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New to fibromyalgia need support

May 30, 2016 8:16 PM

I have recently been diagnosed with fibromyalgia. Theh have put me on cimblota. Some days are worse than others. Sometimes I feel alone and that i bother people. I'm just looking for support and encouragement. Thank you

May 31, 2016 12:03 AM

Welcome. You won't be bothering folks here. We are all here to be of comfort.

May 31, 2016 12:43 AM

I take Cymbalta too and it is helpful, although I had to lower the dose and only take 30mg twice a day. Give it time and good luck!

May 31, 2016 10:36 AM

Welcome to our community family Marbear! I've had fibro since 2007 but it wasn't dx until 2012. I also have multiple other chronic illnesses, many that cause pain. You will find lots of support here, along with suggestions, advice, an ear/shoulder to listen & cry on, prayers/positive wishes & energy, and even some laughter now and again. I have many medication allergies, mostly to pain meds, and cymbalta is one med among many that I cannot take. But for the first six months it worked wonderfully, both on the fibro pain & the depression. I have to take gabapentin for the neuropathy pain. But I was put on plaquenil for sjogrens, and it was a blessing in disguise (in light of my med allergies) because it also helped with the fibro pain along with the sjogrens pain.

Depression is another party of any chronic pain issue. And there is no shame in getting help to keep it under control, not let it take over. Learning to live with chronic pain is not easy. You'll will have as many bad days as good ones, if not more, especially until you learn how best to cope and get through the painful times. And you'll have to listen to your body to learn your new limits; what you can or can't do and for how long. I handle my days one thing at a time, one step at a time, resting in between. When my body says rest I do. And when I'm having a good day I try my best not to overdo my activities, otherwise I can have several days setback. Many here do the same way. It's a very delicate balance that takes time to learn. From other's suggestions I've made changes in eating healthier (less sugar & pre processed foods), taking supplements, and relaxation ideas. Enjoyable activities have changed for all of us, either in how we do our if we do them.

We do not have to let any of our illnesses take over our joy. I may not be as healthy as I use to be, but I live to love my family and be loved by them, and to serve whatever purpose God has for me. My faith in God is my biggest lifeline in not letting my health issues drag me over the edge where I've been before and never want to go again; abyss of depression and suicidal feelings. God holds the key to my life now. But not everyone believes in God, nor does everyone have the same methods for coping. It's by trial and error that you'll find your way. Track every symptoms, improvement, activity & effect on pain, etc, and share it with your doc(s).

Like Invisiblepain said, give your meds time, your body time to adjust. If you get concerned about how meds are affecting you, you can go to www.drugs.com to check possible side effects or adverse reactions. But always report any major concern about meds to your doc. It's good to have a team of doctors which work together and with you so that you get the best care possible. For instance, having multiple organ issues I have my PCP along with rheumatology, endocrinology, orthopedic, neurology, cardiology, ENT, pulmonology, Allergy, Urology, Pain Specialist, Gastrology, Psychology, Psychiatry, & Gynecology docs. If they aren't doing their best to help you then find someone who will.

Besides the drugs.com site you can find more info at the following posted links. I can never get them to work posting together so I'll do multiple ones. I wish you all the best as you begin to find the best methods for coping with your new chronic pain life. Hugs & prayers for strength & courage as you make your way! 🙂💕🙏🌼

May 31, 2016 11:44 AM

Hi,new to this. I've been diagnosed with fibro 2 years now. I also have wear and tear to my lower back,arthritis to both hips and kness. Feel so fed up!

May 31, 2016 11:56 AM

@flappslady81 - ty so much for your help and support. I really appreciate it. I have hope now that I'm not alone. I have much to live for especially my daughter. I'm just not happy I'm having to live with this at 30. I sprained my shoulder 4 years ago and it never healed right. Ever since then I have had tests and seen numerous doctors. I had to quit being a CNA. Which is how I hurt my shoulder. It is better since I quit my cna job. It was very stressful. I made the choice of quitting. It makes me sad that I can't do what I love anymore. But iv told myself that I have to take care of me. I think having this group here close to me is going to help. I'm just new to this and need encouragement. Ty for your time and concerns. I hope I am able to help others with learning from having fibromyalgia.

May 31, 2016 12:00 PM

@bevann50- iv only known about my fibromyalgia for a month now. I also have wear and tear arthritis in my shoulder. I am also fed up. I have had pain for 4 years now and it's finally been diagnosed with fibromyalgia. Hang in there which is easier said than done.

May 31, 2016 12:11 PM

Marbear0331 thanks. Ye it's tough cos people don't understand the pain and all the other signs of fibro. Also Dr's don't really understand and sometimes are not very sympathetic. It does all get you down,but I won't let it rule my life. I work and if I didn't have all the medication I'm on,would cope.

May 31, 2016 12:37 PM

@flappysLady81 I'm so glad you posted those links. I've suffered with fibro for over a decade and that is the best information I have seen!
Thank you for taking the time to help.

May 31, 2016 12:46 PM

@ Bevann50, welcome to you too! Please check out the links I shared with Marbear. Hugs & prayers you will also find methods to help relieve your pain, to cope better!

@ Marbear, My daughter injured her shoulder, which also has never healed properly. While trying to find help for her we came across something called "thoracic outlet syndrome.". Look into it. I also had to quit a much loved job, medical records technician & coder. It's like all the years of college (PT while raising kids, so twice as long) just went down the drain. But everything has a season and that season has passed. So forward I go, trying to enjoy what I can, testing when i can't, and forgetting working again.

Wishing everyone a blessed day today, with hugs, love, & prayers! 🙂💕🙏🌼

Jun 01, 2016 5:00 AM

Autoimmunes,your welcome

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