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CatchMyPain Community and Pain Diary App to manage chronic illness

New to Fibromyalgia and the app

Jan 06, 2017 1:03 PM

Hello everyone.

I just found out about the app and was diagnosed with fibromyalgia last September. I struggle most with fatigue and just recently have been stuttering a bit, looking forward to meeting others and learning from them

Jan 06, 2017 1:10 PM

Yes the same for me with the fatique. We have had cold weather in 30'sF here in California and it must be that put me in a flare up of symptoms since before Christmas. Achy all over week, increase in pain. Today especially. I like the idea of cutting out gluten. New Year's resolution # 1

Jan 06, 2017 1:20 PM

Hello Damba. I think the fatigue and fibro fog bother me more than the pain. I also have trouble gettin words out.. I know what I want to say but actually saying it can at times be a challenge.

Welcome to the group. Am so glad you found us. :)

Jan 06, 2017 3:21 PM

Welcome Damba! Fibrofog is likely the culprit for your speech change. I don't stutter, but rather stammer saying words; one word comes out while my tongue trips over another word that is lodged in my brain. You'll get use to it eventually, maybe. Getting lost or forgetting things you've known how to do all your life, to me that is much harder. The fatigue is also worse than the pain to me. I guess it's because I've learned to bluff my way through the pain, but you can't bluff through fatigue. Cold weather worsens my pain in the muscles from fibro, and in the joints from sjogrens and OA I live in central GA and it's 43 today with a bitng cold rain. I'm lasted with gloves and a wool Peruvian poncho in my recliner... And I'm still cold. But it could be worse because at least I'm South of the ice, slush, & snow of storm Helena.

Pace your activities with rest. I've reduced starchy foods and sugar intake, added magnesium and D3 supplements. These are things others suggested had been helpful to them. Not everything works for everyone, so be open to trying various things. I do gentle stretches and light exercise. It seems when I can't for awhile I get stuff and feel worse all over. Hugs love and prayers as you find coping ways that work for you! 🙂💕🙏🌸

Jan 06, 2017 3:56 PM

Hi Damba! Welcome to the community. I have fibro, IBS, depression etc. You'll find help and friends here.

Jan 06, 2017 4:33 PM

Hello Damba I am new too hopefully we can learn more together and with this approach is was diagnosed with fibromyalgia on Thursday the 4th of January

Jan 06, 2017 4:38 PM

I have the fatigue as well most of the day in fact and my pain is high in the morning and night I try to stay active as much as I can do and not overdue it and I relax a lot heating pads and warm baths to relax my muscles I now love relaxing when I can at night when my daughter is sleeping as I have severe insomnia as well she will be 3 next month and starting school

Jan 06, 2017 5:34 PM

Thanks everyone hot baths with Epsom salts are definitely helpful. I am inOntario Canadaand we are in a cold weather snap which is affecting my fatigue a lot. The rain seems to be much worse for me than cold. Which we had earlier this week. This crazy weather is definitely not helpful.

Thanks for the tips. I am currently taking vitaminD and have seen a lot of people post about magnesium so was going to add it in

Looking forward to learning and it is nice to not have to explain the difference between fatigue and just being tired

Jan 06, 2017 7:43 PM

I just downloaded the app. I'm trying to figure out the best way to log my flare ups. I'm on day 3 of not being able to do much. I exhaust easily, skin feels painful, and the bottoms of my feet keep cramping, making it difficult to walk. I've been taking magnesium, which seems to help with the cramping a little.

Jan 06, 2017 8:09 PM

DharmaPile
Welcome to the group. I am sure many of our members will have suggestions for you. One thing that helps me as well.as my doctors is in the comment section I make note of anything that might affect my pain levels such as temperature changes, going shopping, being sick etc.. I also list anything I try that's different such as new exercises or new vitamins. This helps me to be able to look back on what has been going on and what could have contributed to a flair up.

I also have a migraine app and it helps me to track what triggers my migraines.. That's where I got the idea to try and track my pain triggers.

Sorry, am rambling tonight.

Jan 07, 2017 9:56 AM

Welcome Damba, I look forward to getting to know you. Check out some of the older threads with the little magnifying glass and put in key words of what you want to know. You'll find much information here to assist you as well as an entire community of fellow pain warriors to help you get through the bad times. Keep positive, it helps.💕🤗

Jan 07, 2017 6:40 PM

I was diagnosed on December 28, 2017 with fibromyalgia. I suffer from pain all over my body, fibro, speech, stiffness, fatigue this drives me crazy because I was told I was experiencing these issues because of menopause! So I joined a yoga class, rest as much as I can through the day. It was great to read that I can talk and have someone to understand what I'm feeling. I'm looking forward to learning to cope from what others have already experienced. Thanks everyone for sharing.

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