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New pain specialist

Nov 19, 2015 11:00 PM

I'm seeing my new pain doc tomorrow AM. I am really nervous, the past 3 weeks has been crappy for me with docs. First I saw a psychiatrist who came highly reccomend Who told me I have to go off all my pain meds before he can help me as he just came back from a conference and found out that fibro is caused by repressed emotions, that pain meds are absolutely contraindicated, and my depression will never improve as long as I'm on them. I saw my old pain specialist for cervical injections and he was extremely hyper, jumping from topic to topic, going off on tangents unrelated to ANYTHING we were discussing, AND (I swear this is true) was rhyming my name with random words. My daughter was there and she told him there was no way she was letting him stick a needle in me. So we left. Then two days ago I got a letter out of the blue from my PCP of 22 years saying she and her partner have sold the practice, and are done. I feel like I'm cursed or something. I have never had problems with my docs like this before. My daughter saw her PCP this week and she told her that my old pain doc has actually injured several patients doing injections in the past year so I'm really glad we left but it left me with no pain doc, a very scary place to be. My sister called her pain specialist and got her to take me and bless her heart she got me in right away but I'm kind of waiting for the other shoe to fall and I hate being so negative. Thanks to all of you for being here, just having a place that I can be honest about how I feel is priceless. May God bless you all.

Nov 20, 2015 10:13 AM

Iann, go in with mediocre expectations, not too negative or too positive. Praying this is the doc for you, and that they can refer you to a good PCP.

As for the fibro being "repressed feelings," that's a bunch of horse crap!
He must have gone to a Mayo conference, because honestly that's how both I and my hubby feel they tried to treat me. Mayo's great for many things, but chronic pain issues they aren't... In my opinion. 🙏🌼

Nov 20, 2015 10:29 AM

I can relate. My pain management office just closed leaving me to find my own pain doctor. Not all pain doctors believe in narcotics. But living with pain is far worse that all the depression and anxiety I have. I've had a flair up and actually thought I cannot live like this for the rest of my life. I think I would rather die. My new primary care doctor will take over my pain meds but she told me she would wean me down from what I'm on now. What do we do?

Nov 20, 2015 11:05 AM

My pain Dr decided he didn't like my insurance (part of Medicaid) so he quit taking it. This is the second one and the only 2 that cover our county. It left me and many others with the only other Dr in town who doesn't do injections or anything. Just writes scripts. It sounds like your old pain doc got into his supply of samples or something. It happens more often than you think. I'm glad he didn't get to do the injections even though it left you in pain. If your daughter likes her Dr and she was able to get you in right away, maybe she will be the doc for you. Fingers crossed. As for the psychiatrist, he needs to see one. Fibromyalgia needs to be diagnosed by a rheumatologist or a neurologist or an orthopedic. Psychiatrist's are good for diagnosing mental illness, not physical illnesses. Find a different one. Here for you.

Nov 20, 2015 3:32 PM

My pain doctor dropped me for Marijuana so I'm just tryna hang in here. I can't keep taking morphine, it's killing me but I still got pain. Maybe if I go off all meds I can stroke out. Sucks to be me.

Nov 20, 2015 5:12 PM

Wow, it shouldn't, but it never ceases to amaze me how badly some docs treat chronic pain patients. It's so sad. The appointment went well, she ordered some X-rays and wants to see me back in 3 weeks. She did tell me I have to go off the Opana tho. Apparently the Governer of IN. Is pushing to get it off the market and anyone prescribing it is automatically suspect. She told me to think about which pain med I have taken in the past I would want to switch to so at least she isn't talking no pain meds at all. As far as my old pain doc, she asked me what happened. When I told her, she was very careful what she said, but still made it clear that he isn't well liked or respected by the other pain docs in my area so it isn't just me. Thanks for all the encouraging words, you guys are the best!

Nov 20, 2015 11:33 PM

I'm gonna say, first of all, anyone who thinks pain is purely emotional should never ever be allows to practice medicine, unless they only deal with psychological issues, and read research. Pain management saying that is outright insulting. Plus, without my numerous meds, I can't sleep. I ran out of OTC pain cream the other day, and didn't sleep for 5 days. Then, get more, and sleep fine?

My pain is a trigger for depression and anxiety. I mean, the roughly 2 days I live without pain in a year, are the most magical moments in my life. I'm louder, laugh, and confident. Things feel okay, life is worth living.

I don't know, just sounds strange, good thing you left! I'm glad your recent appointment went well. I've had the same problem of a well known horrible doc/office, but then insurance ignores the entire community (patients, families, docs, psychologists, nurses, etc.) when we speak out. Hopefully, you'll have better experiences from now on.

Nov 21, 2015 12:44 AM

Lol Flappy, it was Mayo he was at. I keep reading stuff that says pain meds aren't recommended for fibro but some days I m in so much pain I can't imagine how much worse it would be without them. I don't want to be on them but the alternative treatments don't sound like they would work. I mean Mayo has a 3 week fibro camp that is 8 hours a day, I can't imagine having to be up, participating and retaining info for 8 straight hours. How do people do it? The last time I did anything remotely like that was 8 years ago when I did the training for my Moms home dialysis. That was 6 hours a day and by day 5 I had pitting edema in both legs, they turned beat red and hot. The nurse doing the training saw them, stopped the training and sent me straight to my doc. The pain and lack of mobility is much worse now than it was then so I don't know how the heck I could hang thru "camp". It may sound like I'm making excuses or whining but it really is overwhelming to me.

Nov 23, 2015 12:06 PM

Omg, Iann, they wanted me in that program but I had to stay in a hotel and pay additional for food, which would have cost $30,000 for the program & $3,200 for the food and hotel and gas. They also wanted to take all my meds (not just pain) and give me what they thought I should take, then send me home for my local docs to keep treating. I found that insulting and overbearing, not to mention costly. The three tests they ran on me for hearing, vertigo, imbalance & tremors, my insurance did not pay for saying they were NOT proven tests nor necessary according to the documentation in my chart. We had to pay the $1,800 (as well as the three trips made with hotels, food & gas). As much good as they did for my dad's internal bleeding no one else could find, chronic pain treatment is not as good as they think they are. 🙏🌼

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