Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

New to the community!

Nov 30, 2016 3:38 PM

Hi everybody!

I'm new to this community so thought I'd give a little introduction of who I am.
I'm 24, been signed off work as a healthcare assistant since September 23rd 2016 with undiagnosed back pain. I'm awaiting seeing an orthopaedic practitioner on the 9th December as my GP thinks it could be spinal fractures, bone crumbling or spinal cord damage. I've been on morphine since September but even that's started to not touch the pain which means I don't sleep much anymore :(
On top of that, I also suffer from M.E and have found that even though it was in remission and I was managing well, as soon as my back became bad (unknown cause), it's triggered a relapse and I'm now struggling with simple daily tasks again!

Looking for people who also have chronic pain and similar conditions for support and to offer support to!
If I'm going to be stuck at home and not able to move far, I want to be able to help somebody else have a smile on their face :)

Thanks for reading!

Nov 30, 2016 4:06 PM

Welcome to our family community Annicott! Sounds like you're having a very difficult time. I'm so sorry I don't have any suggestions for you. I'm having a difficult time today grasping words for suggestions. I have spine issues all the way down, and I've had 3 surgeries on my cervical discs, so I understand the pain. You will find lots of support and hopefully helpful suggestions & information from everyone. We are a pretty diverse group, coming from all over the world, with various problems. We learn from each other's experiences, and get ideas to talk with doctors about. There is no dumb question, and no judgements or criticism here. We're support each other because we all understand what living with chronic pain is like, and we've all faced judgement and criticism from others before. Hugs love & prayers for reduced pain as you wait to be seen by the specialist! 🙂💕🙏🌸

Nov 30, 2016 4:17 PM

Hi Annicott and welcome to the community.
There are many people here from across the world so sometimes you may find that people will reply in their time zone which could be several hours after you post.
Everyone on here suffers with chronic pain of different kinds and in varying degrees, some are battling more than one chronic condition as well.

Myself, I'm battling trigeminal neuralgia, depression and anxiety. I'm waiting to see mental health to see if I have PTSD (my GP thinks I have because i have the triggers that set me right back to square one!) And I also think that I have CFS as my fatigue is so bad most of the time but my GP thinks it's all linked to my TN and anxiety.....she thinks I'm on one big merry go round where one triggers the other which then triggers back making it all worse and so forth!

I'm sorry that you're suffering with the back pain which has triggered your relapse and are struggling to do daily tasks....I know that feeling very well, days of washing up piled in the sink, vacuuming that hasn't been done for days etc... it's very easy to lose track of it but you have to try to let it go and plan your day to see if you have enough energy to do even one task that needs to be done.

Sending you positive vibes and hugz xx

Nov 30, 2016 4:17 PM

Hi FlappysLady81,

Thank you so much for your lovely introduction to this site! I hope you're right about everybody being so supportive as is difficult to make my family & some of my friends understand that this horrific pain seemed to come from nowhere and is now damaging my daily life.
If you don't mind me asking, how long have you been having spinal trouble?! Do you find you struggle to sleep with the pain?!
Hugs, love & light sent to you ❤️

Nov 30, 2016 4:23 PM

Hello Sezzy,

Thank you for taking the time to reply to me!

I'm sorry to hear you're having to face so much at the moment. I too suffer from depression & anxiety and have battled PTSD in the past. I don't know much about trigeminal neuralgia I'm afraid but if you need somebody to vent to, my hearing is pretty good!

It sounds like you're a very positive spirit though & that's rare to find these days. It's incredible that despite everything you find the time to offer comfort and solice to others ❤️

The days of washing up piled in the sink has become standard procedure as standing at the sink to do the washing up makes it feel as if my spine is collapsing on itself and it's exhausting. Me and the hoover haven't been friends for weeks either. Sometimes it makes me feel so grubby as I'm very house proud but I try not to put too much pressure on myself 🙂

Have you found any useful coping mechanisms for anxiety?! I know quite a few good ones from when I had CBT and studied Psychology at university. Always happy to share if you'd like?! 🙂

Love, light and hugs to you ❤️

Nov 30, 2016 4:26 PM

Welcome.Sorry you're in pain too. I have lupus, and Osteo. So lots of pain.

Nov 30, 2016 4:48 PM

My anxiety is pretty bad atm that even my CBT counsellor stopped our sessions the other week after only having 4 of them. Each time I went to see her I was getting worse and the coping strategies she gave me only worked while I did them but everything came rushing back once I went back to normal!
At the moment I'm being referred for secondary care where they come to me to help me with real time coping strategies like going into a supermarket on my own....I can't do that atm so my 10 year old daughter acts almost like my carer!

I've always been a very positive person...glass half full and all that....so what is happening is really hard to cope with at times plus I sleep a lot....all at the wrong times so when it is time for bed my brain becomes a washing machine that's constantly spinning around!!! Lol I love imaging that my head is a washing machine on spin it makes me laugh because if I put my own washing machine on the highest spin it jumps about and tries to dance around my kitchen, so I apply that to my head and play a little music then hay presto I'm doing a little dance in bed!!!!
The things that go thro my head makes me wonder if I'm truly sane or whether I should call the guys with the straight jacket's!!! 😂

Nov 30, 2016 5:16 PM

Sezzy you make me laugh-haha! Welcome Annicott. I have fibromyalgia, DDD, depression, anxiety, and stomach issues.

Dec 02, 2016 12:57 PM

Welcome to the asylum Annixot!! Hope you find the support and laughs and information u need to help you through your pain journey!!💕😊

Ready to start relieving your pain?

Join Community