Hello, as you can see by my title I am not ready for this and having a hard time. I have had minor issues for a long time, but it has only been in the last 5 yrs that I have been told Fibro is what is wrong. I hurt a lot and it is very depressing and makes me mad at myself that I feel like I can no longer participate in my life. I am still working full time but having a hard time as the pain many days makes it hard to think. I currently am taking Cymbalta and Meloxican (?sp) each day and helps some, but most days I just grit and get through. Does it get better? Will age make it worse (I am 47)? Is it hereditary? Thanks for letting me vent and wonder!!
Welcome TiredofPain, you can read more about fibromyalgia in my articles. I post new ones weekly. They are accessable on my profile in the bottom if you're a subscriber. Feel free to ask questions too. Hope you find your answers here👍
I'm New also and everyday I learn something new about how to get a handle on fibromyalgia... And sometimes I am so tired I just sit and watch tv if I can sit.. At first I would be upset but now I just deal with it the best I can.. Walking helps me.. The pain is mostly in my legs. This site will help with different ideas to cope with pain.. Reading as much as you can and do what's best for you and your body. And I truly understand how you feel. Its hard for me to focus.. But we are here if you need to talk... I hope you have good day...
Welcome to the community TiredofPain! When my fibro symptoms started, 2007, I was working full time and struggling to get through every day. I left work for surgery in 2010 and due to continued declining health with new dx I'm no longer able to work. I owe have Sjogrens and hypothyroidism, among many other issues. Once the sjogrens was dx and I was started on Plaquenil my pain avg dropped from 7-8 to 3-4 daily. When I have flares it goes higher. The fibro was dx in 2012 but I kept pushing my doc something else was wrong. As most of us have learned, having one AI disease opens up to having more AI diseases (ie, fibro, sjogrens, hypothyroidism), which many share symptoms. Keep charting your symptoms and see a rheumatologist if you haven't already. We all react differently to both pain levels and treatments. I'm allergic to most pain meds so the Plaquenil is a blessing for my pain. From what I've read fibro pain actually improves with age, but that's usually because other dx have jumped on board and surpassed the fibro. I have both good and bad days, but not great days very often. I'm never pain free but I've learned to pay attention to my bodies signals; rest, modify, stop activities, etc. Don't apologize for venting. It's allowed here because this is our safe haven without judgement. You'll find only support here. We cry, laugh, and pray for each other... Whatever is needed for support. Hugs & prayers you will find a survival method that's right for you! 🙂🙏🌼💕
I have only had Fibromyalgia for five years but everything that I read has said that the best pain control and mobility will have to do wit an exercise program that is manageable that includes stretches. Most encourage yoga.
I can't take any NSAIDs for pain as my kidneys are in stage 3b failure.
I also can't take most opiates because they just don't give any relief or have wicked side effects.
I have hEDS and have dislocated my knee by putting cinnamon rolls in the oven, my ankle walking down the hallway, and even my shoulder by sleeping.
Diversion is my main way to deal with pain, but I also use a TENs unit, heating pads, topical pain creams, and I even vent here occasionally. Some times things get a point where I tend to remove myself from all forms of communication until I can handle it again, during those times I don't post here unless I feel like I have something extremely important to say.
Welcome to the group TiredOfPain, I don't have fibromaylgia but I may have possible RA and like you it is hard to get through the day. I don't work full time anymore...I had to leave that job to take care of my Aunt who was very ill and needless to say that my back couldn't hold up to the immense pressure of what my job then entailed me to do. While now that my Aunt has passed on I still have special needs kids I have to take care of, that in itself is a job like no other, I use alot of ice, rice socks, heating pads,tens unit and of course my medications. Day before yesterday I started taking Gabapetien and it has been my best friend! I am able to cut down on how much I have to take to get through my day. I pray that you find what works for you!
Although I haven't been dx with fibro, I understand your concerns. As far as pain, I think most of us can agree that there will be good days and bad. The thing to remember is that on your bad days is to take it easy, relax as much as possible; and on your good days, pace yourself, don't try to do too much at once. Good or bad day, listen to your body.