also help RA like methotrexate. It does mean not having a child during this time because of the high risk of birth defects.
I suggest you see a fertility doctor to discuss options. You will get good advice about preserving your fertility. Perhaps freezing some embryos for the future or using a surrogate.
Have you considered seeing a naturopathic physician for treatment? There are some herbs like turmeric which slow RA. This may also help with your cancer treatment.
You are a "Normal Person". We all have struggles in life. Looking from the outside we just see "normal", but we don't see depression, loss, infertility, debt, addiction, responsibility and pain. I try not to compare my life to others. I would never give up this pain to miss out on my friends, my family or all the experiences I have had. It makes me strong. It makes me who I am.
Welcome Lilithm. Bonjour! My french isnt good sorry. Sorry to see you are going through this pain. I also have Rheumatoid arthritis newly diagnosed living with Fibromyalgia for over 12 years too. Have thyroid benign tumours. I feel your pain on the situation it is hard to live with children and the conditions if your fiancée is with you now then I am sure he will be great later. Ive progressively got worse over the last three years where my discs tare I cant move at all hubby is good and lifts me helps me all he can. Talk to your partner about how you feel and your fears for the future he will be understanding. We are in this together xxx
Salut fragilejoints! Je suis désolée d'apprendre ça... courage!! Tu arrives à le vivre comment si je peux me permettre? Je veux dire, au quotidien, au travail, pour la vie de famille...? Je ne sais jamais si je dois ou non parler aux gens de mes problèmes de douleurs et de mobilité au risque de passer pour une chouineuse ou ne rien dire et passer pour une flemmarde (le fait de parfois prendre l'ascenseur pour juste un étage au lieu des escaliers par exemple)
Belle journée à toi en tout cas! Au plaisir de te lire!