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New I cant manage my fibromyalgia

Oct 29, 2018 3:51 PM

Hi I can’t manage my fibromyalgia at all I can’t sleep and I have no clue I have been left to get on with it and I can’t think I start something then forget and do something else I burn myself out . I can’t get to grips with this and would appreciate anybody that can help me

Oct 30, 2018 2:59 PM

I'm sorry for you! Hopefully you can find good professional help. Meditation/mindfulness may help. I know someone who rated all her activities, gave them a few points (cleaning toilet is 2 points, having dinner with friends 10) and then knows how many points she has for every day. My own experience in addition to this is that you have to make choices and take good care of yourself. And ask for help! Good luck.

Oct 30, 2018 4:33 PM

I would request a referral to a rheumatologist or pain specialist from your GP. The Paintoolkit is very good - don't get the app it's crap but the website is definitely worth a try. Keep on top of your meds. Hot baths with Epsom salts are a godsend. Write a list of all the things you need to do, prioritise the most important and stick it on your fridge or a place you will look at regularly. My friend told me to get a journal and write stuff in there to remind me - I forgot to check the damn thing! 😂 Tens machines are good, definitely worth a try.

The best thing I can say is give yourself a break. Be kind to yourself - fibromyalgia is a bitch. Love yourself and give yourself time.

Hope some of that helps!

Take care

Love Hayley x

Oct 31, 2018 7:04 PM

You are at the point that my niece was at. Her doc made her go gluten free. She rarely has bouts now.

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