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New "normal"?

Oct 16, 2017 12:11 PM

I am so sick and tired of being so freaking weak and shaky all the time! Why does it have to be so hard to breathe and how come my doctors doesn't seam to understand how big of an impact it has on my everyday life? I mean, how can breathing problems not have a huge impact on my life? Is this the new "normal"? How am I able to learn how to deal with being out of breath all day and almost everyday?

I'm a university student that studies online however we have to go to campus a couple of times every semester. It my first time going to campus this week and I am so worried that my body and mind is not going to last all day. I really hope that I can have a good breathing and pain day!

Oct 16, 2017 12:24 PM

Good luck! I wish I had answers, but I don't. Hang in there, take your time where you can, and be patient wit yourself. My mom and I both have asthma issues (I'm here for other reasons) and her's has gotten really bad, she sometimes takes 5 minutes to walk up the flight of 14 stairs in our house because she can't breath well enough and has to take breaks every 3 stairs, but the docs say "we're doing what is recomended, come back when your resting oxygen intake is below 75%" it is ridiculous! It is amazing how even the slightest oxygen deprivation makes your body and mind slow and weak. <3

Oct 16, 2017 12:29 PM

I'm so sorry you're going through this. That must be very tough, to go to university and be chronicly ill. You'll be in my thoughts and prayers.

Oct 16, 2017 12:36 PM

Thanks! I think I'm just extra annoyed because I still don't know why I having such a hard time breathing. The problems started 7 months ago and the only thing my doctor has done is basically listen to my lungs and heart! I'm waiting to get my lung capacity tested but I haven't gotten the time yet.

I just started studying this year and I really hope I'll be able to manage it and get my degree 💪

Oct 16, 2017 12:40 PM

Have you gone to a lung doctor? I go to one. He has helped me a lot. I have asthma. I use a steroid inhaler twice daily. It really helps.

Oct 16, 2017 12:48 PM

No, my old doctor (I've changed now) just said it goes along with my diagnosis even though I've told him I really don't think it does. The new doctor is sending me to go test my lungs capacity but I'm still waiting to get the letter to see when I get the appointment. But the new doctor sounds a lot better! He doesn't think it goes along with the pain and if the lung test doesn't show anything unusual we're going to investigate further! 👍 Just waiting for that appointment now 😊

Oct 16, 2017 12:51 PM

I've had asthma when I was younger but this feels completely different! But of course it can just be an other type of asthma. Right now l'm out of breath even when I sit or lie down 😩

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