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new here..looking for advice or similar stories..nobody's been able to help me

Aug 08, 2016 5:27 PM

Hi, I've had constant arm and hand pain for the past 2 months. It's never went away once, and intensifies with activities such as typing and clicking. I was playing piano for half an hour a day when the pain started. For a few practices, my fingers hurt while playing. Then one day, my whole arm and hand started hurting. My nerves are fine. My feet have been sore for two years, I don't run anymore. One physiotherapist suggests this theory: in 2014, I had an ATV accident and mild concussion. My feet started tightening and 6 months after they started to hurt. They were not healed, so, my back and arms started tightening in warning, resulting in my back pain and constant arm pain. Also, now instead of only me feet hurting, my legs have started to hurt as well. I'm 15. This theory seems plausible to me, I am wondering if anyone here has a similar case. I think that only a very good therapy will heal me, it is hard to find someone who knows how. I exercise, stretch, and foam roll throughout the day. I'm miserable. Do you think changing my diet will help my healing/ Or taking supplements like magnesium nitrate and fish oil? Please share your stories, if they support the theory mentioned above

Aug 08, 2016 5:28 PM

Also, I get headaches when I exercise

Aug 09, 2016 3:16 AM

Welcome to the community, flowing. I had the same problem with my hands and arms but my legs were ok. Pain got a lot worse when I was working at the computer. First they thought its carpal tunnel syndrome but that was ruled out. After a long time, my physical therapist discovered trigger points in my back, shoulder and arms which seemed to cause the pain. Check out the patterns on this page http://www.triggerpoints.net/ and if you find one (or several) that matches your pain, show it to your therapist. Let me know if that was of any help.

Aug 09, 2016 3:18 AM

I forgot: I had dry needling therapy on the triggerpoints. That helped but I had to make a lot of changes in my life in addition to the therapy: regular exercise, setup my working space in a proper ergonomic way and much more. I also found a "foot mouse" on the internet, which allowed me to work at the computer without using my hands.

Aug 09, 2016 4:04 AM

Hi sweetie 🌷
Welcome to this fabulous community 🤗 so nice to meet u angel x

Aug 09, 2016 4:05 AM

Thats so cool Dan... ive not seen one of those before! ✌

Aug 09, 2016 9:37 AM

An accident can trigger lupus. Have they looked into that? If the pain is in your joints then your describing a part of what lupus is like.

Aug 09, 2016 11:25 AM

This is very similar to how I ended up at the Mayo Clinic and was diagnosed with RSD. Only mine was feet first, surgery on the left ankle was enough to trigger the RSD. I also have carpal tunnel, but lost full use of both of my hands 3 months before my wedding and it took 4 months to get it back. Have you had a recent EMG?

Aug 12, 2016 4:30 PM

Thanks for the suggestions, Daniel. I'll try to do more research into trigger points, although I'm not sure if they are my issue. It seems that referred pain is more localized, and occurs only in some places, whereas in my case everything hurts. I might be wrong. I never would have thought of a foot mouse! I'm currently using a Wacom tablet with a stylus instead of a mouse. I think the biggest issue is finding a good therapist that knows what's right for me..very hard to do. Does anyone here know of good, reliable forums for finding health care practitioners?

Aug 12, 2016 7:01 PM

Daniel, thank you sooooo much for the links to such wonderful info!! Now I can pinpoint exactly where I hurt the most for my first visit to rheum. 😊

Aug 12, 2016 9:06 PM

Hello FlowIngg !! Welcome, I am also 15 who had suffered 2 major concussions. One is still in effect after 10 months! I am on round 2 of PT. I under stand that after a concussion things happen. I get very bad leg and knee pains because I have done some damage to my upper and middle spine, if you need any help I am here 😄 have a great day ☀️🌷

Aug 12, 2016 9:11 PM

Also my headache "attacks" happen after lots of mental and physical exertion❤️ I take extra Vitamin D3 to make my bones stronger, but don't do it until you have consulted with a professional👍🏻

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