Hello everyone, I have been sick for almost 3 years and the pain took me out of work. I was told I had lupus last July and I am just now seeing the rheumatologist and have been diagnosed with Sjögren's syndrome, and fibromyalgia. Living in a state that doesn't let you receive Medicaid has been even more stressful. I also now have severe depression and anxiety. Doctors want me to go to a pain clinic but I can't till I see whether I get disability. So even though I am starting on plaquenil, I will still be suffering.
Oh no I'm sorry you're going through so much! This is a great place to ask questions, vent and learn about how other people deal with chronic pain! I hope you find a doctor that get you and helps you live a life with less pain!
Welcome to our community Painelady! I also have Sjogrens, fibrin, & hypothyroidism, but not lupus. I started on the Plaquenil about 8-9 mos ago, and its helped a lot. But I'm currently in a Sjogrens & fibromyalgia flare, since 2 days ago. So my brain isn't working real well, especially since I'm exhausted but can't go to sleep. I'll check back tomorrow and added anything I think of. Hugs, love, & prayers you'll find a way to best help you cope with your new normal life. 🙂🙏💕🌼