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New information about my fibromayalgia..

Dec 08, 2015 11:44 AM

So my mom and dad have home health nurses now.. That is gonna be great . it's gonna cause for a busy house now but its OK..
So while the nurse was here gathering all the information . she inquires bout me and my health. I told her bout my tumors and fibromayalgia she mentioned that its linked to a virus that attacks the nerves. Has anyone heard if this? I know it has a link to Lupus but what about this virus theory? She mentioned bthst the lyrica would only help my pain not the progression of the fibromayalgia.
So what are your thoughts. Has anyone had this said to them.

Dec 08, 2015 8:54 PM

Fibromyalgia is a long-term problem that causes pain in the muscles and soft tissues of your body. It can make you feel tried and ache all over. You may have no energy or have trouble sleeping. These and other symptoms can be bad enough to affect your work and home life. Symptoms tend to come and go, but they may never go away completely. There is no cure for fibromyalgia, but doctors can treat and control the symptoms. I read on all the symptoms I'm going through. Hope Everyone well on every situation they going through as well.

Dec 15, 2015 10:35 PM

I have not, but I'm curious to know more. Please share if you find out the name of the virus. And I'm so happy you will now have help you desperately need with your parents! 🙂🙏🌼

Dec 16, 2015 1:34 AM

Yes the ebstein bar virus, there are 60 different types of the virus. Cure is juicing celery, greens, any kind, and blueberries. There is more info in a book I have if you want to know about it.

Dec 16, 2015 5:07 AM

I'm so happy that you got help with your parents, hopefully you will be able to get some much needed rest. Like Flappsy said I have never heard that Fibro was caused by a virus, keep us posted on that.

Dec 16, 2015 10:03 AM

My doctor has not yet confirmed weather my fibromayalgia is from a virus or not just yet. But I will let you know what I find. I actually forgot to bring the list I wanted him to see. Ha.. Dang fog...
Moshell.. I don't juice in the traditional sense but I do fruit smoothies and protein shakes and I eat salads and fresh raw veggies at least five times a day.
During my appointment.. Which um nkt sure if it was good or bad yet I had one of my episodes in front of the doctor where I lost my train of thought my my words were slurred and jumbled for several minutes. So he now has me going for several test and studies..

Dec 16, 2015 10:52 AM

It's really good that you had an episode in front of him. It sucks that it has to happen at all but at least now you don't have to try to explain it to him, he saw it for himself. Now that he has, you'll get to the bottom of what's causing it. Sending you gentle {{Hugs}} and prayers that you find out soon and that it is something that can be easily remedied.🌻🙏🏻

Dec 16, 2015 11:00 AM

I agree alwayz.. At first I was embarrassed but he was very kind and gentle and I left feeling confident that its gonna be OK..

Dec 16, 2015 11:08 AM

Newfibrogirl, it really IS going to be ok. You'll see. Your pain family is here and standing by to help you through this. The waiting part is the hardest part. You're strong and you'll get through it. You know that I'm here with a hand at the ready for you to hold. Sending you love, gentle {{{{Hugs}}}} and prayers. I hope that today is a more peaceful day and that you have less pain and peace of mind.💕🙏🏻🌻

Dec 16, 2015 3:54 PM

My mom just sent me a link to it yesterday, I'm going to be doing some more research into it and try the different tings it says to help and see what happens :) Here is the link, I encourage reading it in its entirety, especially the last paragraph, it was very informative and included several matching symptoms so it's very possible!

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