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New to the group and struggling

May 10, 2017 9:24 AM

I'm really trying to keep my self together. I'm 33 years old with a beautiful and very active 8 year old daughter. I work full time from home. For years I had pain issues, fatigue, and migraines but chalked it up to endometriosis. After being diagnosed with fibromyalgia in 2013, I did pretty good staying actibe, eating healthy, and doing the medication rollercoaster. But this year I just can't get a grip on it. I was taken off of work in January by my rheumatologist and given a new medication to try. It seemed to be working so I came back to work. One month later here I am calling in FMLA again. I'm strongly considering filing for disability. Can anyone tell me about the process? From what I've read online most people don't win the first time and have to appeal.

May 10, 2017 9:38 AM

Hi martije, welcome to the community. We come from all over the world. Feel free to ask questions, rant or vent. We care! I've had SSDI since 1994 and it took 2 years. The rules were different then. What I've heard the most important thing is to get a lawyer. They take a percentage of your final award. Most people loose the first time around but I know someone who got awarded after the first time so you never know.

May 10, 2017 9:53 AM

Thank you! Initially, my family doctor told me I was just stressed from my job as a banker, but when I showed him the pictures of me changing colors and he felt my shoulders etc. he then agreed to refer me to a rheumatologist. The hardest part of it all is how people see me and think nothing is wrong. I tried the cognitive therapy but that wasn't working so I decided to go on the medication rollercoaster. They work for all of a month or so and then I'm back to where I started...Peeling myself out of bed!

May 11, 2017 12:35 AM

Hey there, I am also new here, 33 yrs old, and was also diagnosed in 2013. I was working but was taken off the job this past July. I am currently waiting for a response from SSDI to see if they'll approve it or not. I didn't have a lawyer, but, if need be, will get one for the appeal process. I'm really hoping it doesn't get to that stage. It has been a long process and seems like it's never going to end. I was told I'd have an answer in a week and a half, but I'm not going to hold my breath. I know how frustrating it is not having money to pay for basic necessities. I wish that fibromyalgia was recognized for the debilitating illness it is.
Sending lots of luck to you

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