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CatchMyPain Community and Pain Diary App to manage chronic illness

New to asking for support

Jul 18, 2016 6:31 PM

I have been reading diffferent posts today. This seems like a pretty supportive group. Just diagnosed with fibro, although I have suffered for years. Had the mindset of "pull yourself up by the boot straps" attitude, until one day the boot straps broke! Now here I am a new business owner, who has many people depending on me to be successful so they can bring home a paycheck for their families, along with a being a wife and mom to 2 young daughters. I feel tired, foggy, stressed to the max, and always trying to endure my body pain. I take a ton of vitamins, minerals, and supplements. I also have PCOS. THis and fibro contribute to anxiety, depression, and weight issues. Although I have been at a decent weight for a few years now, I am constantly afraid I will gain too much weight which equals more pain on joints, more depression, ect. I am tired of being tired and in pain all the time! Thanks for letting me vent;)

Jul 18, 2016 6:34 PM

And I have clearly filled out my pain chart incorrectly!

Jul 18, 2016 6:50 PM

Yes,this is a great place to find support and vent! Its tough being sick and tired and there's really no good way to find the balance between getting what you need to do done and giving your body the rest it needs.
It helps to remember that your body performs its best when it feels the best so its important to give your body the rest it needs so it can do what you need.
Welcome to a great place! Hugs!

Jul 23, 2016 4:34 PM

Welcome Sliver. What kind of business do you run?

Jul 25, 2016 7:24 PM

Welcome to our community family Sliver! Hopeto be said it best. Take care of yourself to do your best. Learning to pace your activities with rest periods takes time, as does learning what methods work best for you. We are all different and no one thing works for everyone, not does it work every time. My fibro started in 2007 but wasn't dx until 2012, and I'm still learning ways to cope. Every flare is different, and it's best for me to take it one step at a time, one day at a time. We are all learning from each other by sharing, venting, & supporting. This is a safe place to vent or cry. No judgements because we all understand chronic pain. We also like to share good things, as a way to provide a smile, laugh, or cheer each other up.

What kind of business do you have? Do you have a way to work from home, or less hours on your worst days? Others here are business owners. Maybe when they see your post they will have some suggestions for you. Hugs love & prayers you learn your best ways of coping! 🙂💕🙏🌸

Jul 25, 2016 9:54 PM

I too have been observing this sight for a few days and am impressed by the support and information that all of you share.

I am 47, diagnosed with lupus at 19, fibro at 33 and RA at 45. I have played pharmacy roulette over the years and have come on and off different regiments. I am currently trying a wholistic treatment which is new to me.

I am the CFO for a community
Mental health center so between the pain and the fibro fog I am feeling a bit lost about what my next steps are.

My marriage is shakey at best so I need my job. Yet, as I get older it is apparent that symptoms
Will worsen. Trying to cut down and simplify but at a crossroads about what I can do to support myself for the next 20 years.

Jul 26, 2016 11:50 AM

Welcome to you too Perseverance! My heart goes out to you and everyone who is struggling between sickness, relationships, and working. It's not an easy balance to maintain, especially when you don't have the support from family and friends, or you worry over the threat of income loss.

I'm 54, worked early in my marriage then stayed home until 1997. I worked from 1997 until I had to take off for surgery in 2010, which led to more health issues and leaving my job permanently. Being forced to quit over health issues was an obstacle in and of itself. It caused so much emotional and financial stress for the first few years. Once I realized & ACCEPTED I'd never be able to return to work & put in for disability, it was like a heavy burden being lifted from my shoulders. But unlike many others in the community, my hubby has enough income between his current job and his retirement to keep us afloat. I had to readjust out budget and start reducing our debt to afford my medical care. It's tight every month but at least I've been able to create breathing room for us over 6 years.

It took several years for my hubby to become supportive and begin to understand that my health was out of my control. I started asking him to go with me to appts because I was forgetting things. He was able to fill in blanks to the doctors, as well as become educated but then on my issues. Of course it didn't start until he made the comment to my rheumy that he'd be glad when I was able to get better and go back to work. She went off on him like a rocket saying, "You apparently have no idea what your wife goes through on a daily basis!" It was a very enlightening experience for him, and amusing for me! Lol 😉. He has done research and learned as much as he can about all my different diagnoses, and he is my #1 supporter now. It was very helpful to him when someone shared 2 links with me, which I will share separately. Links don't come through unless sent at the end of a message, or separately. Hugs love & prayers as each of you find their best coping methods! 🙂💕🙏🌸

http://www.fibromyalgia-symptoms.org/forums/fibromyalgia_general_discussion/a_letter_to_normals_spreading_hope/

Jul 26, 2016 12:08 PM

Thank you for the kind words and links! I will check them out after work today!

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