Feeling so foggy. Hard to put into words, a lot of frustration as I try to struggle through my days. My family not very supportive. Tired of hearing of what's wrong, so I don't talk about it much with them. Alone during the day, everyone at work or school. So I am expected to keep house after everyone because I don't work. Haven't been able to, so how am I going to do i t all by myself?
Welcome NeNe! I'm sorry you feel alone and unsupported at home. I've been trekking this road since leaving my job in 2010 for a very complicated surgery. Every year since 2010 I've had at least 2-3 new diagnoses added, either Autoimmune, or chronic pain or other lifetime health problems. I didn't accept my current life until 2014, in denial that I'd never work again. It was a grief process over what I've lost in my life. Once I got past that I began to focus on what I do have, what I can do, what I can enjoy. I also rely heavily on my faith in God. And I take it one day at a time, one step at a time. On days I can't do anything but rest, that's what I do. And on days I'm able to do anything I prioritize and start with the most important. If I do one thing that's just as ok as if I do four things. My hubby was not so supportive until 2015 when he met my rheumatologist. She educated him about many of my issues and now he's my biggest supporters and advocate. Try to get your family to go with you to appts, to help them understand. Like all of us, this community is full of love, care, and support, because we're all share chronic pain knowledge, regardless of our diagnoses. You can come here to laugh, cry, vent, chat, ask for prayer or positivity from us, whatever you needed. No judgements because we all get enough of that in our offline lives. Sending you hugs, love & prayers your family will become supportive and you'll get help with your pain soon! 🙂💕🙏🌸
Nene. I feel for you....i have a husband and 2 cats and 1 dog...zit can be just exhausting just thinking about cleaning......my parents even bitch and yes mom has fibromyalgia, but not to the extent the i have.....mu head feels like there is some much going on that i can not even hear myself think.....my hysband is great, he takes care of me when he is home......Nene, i wish you well on your own terms
Nene, welcome aboard!!! I think you'll find this a really good place to be. Hang in there and know that there are folks here ready and willing to help. Try to keep a positive outlook (I know it's not always easy), but look for the gifts in each day. No matter how bad, you can always find them. Try to get outside and let the sun shine on your face.. sending you positive vibes, good karma and well wishes. Hope you find the support you need here.. 😊