Hi Flappys, truer minds! I am having difficulties with my neck, too. I know you are thinking "if she just would not pummel her pillow into a ball and scrunch up on the headboard=🙄 no neck pain." Well, I stopped doing that behavior! As sand=neck pain ugh. The knotty part of my head behind my l ear is so sore & muscles in shoulder & back. You have any ideas what yours is?? Or mine??
Lol I use to do that with my pillows too. I have one of those contoured pillows for back sleeping, where the back of my head & neck are cracked. You're supposed to be able to flip it around and last on your side but it isn't high enough. I bought a super thick side sleeper pillow with memory foam for that.
My worst pain is at ear level, where the skull and neck meet. The left is the worst side. I feel a grinding and painful popping when I turn my head or look up or down. The neurosurgeon says it's a combination of the OA, facet stenosis, & formula stenosis at C2. He also said a lot of the pain is coming from C3 (retrolisthesis, sliding back into spinal cord). That's the one they're doing surgery on in 2+ weeks. I'm terrified of the high risks, and try not to think about them. But he said if we do nothing it's a sure thing the disc could suddenly compress the spinal cord &/or nerves making me a quadriplegic...just a matter of when, and it could be a sneeze, cough, fall, or wreck to do it. The surgery is worth the risk.
Oh Flappys! This is news! So you do know what it is & what they want to do about it. I certainly will be praying for you. Yes, it is scary. You are in God's hands with this one. All manner of things will be good!!
That would be pretty bad pain, bee stings just down right hurt I feel like a 6 every day and even worse for other days! I certainly understand your pain and it is not fun I'd like to tell you about pain zoning,a all you do is go into your own world and think of nothing at all that is what I do for pain management and I find it works, I vegetate for no more than a couple of minutes and I have a tolerable pain level or no pain at all and the spacing out h
I love this. as a nurse SINCE 1977 and a patient of pain since 1989, I try to "KISS" keep it simple sweetheart when talking about pain to my patients.
I use the 1/10 scale with 5/10 "I am painful and I still want to do something but I need to sit down a minute" to 6/10, "excuse me but I really cannot get out of this chair I am in so much pain." 1-4 are luxury for us allowing us to APPEAR HAPPY.
7-10 are degrees of misery we are suffering and really can not take care of anyone else, I need to take care of myself.
I was told something very wise by a co-worker on the (PCU) PROGRESSIVE CARDIAC UNIT) "Remember, you can not be a caregiver if you do not take care of yourself first". Whenever I think of this I remember even JESUS took time by himself. In the garden and in the wilderness.
If you think about it, one is a place of peace the other place of pain. If he had to take time for himself who am I to think I could do better.
I will add one more which is 20/10. This I call a "STORM"!!!!
This is uncontrollable screaming PAIN that comes in waves, you have to put a pillow over your mouth because you do not want to scare anyone but "NO IF ONE MORE PERSON ASKS ME WHY I AM SCREAMING, I WILL CRY, JUST TAKE THE PAIN AWAY aAND PUT ME OUT OF MY MISERY!!!!!!!"
um is there something in the air? My neck, left side, up behind my ear and when pressed, I can feel it all the way down into my calf... Yikes. Reading what the Dr said it could be, quadriplegic, surgery...... Ugh. The pain scale is funny, sarcastically funny. So I should say I've been mauled by NINJAS and feel only unconsciousness or Peter Pan could make me feel any relief. Ok got it!
My drs say if you can sleep than your not in any pain. Hell I am in & out because my body is sooo exhausted!!! New pain scale is helpful. I stay around a 7 on old scale where don't sympathize with me or I'm at that I'll cry point, & 8 to me is crying. So new scale I am about a 6 than.
arh what is your arm/wrist trouble. I've been having it too in my left arm. Had a shot of cortisone in it but it only lasted three weeks. I'm worried it's here to stay along with all the other stuff. 😕
I have gotten to a point where I have trouble assigning a number to my severe pain... anyone else get there? I can tell them the practical outcome, ie: "I can't walk" or "I am trembling and can't stop it" ... but it becomes this huge blur after about 7 or 8... I mean, I KNOW what a ten is, and thank the gawds I have not been there in so long... but 6-9 is just... happening often enough it blurs now...
They give us this limiting number to stand for how our pain is measured, but our normal is no longer the regular normal. My six pain might have a "normie" crying and writhing where I'm just lying still trying to focus elsewhere. We deserve our own pain scale where each individual person's pain is only graded against their own past pain. Individual pain charts developed over visits. Unfortunately there is no doctor out there who cares enough to put this much into us. We are trouble to them. They label us drug seekers, procrastinators, excuse givers, hypochondriacs, exaggerators etc. Doctors, shrinks, specialists all cringe when they read our, very thick, folders. We are seeking, all right, not for pills or excuses, but for answers. We just want to stop being sick. Where's the chart for that?
Now that I can't feel pain that is one way to cope with pain and I was in pain long enough so I just stopped feeling pain for some reason along with a really powerful pain medication regimen but dig this none are addictive!!!☺ So that's a plus and a Zen process that I also use for pain the 3 step Zen process 1. Exercise 2. Diet 3.thought control! The3 step Zen also known as the3 point Zen process which I had and I actually reversed that condition so I do it with pain and it works so give it a try! This probably won't hurt at all! Try it and let me know! I'm truly sorry if it sounds wacky and very corny but it works this is one method that is effective on me and take it from me the 3 point Zen process is a blessing from God! This method will show pain the door and the kick of a work boot O U T. OUT!! AND PAIN WILL GO AWAY IN JESUS NAME AMEN! GOD BLESS YOU!!!😇😎😇😎😇😎😇😎
I actually meant I'm in so much pain I can't understand pain anymore. Unfortunately I can't try the zen process as with one of my conditions I'm exercise intolerant so that's a no for me 😞 I'm not religious but thank you anyway that's very kind of you 💕
I am right there with you, @LittleLola !! It is so hard to understand why they can't measure my pain by my abilities instead of a number... the numbers have become meaningless to me... just one big fog. But I can tell them, "it was bad enough I couldn't stand" for example.
Every time I see a new doc and they ask about my pain I tell them (4-8) but I also show them this scale to emphasize that the worst pain I can imagine would actually kill me. That when I say 4-8 I mean interferes with tasks all the way up to involuntarily screaming. No joking, no exaggeration, either they believe that someone who can’t help but scream out from pain needs help or I never see them again.
Pain bad right now but I am religious & have faith in Jesus to comfort & support which He does! This thread reminds me of who I am Who I have access to. So blatant sharing what I believe & what helps me I hope no one is bothered by this. I find ability to cope with Jesus by my side. I good reminder for facing this winter which characteristically means mpre pain. Stepped out to start aquatherapy yesterday. Sent me in a flare so i know to tone down tomorrows treatment. I will just spak in hot water. God's support & blessings to you all.
Flappyslady81. I love your pain scale. I one more nurse doctor or PA shows me that happy face scale I might just lose my mind. I was thniking of resorting to telling them my is closer to the stages of labor, but I like yor revised pain scale better I think I will use it the next time any one asks me to rate my pain.
Yeah this matches my scale. The problem with pain scales is people who experience different injuries over there life gave a different basis of comparison. It also doesn't account for the impact if chronic. I'm chronically only a 3-4 the vast majority of days, but that can still decrease your quality of life significantly if it's all day erryday.
I just got back from ER due to my pain being out of control. They asked me during the initial intake if I felt like committing suicide? I thought that was a stupid question. I wouldn't be going to ER if I was going to kill myself. They treated me like a drug seeker!! They asked me my pain level 1-10. I said 11. I didn't see a doctor. I seen a Nurse Practitioner. They wanted to give me Tylenol when I said I couldn't take it because I was on Predinisone. They said I couldn't have anything. They pulled up when I last got my pain med from the pharmacy. Who asked them to do that?? They took X-rays and since it didn't show anything they did nothing for me... sent me home like I came in. Told me to come back if I got worst. I guess worst would be if my body caught fire!! I don't want to pay that bill!!!
I'm so sorry that happened to you MySistersKeeper. We shouldn't have to go through that and shouldn't have to direct doctors either but I would suggest maybe coding a pain scale like ones from here and print it, if you go to the ER again bring it with you. Maybe also writ out a full explanation and a brief explanation of your condition and how it affects you including what does and doesn't help and what you can and can't have. I hope this helps. I'm always here if you need support
Whenever ive had to tell a doctor a pain scale i always say a lowet number than i want to because i domt want them to think im over reacting or seeking drugs. Thats sad that i feel like i cant say the number i feel like becaude i want help not to feel like im going to get nothing if im honest.