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Nov 22, 2015 6:11 PM

I posted this morning about how I've been living with fybro for 6 yrs management is fine. I also have avn and a metal hip. Now I'm newly diagnosed with graves disease. My pain lately is aweful. I can't get anymore injections until my heart gets straighten out... How to we cope with all these diseases at once?? I'm so uncomfortable that I'm going crazy in my own head!! No family to help me. No friends. Husband is working out of town. I'm over emotional cause of the hormones being crazy. I wasn't like this when I was pregnant. I hate it. I'm miserable..

Nov 22, 2015 8:26 PM

R u on meds to help with anxiety. .I know I am on effexor daily and xanax

Nov 22, 2015 8:27 PM

I am new here as well so I don't know a whole lot about other diseases other then all I am dealing with

Nov 22, 2015 8:36 PM

Jenni, welcome here. This is the place to be with the situation you find yourself in. Dealing with many medical conditions can make you feel like you are going crazy. It is a lot of stress and to compound those problems by not having a support system around you. This group is a wonderful place for you to voice all the things you are feeling when you are stressed or in pain. You can post and the subject can just be rant. and you can tell everyone what is going on. They will offer you their kindness and understanding. Many times the kindness shown here is better than our own family can offer because it is based on compassion and empathy and an understanding of what you are going through. Just give this place a chance. Take some time and tell us a little bit more about yourself and your history and what really is going on with you. It will help you and it will help us get to know you better.

Nov 22, 2015 8:52 PM

I dont know anything about the Graves but I know what it's like to be in pain all the time.. Gentle hugs

Nov 23, 2015 1:23 AM

Sorry it's taken me so long to get back to y'all. I did fall asleep with my 4 year old.

Ajremphrey. No I do not take meds for the anxiety. Probly should. However I take a lot of meds already. I don't want to add more meds unless absolutely necessary.

Nov 23, 2015 1:35 AM

Profiler... Thank you.
My situation I was just diagnosed with the graves disease. My immune system is attacking my thyroid. I'm stressed, tired, fatigued. My muscles ache n I'm losing weigheat a fast pace. Most nights I get very little sleep. So far tonight 3. I did play with and read to my daughter b4 we both fell asleep.
I cry at the mention of a sneeze lately.. Well it seems like. I was diagnosed with fibro in 2011, avn in 2012. Hip replacement in 2013avn is a bone disease where the blood flow to the bone is compromised. My spine is ate up with mylpoathy with stenosis.I'm 37

Nov 23, 2015 9:08 AM

Try 2 things, essential oils, and remove white sugar, and also, nature scape music at night, use Pan--ra to find the music.

Nov 23, 2015 11:42 AM

Thank you zetarlov

Nov 25, 2015 8:57 PM

JenniC, some of the emotional instability is from the hormone changes due to the thyroid/Graves. I have h hypothyroidism and until I was put on meds I felt all over the place at times. I am on an antidepressant and have anxiety meds to use as needed. I've had anxiety since the late 80's so I've learned how to identify and redirect my thoughts and feelings, to avoid full blown attacks. When I can't I take the med. Maybe you could get your doc to prescribe something PRN.

I know it's not easy. I had a full meltdown due to postpartum hormones when my kids were 4 & 10 months. I spent 2+ mood in a psych unit, and I'm thankful for it. It was hard on my whole family, but I was in no shape to care for myself, let alone my children. As Profiler said, use the community as your support network. We're here for each other! Hugs & prayers! πŸ™πŸŒΌ

Nov 25, 2015 9:11 PM

Flappylady81 hi hun. Yes I finally this morning went to the endo Dr. She raised the proponolol to 4x a day because it wears off at about hour 6 and my heart would be rasing... Also methimolzone or something close to that name.. The hormones... Were going to do the radiation to kill the thyroid...

Nov 25, 2015 9:11 PM

Jenni, I understand not wanting to add more meds. If you can get to a herbal store, look for kava root, or valerian root. It will help you with the anxiety but not space you out like xanax or other stuff can, especially with a 4 yr old. Welcome and know that you are safe here. HugsπŸ’•

Nov 25, 2015 9:14 PM

Thank you... I used to take adivan years ago... But she just raised the beta blocker to treat the anxiety.. Once the hormones kick in I'll be tapering off the beta blocker... Hugs to you both flappyl and ceareaπŸ’ŸπŸ’ŸπŸ’ŸπŸ’Ÿ

Nov 26, 2015 6:30 AM

Jenni, I am sorry you have so many medical conditions. This must really get you down at times. You have really come to the right place. Some days you may just want to yell, why is this happening to me? And we will listen. Some days like you were saying you find that you cry a lot and we will listen to what is getting you. It is nice that you have a four year old. She must make you smile while at the same time cause you to do things for when you do not feel good. But they bring us so much joy. Being a father was the biggest accomplishment in my life. I felt honored that God blessed me with two children. They are exhausting but so worth it. But I must say I had the help of my wife to raise them. I don't know your situation. I hope you have the help of a spouse. I imagine it would be very painful physically for a chronic pain patient to raise a young one.

One thing that helps me when I am in pain and maybe can help you is biofeedback. It takes practice. But if you work at it, you can become really good at it. If you need help with it let me know. I have become really skilled at it. When I am in a lot of pain, I will go to bed and make everything below my neck go numb. It really works. It is cool to think you have that control over your brain. Take care Jenni. I hope things get a little easier for you and your pain gets lighter. I wish it would go away but I know for most of us that is not realistic. Best wishes. πŸ˜€

Nov 26, 2015 7:07 AM

Thank you Profiler.,. My four year old is my god daughter. Her grandparents just found out that I had her. They want her. I've had her for over a year. I am married but he works out of town. So it's pretty much her n I. Those days where I hurt so much. They are full of snuggles and movies. (She would do this everyday if she could) and doing mommy's hair. She's such a blessing... So what is biofeedback

Nov 26, 2015 7:48 AM

JenniC, Among all of my diagnosed "issues" (Fibro, CRPS/RSD, scoliosis, DDD/DJD, SI Joint disfunction with fractures, spondylosis, etc.) I, too, was diagnosed with Grave's Disease in 2000. I couldn't understand why I couldn't calm my body, had palpitations, went for a week at a time without sleep because my energy levels were through the roof and I kept feeling like I was having horrendous panic attacks (like every day!) I went to an endocrinologist and they did a thyroid uptake scan and blood tests and I was subsequently diagnosed with Grave's Disease. They removed my thyroid and put me on Synthroid (which does take time to adjust the dosage to get you to a stable place. It was the one time in my life I didn't do research before I went ahead with treatment. I was never told about "the storm" ahead of time. When your thyroid is gone, your hormones get so messed up that I couldn't function. I also couldn't keep myself awake. I would go to work and be on the phone and fall asleep and I would not even feel it coming or know I did it. I would also have wicked mood swings, deep depression, worse anxiety and I couldn't leave the house sometimes. I'd literally be on my knees with my head in my Mother's lap and crying. I'd go to bed that way and wake up that way and that frustration would lead to the same scenario the next morning (I can't even tell you how much work I missed). At any rate, while they were trying to get my meds situated, I'd only be able to drive locally because of falling asleep. The endocrinologist was trying to help me and then it was constant appointments there and with the gyn (because your body is thrown into menopause). Well, I was at work, drove home and 2 blocks from the house, I fell asleep at the wheel and had a head on collision. I can only say that ever since, I have not been quite the same. I now tend to go the other way (hypothyroidism) almost to the extreme. (Sometimes my fault because I forget my synthroid). It's really a pain in the ass to deal with along with chronic pain and all the other diagnosis I have. Seems to be that Fibro, hypothyroidism and Sjrogens all go hand in hand. There are many other things that seem to go hand in hand as well. I know I've rambled and was a bit long winded here and I don't even know if I made any sense..LOL!! (Dealing with Fibro Fog and in a dual flare.. Hopefully the END of a dual flare). At any rate, things will get better. I did have a breakdown during the time of this whole ordeal and went to a psychiatrist and therapy. It was somewhat helpful. Today, I am who I always was, a lunatic with a fun loving heart and a decent sense of humor and a drive to help others and make a difference in other's people's lives. I hope that you find a way to cope with the emotions, the physical symptoms and how to make it all work with the other issues that you've been diagnosed with. (I know you will). We are all here when you need us so please know that you're not alone. Sending you reassuring {{{Hugs}}} and prayers that you have a peaceful and lite pain day!πŸŒ»πŸ™πŸ»

Nov 26, 2015 7:53 AM

Biofeedback is a pain relief measure that we use our own body to relieve our pain. We control the use of our brain to ease our pain. I will explain how to do it. You have to lay down and it is best to give yourself some relaxing music. Preferably something without words so you are not distracted. Before you start, draw a picture in your mind. Pick a place that you would like to be at that would make you the most relaxed ( beach, lake, ect.) . Then put things in that picture like a swing or hammock. Put trees, pond things like that. Make it very relaxing. Keep that picture always in your mind while you do as I say..

With the music going and the picture in your mind, you are basically telling your brain to start at your toes and work up to your neck making your body warm and numb. But you do it in steps. So I start at my feet I tell my brain to make my feet warm. I imagine them warm. As I think of my picture and I imagine them warm, they actually start to get warm. During this process, you are relaxing and slowing down your heartbeat. So when your feet become warm make the area between your feet and your knees warm. Direct your brain, imagine, focus on the picture. This is more area to make warm so this will take a little more time. It usually takes me like four minutes. Don't concentrate to hard. Relax. Don't advance to far or you will not get the full affect. As you make those area warm, they will become numb like. During this time, you might see your body do little jerks. This is what your body does when it comes under complete rest. We do this when we are asleep. Just slowly work wor way up to your neck and then don't move. It feels so good. If it is successful, it is better than pain pills. I hope it works for you. Good luck.

Nov 26, 2015 8:17 AM

Wow Alwayzinpain you just described me to a T!! She started me on hormones yesterday, raised my beta yo q 6 hrs. I had no idea this went hand in hand with fibro. Seems like everything I get DX with does. The bladder pain I have does. Stupid right....lol honestly when I had to call 911 I didn't go to the Dr about my symptoms because 1. I went in January to my gyn n Nada... 2 after that I figured I was just having hella bad fibro flare, allergies, etc.... Moods unstable yes. I did send my daughter to memaw's house for 3 days. She came home last night. I did that so I could figure out how to manage... And meditate... And talk to ppl. This is most definitely the hardest diagnosis I've had even compartto the avascular necrosis. Simply because its depression, emotional,anxiety, and those damn sweaty hot spells that I wake up from n stand at the door next to naked now!! I love your support Always. πŸ’ŸπŸ’ŸπŸ’Ÿ so very thankful {{{Hugs}}} to you love.

Nov 26, 2015 8:22 AM

Wow thank you profiler... I've been trying a hipnosis app that is similar to this. It was originally for weight loss I was 30 lbs over weight (until the thyroid was attacked) now I'm a little over 10... I loved it.. Thank you so muchπŸ˜€

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