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CatchMyPain Community and Pain Diary App to manage chronic illness

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May 31, 2016 3:06 PM

I hope this tracker and stuff helps I don't see what difference it will make but my doctor can see the pain results I guess.
I have multiple problems, DDD, fibro, degenerative/osteoarthritis, migraines (which have decreased since they Cauterized the nerves in my neck), trochanteric bursitis, and bulged disks up and down my neck and back.
Yeah that's just the physical stuff fun fun huh. I'm hoping to just make some friends, and learn some things. I have allot of stress in my life (who doesn't nowadays), so my symptoms vary day to day, I'm still in the early stages of fibro got diagnosed in 2011 but it's worse because of all the other problems, or maybe it's the other way around I don't know.
I've been trying exercising, yoga to be specific and light cardio walking and stuff which sometimes helps but sometimes makes it worse, so trying to lose weight is a challenge for me and it sucks. Anyway I guess that's all for now.

May 31, 2016 5:44 PM

Welcome to our pain community family Firefly2504! You and I share the same issues. I was dx with fibro in 2012 but have had it since 2007. In 2015 I was dx with sjogrens & hypothyroidism; all three share symptoms, including pain. I've learned from others on here it's very common to get multiple Autoimmune issues (AI). When I first tried meds for fibro they have me various psych drugs that also help pain. But I'm super sensitive to psych meds, and allergic to most pain meds. I was eventually put on gabapentin which helped some. But when I was dx with sjogrens and started the plaquenil, it was a blessing because it dropped my daily avg pain from 7-8 to a 3-4. I still have flares but from learning relaxation techniques and walking & stretching, and massages with voltaren gel, I'm learning to help manage & cope with the pain. I'm also changing my diet to eat healthier, fresh foods, and less processed or sugary foods. It takes time, trial & error, and don't be afraid to get second opinions or try different options. Not everything works for everyone. You'll have lots of support here. Read old posts about fibro by searching with the looking glass, or any other subject. Feel free to ask questions, vent, cry, ask for prayers/support, etc. We don't judge each other because this is the one safe place we can express ourselves that others truly understand what we are saying. We even enjoy sharing a laugh out two. Grieve the lifestyle you lost, and in time try to accept and embrace the new adapted lifestyle, to enjoy as much of life as you can. Listen to your body as it gives you signals to stop and rest, out be active. I rest between every activity, taking every day one step at a time. I posted links earlier today on another thread that you will possibly find helpful too. Hugs & prayers as you go forward, learning to cope with your new lifestyle of chronic pain! 🙂💕🙏🌼

May 31, 2016 5:44 PM

Welcome, yes the pain tracker has helped me know which meds are helping and my doc to see what's going on for me. She was surprised. Again with the "but you look so good" so do give it a shot.
I've found that folks here understand the pain I'm in without ever knowing me as someone here is bound to have similar dx. And no one disbelieves or minimizes your experiences. It has been a relief for all I've seen here, just knowing there is someone to turn to 24/7.

May 31, 2016 6:09 PM

Thank you guys for the welcome and the comfort

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