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CatchMyPain Community and Pain Diary App to manage chronic illness

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Sep 24, 2015 11:31 AM

Hello everyone. My story is that back in 2000 I was working as a nurse at the local hospital near where I live. On Feb 8th of that year I was asked if I could come and help get a patient back into bed that had partially fallen out. Another staff and I had to bring the patient down onto his knees then raised him up to a standing position. Once we got him standing he all of a sudden buckled and started to fall again and trying to prevent him from injuring himself I felt a sharp and stabbing that went from my lower back down both my legs. Was taken to the ER and after many test it was determined that I ruptured the L4-5 disc. So to make a long story short I arranged to have the back surgery as well as a gastric bypass. The surgery was performed and during the operation the surgeon punctured my spinal canal and caused what is called Adhesive Arachnoiditis, which is the middle lining of the spinal cord that if assaulted causes what basically is cementing of the cord. This results in extreme pain that never goes away and can be aggressive in spreading. So I am always in pain 24-7, medications to treat this disease is a long list but have developed allergies to a lot of the opioids that can help. Now after all this time it is now affecting my heart causing it to rapidly beat at times it has been almost 300, which has landed me in the hospital 9 times since the 6th of last month. Its been a battle to find doctors who know the disease and understand what needs to be done. Have found one that understands and now awaiting to get an internal pain pump implanted. In the mean time its the ER if my BP goes over the 120/80 with a heart rate over 100. So that the short of the story. Again I am glad that I found this AP.

Sep 24, 2015 11:49 AM

GC08, so sorry to hear about your injuries and pain. That must be horrible! I too am glad you found this AP. It's an amazing feeling to have someone else understand your pain. Welcome to the group and I hope that we can help you. Sending positive and healing vibes your way.

Sep 24, 2015 12:13 PM

GC08 Welcome to our family , there are so many wonderful caring and concerned people. You can come here and rant and rave all you want and you won't be judged. We all have done it at one time or another. I too worked in a hospital as a nurses aide when I got my foot caught and fell into a chair slid out and hit the floor. I herniated L4 S1, I have a Syrinx C 7 to 12 L. I have degenerative disk disease, Syringomyelia, Osteoarthritis, Fibromyalgia. I had anteriordiskectomy on C5,6,7 in 2006 it helped on pain level about 20% Syrinx drained but came back in 2010. It has caused me to have numbness and tingling in my rt side of body, and to drag left foot last for 24 hrs. They usually put me in hospital run stroke test thank God always comes back negitive. It now is effecting my rt arm, hand and fingers tingling and jerking.

Oct 01, 2015 8:29 PM

Welcome GC08! I'm so sorry to hear of your terrible accident and the surgery outcome. My cervical discs were fused years ago from auto accidents, but I've been very lucky with surgery. I do have bulges, a tear, and osteoarthritis in my spine. But compared to you and Weezies issues mine is like a skinned knee. I do have fibro, sjogrens and other issues, and my avg daily pain is usually a 3-4 unless I'm flaring or overdo it.

Besides your meds do you have other methods for pain relief, like a TENS unit, hear out ice packs, relaxation, etc? I use all of these methods, but ice packs can't be directly on my skin due to temperature intolerance. I also have severe allergies to so many pain meds, so I only have Tramadol, a muscle relaxer, migraine meds, and voltaren gel.

I wish you a very good outcome with your pain pump implant. You'll be in my thoughts and prayers. 🙏🌼

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